Asked by: Maya Ellis (Labour - Ribble Valley)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what data collection exists on the outcomes of people with a dementia diagnosis in care home settings.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
NHS England collects and publishes data about people with dementia registered at each general practice (GP) in England. Dementia diagnosis counts are published with ethnicity and age breakdowns, prescriptions of anti-psychotic medications, and record of receiving a care plan review. Diagnosis rates are calculated by comparing recorded diagnoses to estimated dementia prevalence.
From April 2023 data has also been collected on counts of patients on the GP’s dementia register which are aggregated into the following residential types:
- residential care home;
- nursing home;
- private residence;
- no permanent address;
- other residential type; and
- inconclusive residential type.
Asked by: Neil Duncan-Jordan (Labour - Poole)
Question to the HM Treasury:
To ask the Chancellor of the Exchequer, whether she plans to extend VAT relief to community-based services like The Filo Project, that provide socialising activities and support for those with dementia.
Answered by Dan Tomlinson - Exchequer Secretary (HM Treasury)
Supplies of welfare services, including the provision of care for people with permanent disabilities and dementia, are exempt from VAT if they are supplied by eligible bodies, such as public bodies or charities.
Because community interest companies (CICs) are not charities in law, they must meet the criteria of being state-regulated in order to provide VAT-exempt care services. This is to ensure that the VAT relief is carefully targeted at private providers offering safe and high-quality welfare services.
The Government recognises that there are private organisations that bring value to the care sector without being regulated, but extending the VAT relief to include these would have to be carefully balanced against the risks that it poses
More generally, VAT is a broad-based tax on consumption, and the 20 per cent standard rate applies to most goods and services. VAT is the UK’s second largest tax, forecast to raise £180 billion in 2025/26. Exceptions to the standard rate have always been limited and balanced against affordability considerations.
Asked by: Martin Wrigley (Liberal Democrat - Newton Abbot)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, when the new dementia framework will be published.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
The first ever Modern Service framework for Frailty and Dementia will be informed by phase one of the independent commission into adult social care. The commission is underway and phase one will report this year.
We intend to engage with a range of partners over the coming months to enable us to build a framework which is both ambitious and practical, to ensure we can improve system performance for people with dementia both now and in the future. We are working to develop the content as soon as possible and we will keep partners updated on progress and timings as this work unfolds.
Asked by: Chris Hinchliff (Labour - North East Hertfordshire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what his Department's timetable is for finalising the second set of Modern Service Frameworks; and what assessment he has made of the potential merits of including respiratory conditions.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
Modern service frameworks (MSFs) will define an aspirational, long-term outcome goal for a major condition and then identify the best evidenced interventions and the support for delivery. Early priorities will include cardiovascular disease, severe mental illness, and the first ever service framework for frailty and dementia.
The Government will consider other long-term conditions for future waves of MSFs, including respiratory conditions. The criteria for determining other conditions for future MSFs will be based on where there is potential for rapid and significant improvements in the quality of care and productivity. After the initial wave of MSFs is complete, the National Quality Board will determine the conditions to prioritise for new MSFs as part of its work programme.
Asked by: Liz Jarvis (Liberal Democrat - Eastleigh)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of expanding genetic for (a) the APOE4 gene and (b) other dementia-related risk factors in the NHS.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
The Pharmacogenomics and Medicine Optimisation NHS Genomic Network of Excellence convened a multidisciplinary meeting in November 2023 to support an impact assessment of potential testing for APOE-4 for prediction of risk of adverse events for lecanemab and donanemab. This group considered the evidence for expanding genomic testing for the APOE gene variants, including to inform other dementia related risk factors and concluded that there was insufficient evidence to offer genomic testing for the APOE gene variants as part of routine dementia care, risk assessment, or to first degree relatives of those with an already identified APOE variant to inform risk estimates of developing future Alzheimer's disease.
Asked by: Gregory Stafford (Conservative - Farnham and Bordon)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential impact of a respiratory modern service framework on winter pressures on the NHS.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
Modern service frameworks will define an aspirational, long-term outcome goal for a major condition and then identify the best evidenced interventions and the support for delivery. Early priorities will include cardiovascular disease, severe mental illness, and the first ever service framework for frailty and dementia.
The Government will consider other long-term conditions for future waves of modern service frameworks, including respiratory conditions. The criteria for determining other conditions for future modern service frameworks will be based on where there is potential for rapid and significant improvements in quality of care and productivity. There has not, therefore, been a specific assessment made in relation to winter pressures.
