Asked by: Gregory Campbell (Democratic Unionist Party - East Londonderry)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether Northern Ireland will receive funding through the Dame Barbara Windsor Dementia mission; and what her planned timetable for delivery of the mission is.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Spending and delivery plans for the Dame Barbara Windsor Dementia Mission are currently in development. The Dementia Mission Co-Chairs Hilary Evans and Professor Nadeem Sarwar have, and continue to, engage extensively across the sector to understand and develop the missions’ key aims, ensuring it addresses the challenges the sector faces and that patient voices are heard. This has informed the missions focus on three key pillars: biomarkers and experimental medicine; clinical trials infrastructure and innovation; and end-to-end implementation.
In March 2024, the Government hosted a roundtable and reception where charities, academics, investors, business leaders, and people with lived experience came together to further accelerate efforts to tackle this devastating illness, and to thank all those involved in supporting dementia research, including charities across the United Kingdom. This event made a series announcements, including: awarding a share of the £6 million of funding to 10 projects through Innovate UK’s Small Business Research Initiative (SBRI) dementia biomarker tools competition; the appointment of Scott Mitchell as the People’s Champion for the Dementia Mission; the appointment of Dr Ruth McKernan CBE as Chair of the Scientific Advisory Board for the Neurodegeneration Initiative, which will be a public-private partnership delivering the mission's objectives around biomarkers, boosting the number and speed of clinical trials in dementia and neurodegeneration, and working with regulatory bodies around the implementation of new treatments; and the appointment of the Medicines Discovery Catapult as the delivery partner for the establishment of the Neurodegeneration Initiative. The Dame Barbara Windsor Dementia Mission continues to develop its deliverables, and will announce further plans for their delivery in due course.
Asked by: Ian Byrne (Labour - Liverpool, West Derby)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether her Department has plans to invest in diagnostic infrastructure for people with dementia.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
We committed in 2019 to double funding for dementia research to £160 million per year by 2024/25. This will span all areas of research from causes and prevention to treatment and care, delivering evidence to help prevent, diagnose and treat dementia, enabling the best possible care and quality of life for people with dementia.
NHS England is also working with partner agencies to support and inform further research into other diagnostic modalities, including blood-based biomarker and digital tests, which will help improve identification and management of Alzheimer’s disease.
The National Health Service is a world leader in rolling out innovative treatments, including personalised cancer and life-saving gene therapies, and has established a dedicated programme team to prepare the NHS for the potential arrival of new Alzheimer’s treatments that are approved by the Medicines and Healthcare products Regulatory Agency and determined to be clinically and cost-effective by the National Institute for Health and Care Excellence.
The team at NHS England are assessing the additional scanning, treating and monitoring capacity which would be required across the country. This includes securing additional diagnostic capacity including magnetic resonance imaging, lumbar puncture, and positron emission tomography and computed tomography.
Asked by: Theresa Villiers (Conservative - Chipping Barnet)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what discussions she has had with NHS England about improving training for NHS workers on caring for people with dementia.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
We want all relevant staff to have received appropriate training to provide high quality care to people with dementia, whether in hospital or in the community.
Individual employers are responsible for ensuring their staff are trained and competent to carry out their role, and for investing in the future of their staff through providing continuing professional development (CPD) funding.
To supplement local employer investment for CPD, the NHS Long Term Workforce Plan, published on 30 June 2023, sets out NHS England’s commitment to continue national CPD funding for nurses and allied health professionals.
There are a variety of resources available on the NHS England E-learning for Health platform, including a programme on dementia care, designed to enhance the training and education of the health and social care workforce.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to increase research on the (a) prevention and (b) treatment of dementia.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Government is strongly committed to supporting research into dementia. In 2019, we committed to double funding for dementia research to £160 million per year by 2024/25. This will span all areas of research, including prevention and treatment of dementia. The Department funds dementia research via the National Institute for Health and Care Research (NIHR).
The Department, via the NIHR, is taking several steps to increase research on the prevention and treatment of dementia, such as commissioning a Dementia and Neurodegeneration Policy Research Unit (PRU) worth £6 million to further boost evidence for policymaking. The PRU’s remit will cover research into policy interventions intended to reduce or prevent dementia and other neurodegenerative conditions. Alongside the Dame Barbara Windsor Dementia Mission, which is backed by £95 million worth of funding, NIHR is investing in the Dementia Translational Research Collaboration which seeks to significantly expand the UK’s early phase clinical trial capabilities in dementia. This seeks to support the Dementia Mission’s aim to speed up the development of new treatments for dementia.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to support research into dementia care.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Government is strongly committed to supporting research into dementia. In 2019, we committed to double funding for dementia research to £160 million per year by 2024/25. This will span all areas of research, including dementia care to enable the best possible care and quality of life for people with dementia. The Department funds dementia research via the National Institute for Health & Care Research (NIHR).
The Department, via the NIHR, is taking steps to increase research on dementia care, such as commissioning a Dementia and Neurodegeneration Policy Research Unit (PRU) worth £6 million to further boost evidence for policymaking. The PRU’s remit will cover research seeking to further understanding around how to improve post-diagnostic care and support offered to people living with dementia and other neurodegenerative conditions, and their carers. The NIHR is investing £9 million to continue funding the Three Schools Dementia Programme which links public health, primary care and social care via our NIHR research schools, namely Schools for Social Care, Public Health and Primary Care Research. The Programme seeks to fund research to address key evidence gaps, including around how we can most effectively support and care for people living with dementia. For example, the Programme has supported several projects relating to dementia care such as the Pall-Dem care study which explores the integration of palliative care into dementia care to improve outcomes and experiences of people living with advanced dementia and their family caregivers.
