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Deposited Papers

Nov. 29 2010

Source Page: Table showing third sector grants for the years 2009/10 to 2010/11. 30 p.
Document: DEP2010-2112.xls (Excel)

Found: working between health social care & 3rd sector organisations and engaging service users & families/carers

Scottish Government Publication (Strategy/plan)
Chief Operating Officer, NHS Scotland Directorate

Aug. 01 2024

Source Page: Progress Report on Scotland's Action Plan for Rare Diseases
Document: Rare Disease Action Plan for Scotland – Progress Report 2024 (PDF)

Found: In January 2021, the four nations of the United Kingdom worked together to publish the UK Rare Diseases

Deposited Papers

Mar. 25 2010

Source Page: Strengthening National Commissioning Consultation – Summary of Responses. 19 p.
Document: DEP2010-0859.pdf (PDF)

Found: PCT Chairs, Directors of Finance, NCG, NSCG, SCGs, Industry, LINksSpecialised Health Care Alliance, Rare

Commons Chamber
Covid-19 Inquiry - Thu 16 Jan 2025
Cabinet Office

Mentions:
1: Pat McFadden (Lab - Wolverhampton South East) During Storm Darragh, because of a very rare red—danger to life—warning, an alert was sent to over three - Speech Link
2: Andrew Lewin (Lab - Welwyn Hatfield) immense value of our key workers: the bus drivers who had to continue to make essential journeys; the carers - Speech Link
3: Pat McFadden (Lab - Wolverhampton South East) One of the risks that we face is posed by mosquito-borne diseases—viruses of various kinds. - Speech Link

Arms Length Body Publication (Service specification)
NHS England

Aug. 15 2024

Source Page: Service specification: specialised dermatology services (adult and children)
Document: Service specification: specialised dermatology services (adult and children) (PDF)

Found: services include services provided by Specialis ed Dermatology Centres for Adults and Children with rare

Arms Length Body Publication (In consultation)
NICE

Apr. 08 2025

Source Page: Rehabilitation for chronic neurological disorders including acquired brain injury
Publication Type: Draft guidance consultation
Document: Evidence review A PDF 2.2 MB (webpage)

Found: carers.

Arms Length Body Publication (In development)
NICE

Jan. 14 2025

Source Page: Iptacopan for treating complement 3 glomerulopathy ID6283
Publication Type: Invitation to participate
Document: NICE's response to comments on the draft scope and provisional stakeholder list PDF 349 KB (webpage)

Found: conducted using the single technology appraisal (STA) route, it should be considered that C3G is a rare

Non-Departmental Publication (Transparency)
Medicines and Healthcare products Regulatory Agency

Jan. 13 2025

Source Page: Patient Involvement Strategy: an assessment of progress
Document: (PDF)

Found: I offer my sincere thanks to members of the public, patients and carers who have given their unstinting

Welsh Parliament Committee
Engagement findings - June 2024

PDF

Inquiry: Supporting people with chronic conditions
Inquiry Status: Closed

Found: Support for carers Carers, particularly unpaid ones, require more recognition and support.

Arms Length Body Publication (Report)
NHS England

May. 06 2025

Source Page: Service specification: specialised hepatobiliary and pancreas (HPB) services – adults
Document: Service specification: specialised hepatobiliary and pancreas services (adults) (PDF)

Found: Whilst approximately 5% is attributable to autoimmune disorders (diseases characterised by abnormal