Asked by: Tulip Siddiq (Labour - Hampstead and Kilburn)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, how many NHS patients have had miscarriages as a result of the amniocentesis test in the last three years.
Answered by Ben Gummer
Data on the number of NHS patients who have had miscarriages as a result of the amniocentesis test is not held centrally.
Data on the number of NHS patients who had an amniocentesis test and then gave birth to a child with Down’s syndrome is not held centrally.
The following table is a count of births where the baby had a main or secondary diagnosis of Down's syndrome for the years 2012-13 to 2014-15. Note that this is not a count of patients who gave birth as one mother may have had multiple deliveries within the time period presented. Note that the data presented only identifies babies who have been diagnosed with Down's syndrome on the birth episode.
Count of birth episodes1 where there was a primary or secondary diagnosis2 of Down's syndrome3, 2012-13 to 2014-154,5
Year | Count of birth episodes |
2012-13 | 539 |
2013-14 | 540 |
2014-15 | 517 |
Activity in English NHS Hospitals and English NHS commissioned activity in the independent sector
Source: Hospital Episode Statistics (HES), Health and Social Care Information Centre
Notes
1 Birth episodes
A birth episode is the hospital episode relating to the baby. One can expect there to be a higher number of birth episodes than delivery episodes because a mother can give birth to multiple babies within the same pregnancy. Births are a subset of finished consultant episodes; a period of admitted patient care under one consultant within one healthcare provider.
2 Number of episodes in which the patient had a primary or secondary diagnosis
The number of episodes where this diagnosis was recorded in any of the 20 (14 from 2002-03 to 2006-07 and 7 prior to 2002-03) primary and secondary diagnosis fields in a Hospital Episode Statistics (HES) record. Each episode is only counted once, even if the diagnosis is recorded in more than one diagnosis field of the record.
3ICD-10 codes for Down's syndrome
The following ICD-10 code classifies Down's syndrome:
Q90 - Down syndrome
4Assessing growth through time (Admitted patient care)
HES figures are available from 1989-90 onwards. Changes to the figures over time need to be interpreted in the context of improvements in data quality and coverage (particularly in earlier years), improvements in coverage of independent sector activity (particularly from 2006-07) and changes in NHS practice. For example, apparent reductions in activity may be due to a number of procedures which may now be undertaken in outpatient settings and so no longer include in admitted patient HES data. Conversely, apparent increases in activity may be due to improved recording of diagnosis or procedure information.
Note that HES include activity ending in the year in question and run from April to March, e.g. 2012-13 includes activity ending between 1st April 2012 and 31st March 2013.
5Delivery and birth episodes in 2013-14
Please be aware in 2013-14 there were a number of hospital providers where there were less birth episodes than delivery episodes. There are a number of possible reasons for this occurring in small numbers from genuine recording scenarios to other maternity data quality issues impacting. Further details regarding this issue can be found at:
http://www.hscic.gov.uk/catalogue/PUB16725/nhs-mate-eng-2013-14-ip-qual-rep.pdf
As part of its review of evidence for offering non-invasive prenatal testing (NIPT) for Down's syndrome and other trisomy conditions, the UK National Screening Committee (UK NSC), which advises Ministers and the NHS in all four countries about all aspects of screening policy, commissioned a cost-consequence assessment. This assessment includes projected annual costs for a number of models of implementing NIPT and is available at:
http://legacy.screening.nhs.uk/policydb_download.php?doc=552
The UK NSC’s recommendation on NIPT and preferred models for implementations will be made public in the New Year.
Asked by: Tulip Siddiq (Labour - Hampstead and Kilburn)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, how many NHS patients gave birth to children with Down's syndrome in each of the last three years; and how many such patients had had an amniocentesis test.
Answered by Ben Gummer
Data on the number of NHS patients who have had miscarriages as a result of the amniocentesis test is not held centrally.
Data on the number of NHS patients who had an amniocentesis test and then gave birth to a child with Down’s syndrome is not held centrally.
The following table is a count of births where the baby had a main or secondary diagnosis of Down's syndrome for the years 2012-13 to 2014-15. Note that this is not a count of patients who gave birth as one mother may have had multiple deliveries within the time period presented. Note that the data presented only identifies babies who have been diagnosed with Down's syndrome on the birth episode.
