Mentions:
1: Todd, Maree (SNP - Caithness, Sutherland and Ross) I am one of many people in Scotland who have haemochromatosis—it is a common disorder—a genetic disease - Speech Link
Asked by: Justin Madders (Labour - Ellesmere Port and Neston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether (a) he and (b) officials in his Department have had discussions with relevant stakeholders on the potential merits of allowing flexibility on blood donation rules to permit more frequent donations when there is a clinical need.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
Departmental officials liaise regularly with NHS Blood and Transplant and with the Advisory Committee on the Safety of Blood, Tissues and Organs on a range of topics, including emergency procedures to facilitate increasing blood stocks when necessary.
The Blood Safety and Quality Regulations 2005 include guidance on blood donation frequency with set donor intervals at 12 weeks for men and 16 weeks for women. Intervals are required as too frequent donations can result in serious side effects for donors. The Donor Selection Guidelines provide guidance for clinical exceptions where identified donors, such as individuals with genetic haemochromatosis, can donate blood up to every six weeks for their clinical benefit or need.
Sep. 14 2021
Source Page: Personal Independence Payment statistics to July 2021Found: 2240 690 700 50 410 5070 21.24565972222222 48.52430555555556 15.01736111111111 15.21267361111111 Genetic
Jun. 15 2021
Source Page: Personal Independence Payment statistics to April 2021Found: 2010 680 700 50 330 4710 21.714021714021715 46.5003465003465 15.73111573111573 16.054516054516053 Genetic
Mar. 16 2021
Source Page: Personal Independence Payment statistics to January 2021Found: 1710 670 680 50 320 4320 22.447428426653154 43.19736508740816 17.050924752976943 17.304281732961744 Genetic
Asked by: John Hayes (Conservative - South Holland and The Deepings)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to incorporate blood tests for serum ferritin and transferrin saturation into the NHS Health Check, as a cost-effective means of identifying people at risk of iron overload from genetic haemochromatosis earlier in life.
Answered by Jo Churchill - Minister of State (Department for Work and Pensions)
Public Health England has no current plans to do so.
Asked by: John Hayes (Conservative - South Holland and The Deepings)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what is the timetable for publication of the conclusions of the UK National Screening Committee’s review of screening for genetic haemochromatosis in adults.
Answered by Jo Churchill - Minister of State (Department for Work and Pensions)
The United Kingdom National Screening Committee (UK NSC) will be reviewing the evidence alongside comments received from the public consultation on screening for hereditary hemochromatosis at its meeting on 5 March 2021. The UK NSC’s recommendation will then be shared with the Department for consideration.
Asked by: John Hayes (Conservative - South Holland and The Deepings)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of the UK National Screening Committee’s review of screening for genetic haemochromatosis in adults including an evaluation of recent medical research published since the committee last considered the matter in 2015.
Answered by Jo Churchill - Minister of State (Department for Work and Pensions)
The United Kingdom National Screening Committee (UK NSC) will be reviewing the evidence alongside comments received from the public consultation on screening for hereditary hemochromatosis at its meeting on 5 March 2021. The UK NSC’s recommendation will then be shared with the Department for consideration.
Dec. 15 2020
Source Page: Personal Independence Payment: April 2013 to October 2020Found: 1430 640 670 50 250 3850 22.801578354002256 40.304396843292 18.122886133032694 18.771138669673054 Genetic
Asked by: John Hayes (Conservative - South Holland and The Deepings)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve early diagnosis for those suffering from haemochromatosis.
Answered by Edward Argar - Minister of State (Ministry of Justice)
Steps to improve diagnosis of rare conditions, including genetic haemochromatosis, are being taken through the implementation of the UK Strategy for Rare Diseases, available at the following link:
https://www.gov.uk/government/publications/rare-diseases-strategy
In October 2019, the national conversation on rare diseases survey was launched to identify the major challenges faced by those living and working with rare diseases. We received almost 6,300 responses which, alongside the lessons learned from the experiences of rare disease patients during the COVID-19 pandemic, will be used to shape the post-2020 UK Rare Diseases Framework which will replace the Strategy.
The Genomic Medicine Service is supported by the National Genomic Test Directory which specifies the genomic tests that are commissioned by the National Health Service in England. Genetic haemochromatosis is included in the Test Directory.