May. 20 2024
Source Page: PM statement on the Infected Blood Inquiry: 20 May 2024Found: Many – including children at Lord Mayor Treloar College - were part of trials… …conducted without their
Mentions:
1: Rishi Sunak (Con - Richmond (Yorks)) Many, including children at Lord Mayor Treloar College, were part of trials, conducted without their - Speech Link
2: Keir Starmer (Lab - Holborn and St Pancras) We go to hospital for care. - Speech Link
3: Stephen Flynn (SNP - Aberdeen South) used as research; parents watching their children die; children watching their parents die; and tens - Speech Link
Mentions:
1: Fiona Bruce (Con - Congleton) In Tibet, according to recent UN reports, up to 1 million children as young as two are being sent away - Speech Link
2: Fiona Bruce (Con - Congleton) However, the men, women and children around the world who suffer—whether under the hard arm of authoritarian - Speech Link
3: Thérèse Coffey (Con - Suffolk Coastal) dangerous work right around the world, not only in the traditional forms of education or helping with care - Speech Link
Mentions:
1: Peter Dowd (Lab - Bootle) and poor integration of palliative care and mental health care. - Speech Link
2: Liz Twist (Lab - Blaydon) faced by the families of children and young people with rare conditions when accessing mental health - Speech Link
3: Abena Oppong-Asare (Lab - Erith and Thamesmead) particularly touched by how he talked about the impact of limited access to mental health support and poor palliative - Speech Link
4: Maria Caulfield (Con - Lewes) Only a few weeks ago, we put forward funding for 24 early support hubs—support hubs for children who - Speech Link
Mentions:
1: None When we consider the impact of isolation and loneliness on health and social care, the knock-on effects - Speech Link
2: Doris, Bob (SNP - Glasgow Maryhill and Springburn) am the convener of the cross-party group on rare, genetic and undiagnosed conditions and the CPG on palliative - Speech Link
3: None underestimation of the demand for a benefit as soon as it is available—for example, the benefits for carers and children - Speech Link
4: None You might wonder whether it is to pay for a carer or for care, and you might think that the allowance - Speech Link
Special Report May. 09 2024
Committee: Health and Social Care Committee (Department: Department of Health and Social Care)Found: and provision of palliative and end of life care is patchy.
Mentions:
1: Tonia Antoniazzi (Lab - Gower) dying and palliative care. - Speech Link
2: Tonia Antoniazzi (Lab - Gower) care; we must also have frank discussions about how palliative care can be improved, so that we can - Speech Link
3: Rachael Maskell (LAB - York Central) My children will have a better future without me. - Speech Link
4: Andy Slaughter (Lab - Hammersmith) We should have better palliative care. - Speech Link
Apr. 29 2024
Source Page: Rwanda: country policy and information notesFound: rights of camp -based refugees were respected in terms of access to shelter, food, water, medical care
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will take steps to ensure that best practice in palliative and end of life care is shared across the NHS.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The Government recognises that access to high-quality palliative and end of life care can make all the difference to individuals and their loved ones. NHS England meets regularly with regional and system leaders, providing a forum for the sharing of best practice. In addition, there is a palliative and end of life care workspace available on the FutureNHS Collaborative Platform, which includes a range of resources, case studies, and discussion fora, with access to the platform available for anyone with a NHS.net email account.
NHS England has developed a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, enabling integrated care boards (ICBs) to put plans in place to address and track the improvement of health inequalities, and ensure that funding is distributed fairly, based on prevalence.
As of April 2024, NHS England is including palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. These meetings will provide an additional mechanism for supporting ICBs to continue improving palliative and end of life care for their local population.
The Ambitions Framework, refreshed by the National Palliative and End of Life Care Partnership, which is made up of NHS England and 34 partner organisations with experience of, and responsibility for, end of life care, sets out the vision to improve end of life care through partnership and collaborative action between organisations at local level throughout England, by setting out six key ambitions.
Furthermore, the National Institute for Health and Care Excellence (NICE) has published guidance and quality standards on end of life care for adults, and children and young people. These are based on best practice in developing and delivering care and, while not statutory, there is an expectation that commissioners and service providers take the guidelines into account when making decisions about how to best meet the needs of their local communities.
Asked by: Baillie, Jackie (Scottish Labour - Dumbarton)
Question
To ask the Scottish Government what progress has been made to ensure that the new national strategy for palliative and end of life care addresses the needs of children.
Answered by Minto, Jenni - Minister for Public Health and Women's Health
Children’s palliative care is an integral part of the new strategy on palliative care currently being developed. In addition to representatives of palliative care for children and young people on the Strategy Steering Group, we have established a Children and Young People’s Working Group to develop new actions which will contribute to meeting the needs of children and young people and their families.