Dec. 21 2023
Source Page: Learning Disabilities, Autism and Neurodivergence Bill: consultationFound: Learning Disabilities, Autism and Neurodivergence Bill: consultation
Asked by: Mark Hendrick (Labour (Co-op) - Preston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what plans her Department has to (a) expand and (b) improve autism services in (i) Lancashire and (ii) Preston for (A) adults and (B) children.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including services to support autistic people, in line with relevant National Institute for Health and Care Excellence guidelines.
Lancashire and South Cumbria ICB advises that it is currently reviewing its all-age autism pathway, and is in the initial stages of completing consultations with system partners and stakeholders. The ICB is aiming to complete the review, and proposals for a future pathway for 2025/26, by the end of this calendar year. In addition to this work, the ICB is reviewing the service specifications in place for the keyworker team, specialist autism team, and forensic autism team with the local provider, to ensure that the commissioned offer reflects the current needs of their population.
Nationally, we are taking steps to improve autism services. NHS England published a national framework and operational guidance for autism assessment services on 5 April 2023. These documents are intended to help the National Health Service improve autism assessment services, and improve the experience for adults and children who are going through an autism assessment. They also set out what support should be available before an assessment, and what support should follow a recent diagnosis of autism.
We are currently updating the Autism Act Statutory Guidance to support the NHS and local authorities to deliver improved outcomes for autistic people. This will include setting out what NHS organisations and local authorities must and should be doing to support autistic people.
Asked by: Derek Thomas (Conservative - St Ives)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help reduce waiting times for autism spectrum disorder assessments for children.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
We expect integrated care boards (ICBs) to have due regard to National Institute for Health and Care Excellence (NICE) guidelines on autism, when commissioning services. It is the responsibility of ICBs to make available appropriate provision to meet the health and care needs of their local population, in line with these NICE guidelines.
In 2023 NHS England published a national framework and operational guidance for all age autism diagnostic assessment services. This guidance will help the National Health Service improve all age autism assessment services and improve the experience for people referred to an autism assessment service.
We have invested in improving autism assessment services over recent years, including £2.5 million in 2022/23 to support local areas with improvements in autism assessment pathways. For 2023/2024, £4.2 million of funding is available across England to improve services for autistic children and young people, including autism assessment services.
NHS England publishes quarterly data on how many people are waiting for an autism assessment and for how long. While these are experimental statistics, the data does provide useful information nationally and locally, to support local areas in improving their performance and reducing assessment waiting times.
Each ICB in England is expected to have an Executive Lead for learning disability and autism, supporting the board in planning to meet the needs of its local population of people with a learning disability and autism, including in relation to appropriate autism assessment pathways. NHS England has published guidance on these roles.
Asked by: Caroline Nokes (Conservative - Romsey and Southampton North)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how much her Department spent on autism assessments in each of the last five years; how much funding her Department has allocated to autism assessments in each of the next three years; and what recent assessment her Department has made of the adequacy of that funding in meeting the target waiting time for such an assessment.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
Information on the total spend on autism assessments is not held centrally. NHS England is responsible for funding allocations to integrated care boards (ICBs), which are responsible for commissioning services using these core allocations to meet the needs of their local populations, including autism assessment services. The following table shows the total baseline expenditure in ICBs for learning disability and autism services over the last five years, disaggregated for autism services where possible:
| Learning disability | Autism services | Unseparated learning disability and autism services | Total |
2019/20 | N/A | N/A | £1,809,200,000 | £1,809,200,000 |
2020/21 | N/A | N/A | £2,285,600,000 | £2,285,600,000 |
2021/22 | £85,800,000 | £3,700,000 | £2,268,300,000 | £2,357,900,000 |
2022/23 | £625,800,000 | £27,100,000 | £1,928,800,000 | £2,581,700,000 |
2023/24 | £926,000,000 | £47,100,000 | £1,928,800,000 | £2,904,600,000 |
In addition, specific funding has been allocated to ICBs in 2023/4 and 2024/25 from the Service Development Funding, to improve autism assessment waiting lists and pathways. The following table shows information on the additional national funding allocated to ICBs by NHS England, over each of the last five years, to improve autism assessment waiting lists and pathways:
| Service Development Funding via the NHS Long Term Plan Transformation Funding | Spending Review 2021 via the COVID-19 Recovery Fund | Total funding for autism assessment pathways |
2019/20 | N/A | N/A | N/A |
2020/21 | N/A | N/A | N/A |
2021/22 | £2,500,000 | £14,500,000 | £17,000,000 |
2022/23 | £5,000,000 | N/A | £5,000,000 |
2023/24 | £4,200,000 | N/A | £4,200,000 |
2024/25 | £4,300,000 | N/A | £4,300,000 |
Notes:
The NHS Operational and Planning Guidance 2024/25 asks local systems to improve autism assessment pathways, through implementation of the NHS England autism assessment national framework. Allocations from 2025/26 onwards are subject to future decisions on spending. Further information on the operational and planning guidance and national framework is available respectively at the following links:
https://www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance/
A specific assessment of the adequacy of funding in meeting the National Institute for Health and Care Excellence’s waiting time standard for autism assessments has not been made. However, autism waiting times statistics are published on a quarterly basis. The total number of people with an open referral, where the diagnosis not yet completed, for suspected autism has increased by 47%, from 117,032 in December 2022 to 172,022 in December 2023. In December 2023, it was estimated that only 5.9% of patients whose referrals have been open in the system for at least 13 weeks received their first contact appointment within 13 weeks.
