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Arms Length Body Publication (Published)
NICE

May. 24 2024

Source Page: Olipudase alfa for treating acid sphingomyelinase deficiency (Niemann–Pick disease) type AB and type B
Publication Type: Appeal
Document: Response to scrutiny letter : Response to scrutiny letter (MSWord 108 KB) (webpage)

Found: Your initial view You note that the Committee considered the impact of a patient's death on carers

Arms Length Body Publication (In development)
NICE

May. 24 2024

Source Page: Olipudase alfa for treating Niemann-Pick disease types A and B [ID3913 ]
Publication Type: Appeal
Document: Response to scrutiny letter : Response to scrutiny letter MSWord 108 KB (webpage)

Found: Your initial view You note that the Committee considered the impact of a patient's death on carers

Welsh Parliament Committee
report

PDF

Inquiry: Supporting people with chronic conditions
Inquiry Status: Closed

Found: care .................................................................................... 18 Unpaid carers

Deposited Papers

May. 11 2009

Source Page: Infection control guidance for care homes. 80 p.
Document: DEP2009-1375.pdf (PDF)

Found: Many infectious diseases have the capacity to spread within care establishments, where large numbers

Arms Length Body Publication (Published)
NICE

Oct. 25 2024

Source Page: Omaveloxolone for treating Friedreich's ataxia in people 16 years and over (terminated appraisal)
Publication Type: Invitation to participate
Document: NICE's response to comments on the draft scope and provisional stakeholder list (PDF 313 KB) (webpage)

Found: We have added that it is a rare disease.

Arms Length Body Publication (In development)
NICE

Oct. 25 2024

Source Page: Omaveloxolone for treating Friedreich's ataxia in people 16 years and over ID6423
Publication Type: Invitation to participate
Document: NICE's response to comments on the draft scope and provisional stakeholder list PDF 313 KB (webpage)

Found: We have added that it is a rare disease.

Scottish Parliament Debate - Main Chamber
Women’s Health Plan 2021 to 2024 - Tue 12 Nov 2024

Mentions:
1: Minto, Jenni (SNP - Argyll and Bute) workforce, 89 per cent of our teachers, 80 per cent of our social care workers, 59 per cent of our unpaid carers - Speech Link
2: Duncan-Glancy, Pam (Lab - Glasgow) Heartbreakingly, my constituent later lost her life due to a rare female cancer. - Speech Link
3: Mackay, Gillian (Green - Central Scotland) The rate of carers allowance, access to carer support plans and the ability to get respite to attend - Speech Link
4: Whittle, Brian (Con - South Scotland) I am paraphrasing, but she said that we know less about how best to treat diseases in women. - Speech Link

Deposited Papers

Jul. 16 2008

Source Page: End of life care strategy: promoting high quality care for all adults at the end of life. 174 p.
Document: DEP2008-1942.pdf (PDF)

Found: There are also costs to unpaid carers.

Deposited Papers

Oct. 27 2011

Source Page: British nuclear test veterans health needs audit, Miles and Green Associates. 117 p.
Document: DEP2011-1698.pdf (PDF)

Found: We are also indebted to all the 84 veterans (and their carers or supporters) who made the time and the

Scottish Government Publication (Consultation paper)
Chief Operating Officer, NHS Scotland Directorate

Apr. 23 2025

Source Page: Long term conditions - framework: consultation paper
Document: Long Term Conditions Strategy Consultation (PDF)

Found: Until now, our policy approach to long term conditions has focused primarily on individual diseases