Asked by: Elliot Colburn (Conservative - Carshalton and Wallington)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to help improve the knowledge of GPs on the symptoms of young onset dementia.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
We want all general practitioners to have received appropriate training, in order to provide high quality care to people with dementia, regardless of the person’s age or individual needs.
The standard of training for health care professionals is the responsibility of the health care independent statutory regulatory bodies who set the outcome standards expected at undergraduate level and approve courses and Higher Education Institutions to write and teach the curricula content that enables their students to meet the regulators outcome standards.
Whilst not all curricula may necessarily highlight a specific condition, they all nevertheless emphasize the skills and approaches a Health Care Practitioner must develop in order to ensure accurate and timely diagnoses and treatment plans for their patients, including for dementia.
The NHS Long Term Workforce Plan, published on 30 June 2023, sets out NHS England’s commitment to improving training for workers caring for people with dementia.
The Long Term plan also sets out the plan for there to be more healthcare staff working in and with GP practices, which will mean people will be able to get an appointment with the right professional depending on their needs. This means that those with dementia will be able to access the most appropriate support more quickly.
The plan will include more GPs, nurses and 20,000 additional pharmacists, physiotherapists, paramedics, physician associates and social prescribing link. These bigger teams of staff will work with other local services to make sure people, including those with dementia, get better access to a wider range of support for their needs.
We are seeing more people from younger cohorts with multimorbidity. Multimorbidity challenges the specialised approach to medicine, which has improved our ability to successfully treat single diseases. The Long Term Plan also addresses the increased need for medical and other clinical professionals with generalist and core skills to manage and support patients with seemingly unrelated diseases.
There are also a variety of resources available on the NHS England E-learning for Health platform, including a programme on dementia care, designed to enhance the training and education of the health and social care workforce.
Asked by: Gregory Campbell (Democratic Unionist Party - East Londonderry)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what changes have been made to the provision of services for people with dementia in the period since the publication of the guidance by the NHS and the Alzheimer’s Society entitled The dementia guide: Living well after your diagnosis in November 2020.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Since the publication of the guidance by the National Health Service and the Alzheimer’s Society in November 2020, NHS England is funding an evidence-based improvement project for two trusts in each region, encompassing 14 sites in total, to pilot the Diagnosing Advanced Dementia Mandate tool to improve diagnosis of dementia in care homes and to create an alternative pathway for diagnosing dementia. NHS England is also stepping up and accelerating preparation for the rollout of any potential new treatments, including the establishment of a dedicated programme team for early Alzheimer’s treatments.
NHS England's RightCare team is refreshing the RightCare Dementia Scenario which works through the dementia well pathway journey from diagnosing well through to dying well, detailing optimal and sub optimal approaches, with associated costings for each. The RightCare team is also developing a ‘dementia model pathway’.
Following publication of the Strategic Framework on 14 August 2023, we are continuing to develop the Major Conditions Strategy, informed by the Call for Evidence and ongoing engagement. This includes dementia as one of the six major conditions. Our intention is to publish the strategy in early 2024.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what progress her Department has made on the dementia moonshot project.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Government is strongly committed to supporting research into dementia. In 2019, we committed to double funding for dementia research. We will double funding for dementia research to £160 million per year by 2024/25. The Government spent over £413 million on dementia research from 2017/18 to 2021/22.
On 14 August 2023, the Government launched the Dame Barbara Windsor Dementia Mission, along with £95 million of funding. The Mission is part of the commitment to double dementia research funding. The Dementia Mission aims to speed up the development of new treatments. On 20 March 2023, we announced the appointment of two co-chairs of the mission, Hilary Evans of Alzheimer’s Research UK and Nadeem Sarwar of Novo Nordisk. The Mission Chairs have developed a roadmap that sets out their ambition to work with industry and other initiatives in the United Kingdom by developing innovations in biomarkers, data and digital sciences, and increasing the number and speed of clinical trials in dementia. In the Autumn Statement the Chancellor announced up to £20 million of funding to launch a Clinical Trial Delivery Accelerator, focused on dementia. This funding contributes to meeting the commitment to double dementia research spend to £160 million per year by 2024/25.
Asked by: Julian Sturdy (Conservative - York Outer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help support people with early onset dementia.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
NHS England is committed to delivering high quality care and support for every person with dementia at every age, and central to this is the provision of personalised care. Provision of dementia health care services is the responsibility of local integrated care boards (ICBs). NHS England would expect ICBs to commission services based on local population needs.
The Dementia Well Pathway includes diagnosing well, living well, supporting well, and dying well, and highlights that services need to be integrated, commissioned, monitored, and aligned with the National Institute for Health and Care Excellence’s (NICE) standards for each component of the pathway. It makes it clear that individual needs, wishes and preferences should be taken into account in planning and providing care.
In January 2023 the Government announced that it will publish a Major Conditions Strategy early 2024. By bringing dementia and other conditions strategies together, we will be able to focus on where there are similarities in approach and ensure care is better centred around the patient.
Asked by: Caroline Lucas (Green Party - Brighton, Pavilion)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, with reference to her Department's Press Release entitled, Prime Minister launches Dame Barbara Windsor Dementia Mission, published 14 August 2023, what is her expected timeline to meet the Government's commitment to double dementia research funding in 2024.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The Government is strongly committed to supporting research into dementia. In our 2019 manifesto we committed to double funding for dementia research. We will double funding for dementia research to £160 million per year by 2024/25.
Government responsibility for delivering dementia research is shared between the Department of Health and Social Care, with research delivered by the National Institute for Health and Care Research, and the Department for Science, Innovation and Technology, with research delivered via UK Research and Innovation. The Government spent over £413 million on dementia research from 2017/18 to 2021/22. Spend for dementia research is calculated retrospectively and is usually finalised around eight months after the end of the financial year, therefore 2021/22 is the most recent year we have full data for.