Asked by: Simon Lightwood (Labour (Co-op) - Wakefield)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the adequacy of numbers of Parkinson's specialist staff in (a) West Yorkshire integrated care board area and (b) England.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
As of June 2023, there were 5.8 full-time equivalent (FTE) Parkinson’s Consultants working in the West Yorkshire Association of Acute Trusts. There were 10.49 FTE Parkinson’s Clinical Nurse Specialists. This only includes those working in acute hospital services.
While the Department does not hold data specifically on the number of Parkinson’s specialist staff in England, we do hold data on the numbers working in the wider speciality of neurology. As of January 2024, there are over 1,800 FTE doctors working in the specialty of neurology in National Health Service trusts and other organisations in England. This includes over 900 FTE consultant neurologists. In 2023, the fill rate for recruitment into the specialty of neurology in England was 94%.
May. 16 2024
Source Page: Experience of claiming and receiving Carer’s AllowanceFound: “She gets carers coming to the house for personal care but she has Parkinson's so she needs to be fed
May. 15 2024
Source Page: Arts & Heritage Minister Lord Parkinson's speech to the Arts and Humanities Research CouncilFound: Arts & Heritage Minister Lord Parkinson's speech to the Arts and Humanities Research Council
Asked by: Caroline Lucas (Green Party - Brighton, Pavilion)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what funding the (a) National Institute for Health and Care Research and (b) UK Research Institute has provided for Parkinson's research in each of the last five years.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Government’s responsibility for delivering Parkinson’s disease research is shared between the Department of Health and Social Care, with research delivered by the National Institute for Health and Care Research (NIHR), and the Department for Science, Innovation and Technology (DSIT), with research delivered via UK Research and Innovation (UKRI). Between the financial years 2019/20 and 2023/24, the Department of Health and Social Care, via the NIHR, funded Parkinson’s research projects to a total value of £12.9 million of programme spend.
As well as funding research itself, the NIHR invests significantly in research expertise and capacity, specialist facilities, support services, and collaborations, to support and deliver research in England. Collectively this forms the NIHR’s infrastructure. The NIHR’s infrastructure enables the country’s leading experts to develop and deliver high-quality translational, clinical, and applied research into Parkinson’s disease. For example, in the financial year 2022/23, the NIHR Clinical Research Network supported 114 studies related to Parkinson’s disease. UKRI spent over £66 million on research into Parkinson’s disease between the financial years 2019/20 and 2023/24. The following table shows the breakdown of spend on Parkinson's research for the NIHR and UKRI, each year from 2019/20 to 2023/24:
| NIHR programmes | UKRI | Total |
2019/20 | £2,470,000 | £18,200,000 | £20,680,000 |
2020/21 | £2,180,000 | £11,970,000 | £14,160,000 |
2021/22 | £2,620,000 | £13,010,000 | £15,640,000 |
2022/23 | £2,570,000 | £11,890,000 | £14,470,000 |
2023/24 | £3,030,000 | £11,060,000 | £14,090,000 |
Total | £12,900,000 | £66,150,000 | £79,060,000 |
Asked by: Alan Brown (Scottish National Party - Kilmarnock and Loudoun)
Question to the Department for Work and Pensions:
To ask the Secretary of State for Work and Pensions, pursuant to the Answer of 29 April 2024 to Question 23517 on Work Capability Assessment: Parkinson's Disease, when she (a) last met and (b) is next scheduled to meet representatives from Parkinson's UK.
Answered by Mims Davies - Minister of State (Department for Work and Pensions)
Ongoing engagement continues with a range of charities and clinical experts specialising in disability and health conditions as well as representatives from national organisations to understand the experiences of people with Parkinson’s going through the Work Capability Assessment.
Details of ministerial meetings are published quarterly on gov.uk in line with transparency data releases and can be found here.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of implementing a Parkinson's Passport that would give automatic access to clearly defined benefits.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department is currently exploring the feasibility of this, and the other asks within the charter.
The Department for Work and Pensions offers Personal Independence Payments (PIP) to individuals with health conditions or disabilities. However, there is currently no automatic entitlement to PIP in relation to specific health conditions, except in cases of people nearing the end of life, specifically the last year of life. The Government understands that there are people with severe and lifelong health conditions which will not improve. Guidance ensures that those on the highest level of support, whose needs will not improve, receive an ongoing award with a light-touch review at the 10-year point.
The primary focus of the Department for Transport’s Blue Badge scheme is to help those with the greatest mobility needs. Eligibility is not based on the type of disability. There are several automatic qualifying criteria for a Blue Badge, such as being in receipt of PIP because you cannot walk more than 50 metres. People who do not automatically qualify for a Blue Badge may still be eligible for a badge through further assessment.
