Rare Diseases
(asked on 15th December 2014) - View Source
Question to the Department of Health and Social Care:
To ask Her Majesty’s Government what estimates they have made of the potential cost of treatments for rare diseases over the next five years.
This question was answered on 31st December 2014
No forecast by NHS England of aggregate future expenditure on rare diseases is available.
NHS England uses a number of methodologies to estimate the potential costs of any new treatment for rare diseases. This includes working with the horizon scanning team from the National Institute for Health Research as well as with industry representatives and other stakeholders such as patient groups and the National Institute for Health and Care Excellence.