Count of birth episodes1 where there was a primary or secondary diagnosis2 of Down's syndrome3, 2012-13 to 2014-154,5
Year | Count of birth episodes |
2012-13 | 539 |
2013-14 | 540 |
2014-15 | 517 |
Activity in English NHS Hospitals and English NHS commissioned activity in the independent sector
Source: Hospital Episode Statistics (HES), Health and Social Care Information Centre
Notes
1 Birth episodes
A birth episode is the hospital episode relating to the baby. One can expect there to be a higher number of birth episodes than delivery episodes because a mother can give birth to multiple babies within the same pregnancy. Births are a subset of finished consultant episodes; a period of admitted patient care under one consultant within one healthcare provider.
2 Number of episodes in which the patient had a primary or secondary diagnosis
The number of episodes where this diagnosis was recorded in any of the 20 (14 from 2002-03 to 2006-07 and 7 prior to 2002-03) primary and secondary diagnosis fields in a Hospital Episode Statistics (HES) record. Each episode is only counted once, even if the diagnosis is recorded in more than one diagnosis field of the record.
3ICD-10 codes for Down's syndrome
The following ICD-10 code classifies Down's syndrome:
Q90 - Down syndrome
4Assessing growth through time (Admitted patient care)
HES figures are available from 1989-90 onwards. Changes to the figures over time need to be interpreted in the context of improvements in data quality and coverage (particularly in earlier years), improvements in coverage of independent sector activity (particularly from 2006-07) and changes in NHS practice. For example, apparent reductions in activity may be due to a number of procedures which may now be undertaken in outpatient settings and so no longer include in admitted patient HES data. Conversely, apparent increases in activity may be due to improved recording of diagnosis or procedure information.
Note that HES include activity ending in the year in question and run from April to March, e.g. 2012-13 includes activity ending between 1st April 2012 and 31st March 2013.
5Delivery and birth episodes in 2013-14
Please be aware in 2013-14 there were a number of hospital providers where there were less birth episodes than delivery episodes. There are a number of possible reasons for this occurring in small numbers from genuine recording scenarios to other maternity data quality issues impacting. Further details regarding this issue can be found at:
http://www.hscic.gov.uk/catalogue/PUB16725/nhs-mate-eng-2013-14-ip-qual-rep.pdf
As part of its review of evidence for offering non-invasive prenatal testing (NIPT) for Down's syndrome and other trisomy conditions, the UK National Screening Committee (UK NSC), which advises Ministers and the NHS in all four countries about all aspects of screening policy, commissioned a cost-consequence assessment. This assessment includes projected annual costs for a number of models of implementing NIPT and is available at:
http://legacy.screening.nhs.uk/policydb_download.php?doc=552
The UK NSC’s recommendation on NIPT and preferred models for implementations will be made public in the New Year.
Asked by: Tulip Siddiq (Labour - Hampstead and Kilburn)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, if he will make an estimate of the cost of introducing non-invasive prenatal testing for Down's syndrome to all NHS hospitals in the UK.
Answered by Ben Gummer
Data on the number of NHS patients who have had miscarriages as a result of the amniocentesis test is not held centrally.
Data on the number of NHS patients who had an amniocentesis test and then gave birth to a child with Down’s syndrome is not held centrally.
The following table is a count of births where the baby had a main or secondary diagnosis of Down's syndrome for the years 2012-13 to 2014-15. Note that this is not a count of patients who gave birth as one mother may have had multiple deliveries within the time period presented. Note that the data presented only identifies babies who have been diagnosed with Down's syndrome on the birth episode.
Count of birth episodes1 where there was a primary or secondary diagnosis2 of Down's syndrome3, 2012-13 to 2014-154,5
Year | Count of birth episodes |
2012-13 | 539 |
2013-14 | 540 |
2014-15 | 517 |
Activity in English NHS Hospitals and English NHS commissioned activity in the independent sector
Source: Hospital Episode Statistics (HES), Health and Social Care Information Centre
Notes
1 Birth episodes
A birth episode is the hospital episode relating to the baby. One can expect there to be a higher number of birth episodes than delivery episodes because a mother can give birth to multiple babies within the same pregnancy. Births are a subset of finished consultant episodes; a period of admitted patient care under one consultant within one healthcare provider.
2 Number of episodes in which the patient had a primary or secondary diagnosis
The number of episodes where this diagnosis was recorded in any of the 20 (14 from 2002-03 to 2006-07 and 7 prior to 2002-03) primary and secondary diagnosis fields in a Hospital Episode Statistics (HES) record. Each episode is only counted once, even if the diagnosis is recorded in more than one diagnosis field of the record.
3ICD-10 codes for Down's syndrome
The following ICD-10 code classifies Down's syndrome:
Q90 - Down syndrome
4Assessing growth through time (Admitted patient care)
HES figures are available from 1989-90 onwards. Changes to the figures over time need to be interpreted in the context of improvements in data quality and coverage (particularly in earlier years), improvements in coverage of independent sector activity (particularly from 2006-07) and changes in NHS practice. For example, apparent reductions in activity may be due to a number of procedures which may now be undertaken in outpatient settings and so no longer include in admitted patient HES data. Conversely, apparent increases in activity may be due to improved recording of diagnosis or procedure information.