With regards to free prescriptions, approximately 89% of prescription items are currently dispensed free of charge, and there is a wide range of exemptions from prescription charges already in place. People with Parkinson’s disease who are 60 years old or over are entitled to free prescriptions. For those that have to pay for prescriptions, the cost can be capped by purchasing a pre-payment certificate, which can be paid for in instalments. Additionally, the NHS Low Income Scheme can provide help with health costs on an income-related basis.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what estimate she has made of the amount of funding allocated to the research of Parkinson's disease over the next five years.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Research (NIHR) welcomes funding applications for research into any aspect of human health, including Parkinson’s disease. Future funding allocated to research into Parkinson’s disease, and into other aspects of human health, will depend on the volume and quality of proposals received from the research community, with the level of spending outlined in the end of year accounting.
The Department, through the NIHR, invested £12.2 million into Parkinson’s research over five financial years, ending in 2022/23. The NIHR has supported a broad portfolio of Parkinson’s research and, in the last year alone, supported the conduct of 114 studies relating to Parkinson’s disease through the NIHR Clinical Research Network. For example, the NIHR is investing £3 million in the PD MED clinical trial, which investigates the efficacy of different drugs in the treatment of Parkinson’s disease. The usual practice of the NIHR is not to ring-fence funds for expenditure on particular topics.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether advice given to a newly diagnosed Parkinson's Disease patient contains (a) contact details for a local Parkinson's nurse, (b) a date for a first appointment and (c) information on local support groups.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence’s (NICE) guidelines on Parkinson’s disease in adults include recommendations for communication with people with Parkinson's disease, and their carers. The guidelines do not specify a particular leaflet, such as the one from Parkinson’s UK, but they do recommend that: communication with people with Parkinson's disease should aim towards empowering them to participate in judgements and choices about their own care; discussions should aim to achieve a balance between providing honest, realistic information about the condition, and promoting a feeling of optimism; because people with Parkinson's disease may develop impaired cognitive ability, and communication problems, they should be provided with both oral and written communication throughout the course of the disease, which should be individually tailored and reinforced as necessary, in a consistent manner; family members and carers should be advised about their right to a carer assessment, assessment for respite care, and other support; people with Parkinson's disease should have a comprehensive care plan agreed between the person, their family members and carers as appropriate, and specialist and secondary healthcare providers; and people with Parkinson's disease should have an accessible point of contact with specialist services, such as a Parkinson's disease nurse specialist.
The exact information that is provided to a newly diagnosed Parkinson’s patient will vary, but would usually include referral to a Parkinson’s nurse. Information about local support groups would usually be provided by the Parkinson’s nurse. The Department will explore whether anything further can be done to improve the provision of post-diagnosis patient information for those with Parkinson’s disease.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what guidance is provided to clinicians on advising patients recently diagnosed with Parkinson's Disease; and whether that guidance recommends that patients be given a leaflet from Parkinson's UK.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The National Institute for Health and Care Excellence’s (NICE) guidelines on Parkinson’s disease in adults include recommendations for communication with people with Parkinson's disease, and their carers. The guidelines do not specify a particular leaflet, such as the one from Parkinson’s UK, but they do recommend that: communication with people with Parkinson's disease should aim towards empowering them to participate in judgements and choices about their own care; discussions should aim to achieve a balance between providing honest, realistic information about the condition, and promoting a feeling of optimism; because people with Parkinson's disease may develop impaired cognitive ability, and communication problems, they should be provided with both oral and written communication throughout the course of the disease, which should be individually tailored and reinforced as necessary, in a consistent manner; family members and carers should be advised about their right to a carer assessment, assessment for respite care, and other support; people with Parkinson's disease should have a comprehensive care plan agreed between the person, their family members and carers as appropriate, and specialist and secondary healthcare providers; and people with Parkinson's disease should have an accessible point of contact with specialist services, such as a Parkinson's disease nurse specialist.
The exact information that is provided to a newly diagnosed Parkinson’s patient will vary, but would usually include referral to a Parkinson’s nurse. Information about local support groups would usually be provided by the Parkinson’s nurse. The Department will explore whether anything further can be done to improve the provision of post-diagnosis patient information for those with Parkinson’s disease.
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will publish the waiting times from the point of a GP referral for a diagnosis of a patient with suspected Parkinson's Disease to the date of an appointment with a neurologist or geriatrician, by Integrated Care Board for the latest period for which that data is available.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Information is not held centrally on the waiting times from the point of general practice (GP) referral for a diagnosis of suspected Parkinson’s disease, to the date of appointment with a neurologist or geriatrician, by integrated care board.
Similarly, information is not held centrally on how many people with Parkinson’s disease are on waiting lists for a referral for diagnosis from a neurologist or geriatrician in each integrated care board area.
GP referrals are not classified by suspected diagnosis, so data is not available in the form requested. Not all patients referred to a neurologist or geriatrician with suspected Parkinson’s disease will go on to receive a diagnosis of Parkinson’s disease, while some receive other diagnoses.