To match an exact phrase, use quotation marks around the search term. eg. "Parliamentary Estate". Use "OR" or "AND" as link words to form more complex queries.


View sample alert

Keep yourself up-to-date with the latest developments by exploring our subscription options to receive notifications direct to your inbox

Non-Departmental Publication (Transparency)
Medicines and Healthcare products Regulatory Agency

Mar. 14 2024

Source Page: Freedom of Information responses from the MHRA - week commencing 18 December 2023
Document: FOI 23/905 - attachment 7 (PDF)

Found: 19 vaccine 21 days apart after 2 months of follow -up included pain at the injection site (84.1%), fatigue


Scottish Parliament Debate - Main Chamber
International Long Covid Awareness Day - Wed 13 Mar 2024

Mentions:
1: Leonard, Richard (Lab - Central Scotland) If you’re thinking about going out, you have to think about getting back.”Many in the group now have chronic - Speech Link
2: Lumsden, Douglas (Con - North East Scotland) It causes fatigue and breathlessness, among other symptoms. - Speech Link
3: MacGregor, Fulton (SNP - Coatbridge and Chryston) For example, Jonathan has postural orthostatic tachycardia syndrome—POTS—but they have had to fight for - Speech Link


Written Question
Chronic Fatigue Syndrome: Research
Tuesday 12th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to support research into (a) understanding, (b) treating and (c) curing Myalgic Encephalomyelitis.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.

We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.


Written Question
Chronic Illnesses: Research
Tuesday 12th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, how the Government plans to allocate funding for research into (a) myalgic encephalomyelitis and (b) other post-viral diseases.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.

We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.


Written Question
Chronic Fatigue Syndrome: Research
Tuesday 12th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, what research the Medical Research Council is funding on the (a) causes and (b) treatment of Myalgic Encephalomyelitis.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

Medical Research Council (MRC) has invested in research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for many years, awarding £6.6m in this area since 2012. This includes through DecodeME, the world’s largest ME/CSF study, via strategic co-funding with the National Institute of Health and Care Research, which aims to find genetic factors to better understand ME/CFS disease pathways and unlock future treatment pathways.

We continue to encourage high-quality proposals across our funding opportunities, maintaining an open highlight notice to encourage ME/CFS research. MRC also co-funded the ME/CFS Priority Setting Partnership to identify research priorities for ME/CFS, led by people with ME/CFS, their carers and clinicians, and facilitated by Action for M.E.


Westminster Hall
Prescription Charges: Long-term Health Conditions - Mon 11 Mar 2024
Department of Health and Social Care

Mentions:
1: Christina Rees (LAB - Neath) charges, including MS, endometriosis, inflammatory bowel disease, postural orthostatic tachycardia syndrome - Speech Link
2: Preet Kaur Gill (LAB - Birmingham, Edgbaston) patients.Whether it is the debilitating pain faced by many people with endometriosis, Ehlers-Danlos syndrome - Speech Link


Written Question
Chronic Fatigue Syndrome: Long Covid
Friday 8th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what research the National Institute for Health and Care Research is undertaking on the potential link between Myalgic Encephalomyelitis and long covid.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Government has invested more than £50 million into 22 research projects for long COVID, through the National Institute for Health and Care Research (NIHR) and UK Research and Innovation.

In the last five years, the NIHR has allocated approximately £3.44 million to support nine research projects on myalgic encephalomyelitis (ME) and chronic fatigue syndrome. The NIHR is also co-funding, with the Medical Research Council, a £3.2 million study called DecodeME, which is the world’s largest genetic study of the disease.

The Department commissions research through the NIHR. It is not currently specifically funding research on potential links between ME and long COVID, but it welcomes funding applications for research into any aspect of human health.


Written Question
Chronic Fatigue Syndrome: Research
Friday 8th March 2024

Asked by: Sharon Hodgson (Labour - Washington and Sunderland West)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps her Department is taking to fund research to (a) tackle the causes of and (b) treat Myalgic Encephalomyelitis.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Department commissions research through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including on the causes and treatment of myalgic encephalomyelitis (ME).

In the last five years, the NIHR has allocated approximately £3.44 million to support nine research projects on ME and chronic fatigue syndrome. The NIHR is also co-funding, with the Medical Research Council, a £3.2 million study called DecodeME, which is the world’s largest genetic study of the disease.


Scottish Government Publication (Impact assessment)
Mental Health Directorate

Mar. 06 2024

Source Page: Scotland's Mental Health and Wellbeing Delivery Plan: Equality Impact Assessment
Document: Scotland’s Mental Health and Wellbeing Delivery Plan Equality Impact Assessment (PDF)

Found: childhood experiences, such as experiences of domestic abuse and sexual assault, homelessness or having a chronic


Departmental Publication (News and Communications)
Department of Health and Social Care

Feb. 14 2024

Source Page: Funding for game-changing tech which could destroy cancers and predict disease
Document: Funding for game-changing tech which could destroy cancers and predict disease (webpage)

Found: Lenus Health Ltd. is using artificial intelligence to predict patients at risk of hospitalisation for Chronic