NHS England, working with the Department, the UK Health Security Agency, and other partners, is taking action to reduce the impact of respiratory conditions on the National Health Service this winter. Further details of the actions being taken to reduce demand on acute services during winter is available at the following link:
https://www.england.nhs.uk/long-read/urgent-and-emergency-care-plan-2025-26/
Asked by: Vikki Slade (Liberal Democrat - Mid Dorset and North Poole)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 27 October 2025 to Question 82544 on Respiratory System: Health Services, if he will outline a timeline he expects to bring forward a Modern Service Framework for respiratory health.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
Modern service frameworks (MSFs) will define an aspirational, long-term outcome goal for a major condition and then identify the best evidenced interventions and the support for delivery. Early priorities will include cardiovascular disease, severe mental illness, and the first ever service framework for frailty and dementia.
The Government will consider other long-term conditions for future waves of MSFs, including respiratory conditions. The criteria for determining other conditions for future MSFs will be based on where there is potential for rapid and significant improvements in the quality of care and productivity. After the initial wave of MSFs is complete, the National Quality Board will determine the conditions to prioritise for new MSFs as part of its work programme.
Asked by: Helen Maguire (Liberal Democrat - Epsom and Ewell)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what his Department’s timeline is for deciding on the second wave of Modern Service Frameworks; and whether respiratory conditions will be considered.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
Modern service frameworks will define an aspirational, long-term outcome goal for a major condition and then identify the best evidenced interventions and the support for delivery. Early priorities will include cardiovascular disease, severe mental illness, and the first ever service framework for frailty and dementia.
The Government will consider other long-term conditions for future waves of modern service frameworks, including respiratory conditions. The criteria for determining other conditions for future modern service frameworks will be based on where there is potential for rapid and significant improvements in quality of care and productivity. After the initial wave of MSFs is complete, the National Quality Board will determine the conditions to prioritise for new MSFs as part of its work programme.
Asked by: Liz Jarvis (Liberal Democrat - Eastleigh)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what guidance his Department provides to local authorities on decisions affecting individuals with dementia who are already living in suitable care homes, once their capital falls below the adult social care funding threshold; and how such guidance takes into account medical advice, including a doctor’s note, on the potential distress or risks associated with requiring a move to an alternative placement.
Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)
Under the Care Act 2014, local authorities must not charge more than is reasonably practicable and charging policies must be clear and transparent, in line with the Care and Support (Charging and Assessment of Resources) Regulations 2014 and the Care and Support Statutory (CASS) guidance.
Annex A of the CASS guidance makes clear that the choice of accommodation and additional payment rules apply equally to people entering care for the first time and to self‑funders whose resources have fallen below the upper capital limit. Where this happens, the local authority must conduct a financial assessment to determine what the individual can afford to contribute and must set a personal budget as part of the care and support plan. Annex A of the CASS guidance is available at the following link:
Where an individual’s needs require a particular type of accommodation, the local authority must offer them a genuine choice between suitable providers, including at least one affordable option within their personal budget. The placement must be suitable, available, and offered at the rate identified in the personal budget. Local authorities must also have regard to the wellbeing duty in section 1 of the Care Act when considering accommodation choice.
Asked by: Freddie van Mierlo (Liberal Democrat - Henley and Thame)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how much funding was allocated to dementia research by (a) the National Institute for Health and Care Research and (b) UK Research and Innovation in each of the last five years.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
Government responsibility for delivering dementia research is shared between the Department of Health and Social Care, with research delivered via the National Institute for Health and Care Research (NIHR), and the Department for Science, Innovation and Technology, with research delivered via UK Research and Innovation (UKRI).
The table in the document attached shows the NIHR and UKRI’s spend data for dementia research across the five financial years from 2020/21 to 2024/25
Spend for dementia research is calculated retrospectively, with a time lag due to annual reporting cycles, therefore 2024/25 is the most recent year we have data for. The Department does not centrally hold data on dementia research funding from other public bodies, and 2024/25 data from UKRI is still being confirmed.
The NIHR welcomes funding applications for research into any aspect of human health and care, including dementia. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. Welcoming applications on dementia to all NIHR programmes enables maximum flexibility both in terms of the amount of research funding a particular area can be awarded, and the type of research which can be funded.