Asked by: Alex Sobel (Labour (Co-op) - Leeds North West)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the adequacy of the number of professionals able to offer pre-school autism assessments in Leeds.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
An assessment of the adequacy of the number of professionals able to offer pre-school autism assessments in Leeds is not currently planned. It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including autism assessment services, in line with relevant clinical guidelines.
The West Yorkshire ICB advises that pre-school autism assessments in Leeds were temporarily stopped due to a shortage of professionals. The service remains suspended as it needs one full time equivalent clinical psychologist. The post has recently been recruited, and plans are in place for the service to reopen by the end of June 2024.
Nationally, we are taking steps to improve autism assessment services. NHS England published a national framework and operational guidance for autism assessment services on 5 April 2023. These documents are intended to help the National Health Service improve autism assessment services, and improve the experience for adults and children who are going through an autism assessment. They also set out what support should be available before an assessment, and what support should follow a recent diagnosis of autism.
Mentions:
1: Baroness Browning (Con - Life peer) know, I have a family interest in autism. - Speech Link
2: Lord Addington (LD - Excepted Hereditary) The noble Lord, Lord Touhig, just put his finger on it but from what I know of autism, that would be - Speech Link
3: Baroness Wheeler (Lab - Life peer) clear about what an autism-friendly environment looks like and should be. - Speech Link
Asked by: Lord Hay of Ballyore (Democratic Unionist Party - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to improve early diagnosis and intervention for children with autism spectrum disorders.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
We recognise timely identification of autism can play an important role in enabling children and young people to get appropriate support, which is crucial in preventing escalation of needs. We expect integrated care boards (ICBs) to have due regard to National Institute for Health and Care Excellence (NICE) guidelines on autism when commissioning services. It is the responsibility of ICBs to make available appropriate provision to meet the health and care needs of their local population in line with these NICE guidelines, including in relation to autism assessment. While we want every area to meet NICE guidance, we recognise that this is not happening everywhere.
On 5 April 2023, NHS England published a national framework and operational guidance for autism assessment services in an online-only format. This guidance will help the National Health Service improve autism assessment services and improve the experience for people referred to an autism assessment service. This includes guidance to local areas on how to manage referrals and the support that should be available whilst people are waiting for an assessment and after.
In 2023/2024, £4.2 million of funding is available across England to improve services for autistic children and young people, including autism assessment services. We are also working in partnership with the Department for Education and NHS England on ‘Partnerships for Inclusion of Neurodiversity in School’ (PINS), with £13 million of funding to test ideas that will improve access to specialist support for neurodiverse children in mainstream primary schools.
Each ICB in England is expected to have an Executive Lead for learning disability and autism, supporting the Board in planning to meet the needs of its local population of people with a learning disability and autistic people, including in relation to appropriate autism assessment pathways. NHS England has published guidance on these roles.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department for Education:
To ask the Secretary of State for Education, if she will make an assessment of the potential impact of average waiting times for autism assessments on educational attainment.
Answered by David Johnston - Parliamentary Under-Secretary (Department for Education)
The government recognises that there can be long waits for autism assessments. The Department of Health and Social Care (DHSC) is taking steps to improve access to assessments for autism. In 2023/24 DHSC allocated £4.2 million to improve services for autistic children and young people including assessments, pre-and post-diagnostic support, and the continuation of the Autism in Schools programme. Additionally, in April 2023, NHS England published a national framework to support the local NHS to commission and deliver autism assessment services for children, young people, and adults.
The Department for Education wants all children and young people to be able to reach their full potential and receive the right support to succeed in their education and as they move into adult life. The SEND Code of Practice is clear that meeting the needs of a child with SEND does not require a diagnostic label or assessment. Instead, the department expects teachers to monitor the progress of all children and young people and put support in place where needed, including arranging diagnostic tests where appropriate.
The 2023 SEND and Alternative Provision Improvement Plan set out the department’s vision to improve mainstream education through setting standards for early and accurate identification of need, and timely access to support to meet those needs. The standards will clarify the types of support that should be ordinarily available in mainstream settings and practitioner standards will be developed to support frontline professionals, including one on autism.
The department’s Universal Services contract brings together SEND-specific continuing professional development and support for the school and further education workforce to improve outcomes for children and young people, including those with autism, through one programme, which aims to reach 70% of schools and colleges in England per year.
The contract offers autism awareness training and resources: over 135,000 professionals have undertaken autism awareness training provided by the Autism Education Trust through the programme's train the trainer model.
Dec. 20 2010
Source Page: Implementing ‘Fulfilling and rewarding lives’: Statutory guidance for local authorities and NHS organisations to support implementation of the autism strategy. 29 p.Found: : Statutory guidance for local authorities and NHS organisations to support implementation of the autism
Asked by: Luke Evans (Conservative - Bosworth)
Question to the Department for Education:
To ask the Secretary of State for Education, What progress her Department has made on implementing the Government's Autism Strategy 2021-2026; and what steps she plans to take to implement the objectives in 2024.
Answered by David Johnston - Parliamentary Under-Secretary (Department for Education)
The department worked closely with the Department of Health and Social Care (DHSC) to develop a refreshed cross-government autism strategy, which was published in July 2021 and includes children and young people. The national strategy sets out the department’s vision to make life fundamentally better for autistic people, their families and carers by 2026.
The department has made significant progress on implementation of the strategy.
Examples of key actions taken have included:
In 2024, DHSC is prioritising updating the Autism Act statutory guidance by working across government, including with the department, to support the NHS and local authorities to deliver improved outcomes for autistic people in line with the national autism strategy. This updated guidance will be subject to public consultation in 2024. Delivery of the cross-government actions set out in the national autism strategy remains a priority for 2024 and progress will continue to be monitored.