Skin Diseases
(asked on 19th December 2017) - View Source
Question to the Department of Health and Social Care:
What estimate he has made of the number of patients with Erythropoietic Protoporphyria.
This question was answered on 19th December 2017
In 2016/17 there were 54 National Health Service admissions in England with a primary diagnosis of Erythropoietic Protoporphyria.
Whilst the numbers of people with a particular rare disease can be very small, 3.5 million people in the United Kingdom have a rare disease. We know, as with the hon. Member’s constituent, that these diseases can have a heart-breaking impact on a person’s health.
That‘s why the UK is committed to building on our position as a world-leader in the diagnosis and treatment of rare diseases.