Note that HES include activity ending in the year in question and run from April to March, e.g. 2012-13 includes activity ending between 1st April 2012 and 31st March 2013.
5Delivery and birth episodes in 2013-14
Please be aware in 2013-14 there were a number of hospital providers where there were less birth episodes than delivery episodes. There are a number of possible reasons for this occurring in small numbers from genuine recording scenarios to other maternity data quality issues impacting. Further details regarding this issue can be found at:
http://www.hscic.gov.uk/catalogue/PUB16725/nhs-mate-eng-2013-14-ip-qual-rep.pdf
As part of its review of evidence for offering non-invasive prenatal testing (NIPT) for Down's syndrome and other trisomy conditions, the UK National Screening Committee (UK NSC), which advises Ministers and the NHS in all four countries about all aspects of screening policy, commissioned a cost-consequence assessment. This assessment includes projected annual costs for a number of models of implementing NIPT and is available at:
http://legacy.screening.nhs.uk/policydb_download.php?doc=552
The UK NSC’s recommendation on NIPT and preferred models for implementations will be made public in the New Year.
Asked by: Jim Shannon (Democratic Unionist Party - Strangford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, how many people have been diagnosed with toxic shock syndrome in each of the last five years.
Answered by Jane Ellison
The table shows a count of finished admission episodes (FAEs) with a primary diagnosis of toxic shock syndrome broken down by gender for the years 2009-10 to 2013-14.
Activity in English NHS Hospitals and English NHS commissioned activity in the independent sector
Gender | ||
Year | Female | Male |
2009-10 | 46 | 42 |
2010-11 | 43 | 28 |
2011-12 | 43 | 29 |
2012-13 | 55 | 22 |
2013-14 | 63 | 30 |
Source: Hospital Episode Statistics (HES), Health and Social Care Information Centre
Note: An FAE is the first period of admitted patient care under one consultant within one healthcare provider. FAEs are counted against the year or month in which the admission episode finishes. Admissions do not represent the number of patients, as a person may have more than one admission within the period.
Asked by: Lord Benyon (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, what steps are being taken to investigate cases of orthostatic intolerance and Chronic Regional Pain Syndrome.
Answered by Norman Lamb
In 2010, the National Institute for Health and Care Excellence (NICE) published the guidance Transient loss of consciousness ('blackouts') management in adults. Orthostatic intolerance is characterised by the development of symptoms of dizziness, nausea and fainting when standing up, which are only resolved by lying down. The investigation of such symptoms is included in the NICE guidance, which can be found at the following link:
To support clinicians in the diagnosis, treatment, care and support of patients with chronic/complex regional pain syndrome (CRPS) the Royal College of Physicians (RCP) has produced a best practice guideline on the condition, which was produced with a range of collaborators, including the British Pain Society. In addition, in 2013 NICE produced a guideline on the pharmacological management of neuropathic pain, including for CRPS. Both the RCP and the NICE guidance can be found at the following links:
www.rcplondon.ac.uk/sites/default/files/documents/complex-regional-pain-full-guideline.pdf
www.nice.org.uk/guidance/cg173/resources/guidance-neuropathic-pain-pharmacological-management-pdf
Asked by: Jim Shannon (Democratic Unionist Party - Strangford)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, how many people with Down’s syndrome there were in the UK aged (a) under 15, (b) 15 to 30, (c) 30 to 50 and (d) over 50 on the latest date for which figures are available.
Answered by Norman Lamb
The information is not held centrally. The National Down Syndrome Cytogenetic Register (NDSCR) estimates that in 2012, 775 babies were born with Down’s syndrome in England and Wales. The NHS Fetal Anomaly Screening Programme reports that there are approximately 60,000 people with the condition currently living in the United Kingdom.
The NDSCR was established in 1989 and collects all cytogenetic or DNA reports of trisomies 21, 18 and 13 and their cytogenetic variants occurring in England and Wales. These data are used to (1) monitor the Down syndrome antenatal screening and diagnostic services (2) provide data on annual numbers of affected births to help those planning for their health, educational and social care and (3) provide information for research into Down, Edwards and Patau syndromes. Further information is available from the NDCSR annual reports that appear on the Wolfson Institute of Preventative Medicine Queen Mary University of London website:
http://www.wolfson.qmul.ac.uk/current-projects/downs-syndrome-register