Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that children referred for (a) neurodevelopmental and (b) paediatric assessment continue to receive care during transitions between (i) services and (ii) providers.

It is the responsibility of the integrated care boards (ICBs) in England to make appropriate provision to meet the health and care needs of their local population, including pre-and-post diagnostic support for children with neurodevelopmental conditions, in line with relevant National Institute for Health and Care Excellence guidelines.

The 10-Year Health Plan commits to establishing a new radical approach that will ensure that, as children and young people navigate the National Health Service, they feel comfortable and confident in managing their own health and care from 16 years old where appropriate. This will include supporting young people as they move from child to adolescent and adult services, making sure that care is developmentally appropriate throughout.

A national transition framework is being developed to help local areas set up this model or to strengthen an existing one. The principles of age-appropriate services it will set out apply to young people receiving care for the first time as well as those already on a transition pathway.

While this framework focuses on the broad principles of transition, future work will focus on specific considerations and conditions. Training is also being developed for healthcare staff to develop their skills in providing the best standards of care.

In April 2023, NHS England published a framework and guidance to deliver improved outcomes in all-age autism assessment pathways. The guidance aims to help integrated care boards and the NHS to deliver improved outcomes for children, young people, and adults referred to an autism assessment service. This includes support for them and their families/carers, while they are waiting for a diagnostic assessment and once they have received the diagnostic outcome.