Motor Neurone Disease

Select Committee

Oral Evidence Feb. 05 2024

Inquiry: Disabled people in the housing sector
Inquiry Status: Closed
Committee: Levelling Up, Housing and Communities Committee (Department: Department for Levelling Up, Housing & Communities)

Found: I am thinking about conditions such as motor neurone disease, which moves very quickly.

Select Committee

DPH0039 - Disabled people in the housing sector

Written Evidence Feb. 02 2024

Found: utilise DFG effectively on a new scheme to support people with rapidly progressing conditions such as Motor

Commons Chamber
Pensions (Special Rules for End of Life) Bill
2nd reading - Fri 02 Feb 2024
Department for Work and Pensions

Mentions:
1: Philip Davies (Con - Shipley) Two groups of patients who struggle with that are motor neurone disease sufferers and cancer patients - Speech Link
2: Jo Churchill (Con - Bury St Edmunds) Its work is incredibly important—its motor neurone disease campaign has been mentioned—but we must also - Speech Link

Commons Chamber
Oral Answers to Questions - Tue 23 Jan 2024
Department of Health and Social Care

Mentions:
1: Janet Daby (Lab - Lewisham East) What steps she is taking to improve healthcare outcomes for patients with sickle cell disease. - Speech Link
2: Andrew Stephenson (Con - Pendle) We are working hard to provide the best possible care to those living with sickle cell disease. - Speech Link
3: Andrew Lewer (Con - Northampton South) cause of ongoing problems affecting access to riluzole, the only licensed drug for the treatment of motor - Speech Link
4: Derek Twigg (Lab - Halton) The rate of premature deaths from cardiovascular disease has now increased in England for three years - Speech Link

Non-Departmental Publication (Transparency)
Medicines and Healthcare products Regulatory Agency

Jan. 17 2024

Found: Ballismus 2 0 Clumsiness 26 0 Dyskinesia 58 0 Extrapyramidal disorder 6 0 Fine motor

Non-Departmental Publication (Transparency)
Medicines and Healthcare products Regulatory Agency

Jan. 17 2024

Found: progression 1 0 Disease recurrence 2 0 Energy increased 1 0 General physical health

Scottish Government Publication (FOI/EIR release)
Tackling Child Poverty and Social Justice Directorate

Jan. 04 2024

Found: MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor

Departmental Publication (News and Communications)
Cabinet Office

Dec. 29 2023

Found: captain Rob Wainwright is also honoured [OBE] for his extraordinary work raising money for research into motor

Departmental Publication (Transparency)
Cabinet Office

Dec. 29 2023

Source Page: New Year Honours List 2024
Document: (webpage)

Found: Neurone Disease Awareness Pontefract West Yorkshire Order of the British Empire Commanders of the Order

Departmental Publication (Transparency)
Cabinet Office

Dec. 29 2023

Found: For services to Social Care (Norwich, Norfolk) Robert Geoffrey BURROW MBE For services to Motor Neurone