Jun. 14 2024
Source Page: The King's Birthday Honours List 2024Found: For charitable services to People with Parkinson's Lancaster Lancashire Order of the British Empire Members
Jun. 14 2024
Source Page: The King's Birthday Honours List 2024Found: For charitable services to People with Parkinson's (Lancaster, Lancashire) Steven David GOULD Council
Formal Minutes May. 29 2024
Committee: Petitions CommitteeFound: Allow the release of beavers into the wild with a licence from Natural England 329 Make people with Parkinson's
Formal Minutes May. 28 2024
Committee: Work and Pensions Committee (Department: Department for Work and Pensions)Found: DYE004 5) Enable Works (DYE004 6) Professor Melanie Jon es and Professor Victoria Wass (DYE0049) Parkinson's
Asked by: Simon Lightwood (Labour (Co-op) - Wakefield)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the adequacy of numbers of Parkinson's specialist staff in (a) West Yorkshire integrated care board area and (b) England.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
As of June 2023, there were 5.8 full-time equivalent (FTE) Parkinson’s Consultants working in the West Yorkshire Association of Acute Trusts. There were 10.49 FTE Parkinson’s Clinical Nurse Specialists. This only includes those working in acute hospital services.
While the Department does not hold data specifically on the number of Parkinson’s specialist staff in England, we do hold data on the numbers working in the wider speciality of neurology. As of January 2024, there are over 1,800 FTE doctors working in the specialty of neurology in National Health Service trusts and other organisations in England. This includes over 900 FTE consultant neurologists. In 2023, the fill rate for recruitment into the specialty of neurology in England was 94%.
May. 16 2024
Source Page: Experience of claiming and receiving Carer’s AllowanceFound: “She gets carers coming to the house for personal care but she has Parkinson's so she needs to be fed
May. 15 2024
Source Page: Arts & Heritage Minister Lord Parkinson's speech to the Arts and Humanities Research CouncilFound: Arts & Heritage Minister Lord Parkinson's speech to the Arts and Humanities Research Council
Asked by: Caroline Lucas (Green Party - Brighton, Pavilion)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what funding the (a) National Institute for Health and Care Research and (b) UK Research Institute has provided for Parkinson's research in each of the last five years.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Government’s responsibility for delivering Parkinson’s disease research is shared between the Department of Health and Social Care, with research delivered by the National Institute for Health and Care Research (NIHR), and the Department for Science, Innovation and Technology (DSIT), with research delivered via UK Research and Innovation (UKRI). Between the financial years 2019/20 and 2023/24, the Department of Health and Social Care, via the NIHR, funded Parkinson’s research projects to a total value of £12.9 million of programme spend.
As well as funding research itself, the NIHR invests significantly in research expertise and capacity, specialist facilities, support services, and collaborations, to support and deliver research in England. Collectively this forms the NIHR’s infrastructure. The NIHR’s infrastructure enables the country’s leading experts to develop and deliver high-quality translational, clinical, and applied research into Parkinson’s disease. For example, in the financial year 2022/23, the NIHR Clinical Research Network supported 114 studies related to Parkinson’s disease. UKRI spent over £66 million on research into Parkinson’s disease between the financial years 2019/20 and 2023/24. The following table shows the breakdown of spend on Parkinson's research for the NIHR and UKRI, each year from 2019/20 to 2023/24:
| NIHR programmes | UKRI | Total |
2019/20 | £2,470,000 | £18,200,000 | £20,680,000 |
2020/21 | £2,180,000 | £11,970,000 | £14,160,000 |
2021/22 | £2,620,000 | £13,010,000 | £15,640,000 |
2022/23 | £2,570,000 | £11,890,000 | £14,470,000 |
2023/24 | £3,030,000 | £11,060,000 | £14,090,000 |
Total | £12,900,000 | £66,150,000 | £79,060,000 |
Asked by: Alan Brown (Scottish National Party - Kilmarnock and Loudoun)
Question to the Department for Work and Pensions:
To ask the Secretary of State for Work and Pensions, pursuant to the Answer of 29 April 2024 to Question 23517 on Work Capability Assessment: Parkinson's Disease, when she (a) last met and (b) is next scheduled to meet representatives from Parkinson's UK.
Answered by Mims Davies - Minister of State (Department for Work and Pensions)
Ongoing engagement continues with a range of charities and clinical experts specialising in disability and health conditions as well as representatives from national organisations to understand the experiences of people with Parkinson’s going through the Work Capability Assessment.
Details of ministerial meetings are published quarterly on gov.uk in line with transparency data releases and can be found here.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of implementing a Parkinson's Passport that would give automatic access to clearly defined benefits.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department is currently exploring the feasibility of this, and the other asks within the charter.
The Department for Work and Pensions offers Personal Independence Payments (PIP) to individuals with health conditions or disabilities. However, there is currently no automatic entitlement to PIP in relation to specific health conditions, except in cases of people nearing the end of life, specifically the last year of life. The Government understands that there are people with severe and lifelong health conditions which will not improve. Guidance ensures that those on the highest level of support, whose needs will not improve, receive an ongoing award with a light-touch review at the 10-year point.
The primary focus of the Department for Transport’s Blue Badge scheme is to help those with the greatest mobility needs. Eligibility is not based on the type of disability. There are several automatic qualifying criteria for a Blue Badge, such as being in receipt of PIP because you cannot walk more than 50 metres. People who do not automatically qualify for a Blue Badge may still be eligible for a badge through further assessment.
With regards to free prescriptions, approximately 89% of prescription items are currently dispensed free of charge, and there is a wide range of exemptions from prescription charges already in place. People with Parkinson’s disease who are 60 years old or over are entitled to free prescriptions. For those that have to pay for prescriptions, the cost can be capped by purchasing a pre-payment certificate, which can be paid for in instalments. Additionally, the NHS Low Income Scheme can provide help with health costs on an income-related basis.