Question to the Department of Health and Social Care:

To ask His Majesty's Government, further to the England Rare Diseases Action Plan 2022, published on 28 February, what is the breakdown of the scope of the NHS’ annual report on the uptake of drugs for patients with rare diseases; and when it will be published.

NHS England will provide an annual report on the uptake of drugs recommended in the National Institute for Health and Care Excellence’s highly specialised technology programme for patients with rare diseases by the end of 2022/23. This will include data comparing the actual patients receiving a drug with expected numbers. Where the number of patients is sufficiently high for statistical analysis, this will be reviewed to determine whether uptake has been geographically equitable.