Written Evidence Apr. 24 2024
Inquiry: Preterm BirthFound: I sit on the executive for the Association of Paediatric Palliative Medicine (APPM) as perinatal palliative
Oral Evidence Apr. 23 2024
Committee: Health and Social Care Committee (Department: Department of Health and Social Care)Found: It has also managed to increase the number of people who are registered for palliative care on the
Apr. 22 2024
Source Page: Quality Prescribing Strategy for Respiratory A Guide for Improvement 2024-2027Found: children on medium / high-dose ICS are under the care of a specialist paediatrician 10 COPD • ICS
Apr. 22 2024
Source Page: I. List of ministerial responsibilities. 88p. II. List of non-ministerial departments and executive agencies. 22p. III. Letter dated 19/04/2024 from Alex Burghart MP to the Public Administration and Constitutional Affairs Committee regarding documents for deposit, and copying them for deposit in the House libraries. 1p.Found: - The Rt Hon Alister Jack MP Secretary of State for Wales - The Rt Hon David TC Davies MP Ministers who
Mentions:
1: Sally-Ann Hart (Con - Hastings and Rye) Hastings and Rye, and Demelza House, which offers palliative care for children—largely through outreach - Speech Link
2: Barry Gardiner (Lab - Brent North) I wish to highlight the importance of palliative care for children and the amazing support that some - Speech Link
3: Steve Double (Con - St Austell and Newquay) It supports children and young people up to the age of 21, including the youngest babies who need its - Speech Link
4: Patrick Grady (SNP - Glasgow North) That means an ever-greater need for palliative care. - Speech Link
5: Andrew Gwynne (Lab - Denton and Reddish) Care Act 2022 to commission palliative care services in keeping with local need, and we need to ensure - Speech Link
Asked by: Bell Ribeiro-Addy (Labour - Streatham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that seriously ill children and their families can access information on how to access emotional and psychological support.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
The clinical team responsible for a seriously ill child’s physical healthcare should discuss and review their emotional and psychological status regularly with them, or their family, and support them with access to information and services for their mental health if needed. Commissioners are encouraged to ensure local pathways include assessment and ongoing support of patients’ mental and psychological wellbeing and cognitive status.
The Health and Care Act 2022 placed a legal duty on integrated care boards (ICBs) to commission palliative and end of life care services, which meet the needs of their whole population. To support ICBs in this, NHS England has published statutory guidance, along with service specifications for children and young people, which make reference to including a holistic approach to care. This includes links to social prescribing, assessing, and addressing the needs of children, young people and families, and clear referral pathways to other services such as children and young people’s mental health services. The statutory guidance and the service specifications for children and young people are available respectively at the following links:
Patients’ family members who feel they need emotional and psychological support should speak to their general practice, or can self-refer to NHS Talking Therapies online. Details are available on the NHS website.
Mentions:
1: Lord Scriven (LD - Life peer) This needs significant change, for those who need significant primary care needs due to comorbidities - Speech Link
2: Baroness Ramsey of Wall Heath (Lab - Life peer) They were Lancastrians, children of men who worked down the pit, from a long line of proud trade unionists - Speech Link
3: Baroness Finlay of Llandaff (XB - Life peer) that patients have access, yet it is cost effective to involve palliative care services early. - Speech Link
4: Baroness Hollins (XB - Life peer) I suggest that, as well as maternity care, we should have palliative care added to the 2024 pamphlet.Central - Speech Link
Apr. 17 2024
Source Page: Disability Assistance for Older People (Scotland) Regulations 2024: Equality Impact AssessmentFound: This is because, when children are in hospital th ey continue to require care and support, usually from
Apr. 17 2024
Source Page: Disability Assistance for Older People (Scotland) Regulations 2024: Equality Impact AssessmentFound: This is because, when children are in hospital they continue to require care and support, usually from
Apr. 15 2024
Source Page: Supporting safer visiting in care homes during infectious illness outbreaksFound: Supporting safer visiting in care homes during infectious illness outbreaks