Asked by: Lord Hunt of Kings Heath (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they have taken to improve access to new drugs for brain tumour patients.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR invests in the research delivery workforce, the facilities, and the capacity to support clinical trials into all disease areas, including brain tumours. The NIHR Clinical Research Facilities and Experimental Cancer Medicine Centres support the delivery of early phase trials, and the NIHR Clinical Research Network and Patient Recruitment Centres support delivery and participation in later phase clinical trials.
The National Institute for Health and Care Excellence (NICE) makes recommendations on whether all new medicines, including for brain tumours, should be routinely funded by the National Health Service based on an assessment of their costs and benefits. NICE is able to recommend medicines for use through the Cancer Drugs Fund, where there is too much uncertainty for NICE to recommend routine use. NICE works closely with the Medicines and Healthcare Products Regulatory Agency to ensure that its appraisal timelines are aligned with the regulatory process. NICE is currently evaluating a number of potential new medicines for brain tumours.
Asked by: Emma Lewell-Buck (Labour - South Shields)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment she has made of the implications for her policies of NHS England's publication entitled Cancer Under 16 Patient Experience Survey, published on 8 November 2023.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Cancer is a priority for the Government and the Department continues to take steps to demonstrate this. The Department is taking steps to better understand the landscape of childhood cancer with experts, aided by Dame Caroline Dinenage MP.
Increasing the diagnosis rates of cancers in children and young people is a priority for the Government. Several organisations, including the Department, are taking steps across England to improve cancer diagnosis services in primary health care settings, supporting general practices (GPs) in referring patients, expanding diagnostic capacity, and enabling more precise diagnosis through technology.
NHS England is working to deliver the ambition it set in its Long-Term Plan to diagnose 75% of cancers at stages one and two by 2028. The Department is working to support GPs in improving referrals for suspected cancer. The National Institute for Health and Care Excellence’s guidance underpinning cancer referrals sets out detailed guidance for GPs on the symptoms of cancer in children and young people, recommending very urgent referral, an appointment within 48 hours, for those presenting with a range of potential cancer symptoms including any unexplained lump, bruising or bleeding, neurological symptoms or bone pain. For many of these symptoms, GPs now have direct access to request diagnostic tests including X-ray and ultrasound.
Childhood, young people’s and young adults’ cancers are included within the Department’s work on developing a Major Conditions Strategy. Addressing cancer together with other groups of conditions in a joined-up strategy will allow us to focus on where there are similarities in approach and ensure care is better centered around the patient.
While the Department cannot pre-empt its outcomes or undertake a specific assessment at this stage, the Major Conditions Strategy’s final report will draw on previous work, including submissions from childhood, young people and young adults’ cancer charities and stakeholders in response to our calls for evidence on cancer and on major conditions. The emphasis is on earlier diagnosis, better support to manage conditions, and improved coordination of treatment and care. We are engaging with stakeholders representing babies, children and young people to ensure their views are considered in the development of the strategy.
The Department does not plan to insert any further additions into the strategy development for age appropriate and personalised care. The NHS Long Term Plan states that, where appropriate, every person diagnosed with cancer will have access to personalised care, including needs assessment, a care plan and health and wellbeing information and support. This is being delivered in line with the NHS Comprehensive Model for Personalised Care, empowering people to manage their care and the impact of their cancer and maximise the potential of digital and community-based support.
In addition, the Under 16 Cancer Patient Experience Survey, commissioned by NHS England, is now in its third year and aims to gather feedback from children and young people and their parents/carers on the cancer care and treatment received.
These surveys provide valuable findings, helping the National Health Service to understand what is good about children, young people’s and adults’ cancer care, and identifying areas for improvements. 75% of children aged between eight and 15 years old reported that they were looked after very well for their cancer or tumour by healthcare staff and 89% of parents/carers rated the overall experience of their child's care as eight or more out of 10. The answers are being used to improve children’s cancer care across England. NHS England is working to review and improve play facilities, including working with the Starlight Foundation Charity on improvements to guidance, and surveying all provision to identify areas for improvement. Work is also underway in improving food quality, including nine larger Children’s Hospital’s NHS Trusts currently piloting better food provision for resident parents.
The Government welcomed Children's Cancer and Leukaemia Group’s Children and Young People’s Cancer Plan. The Department has not made a formal assessment of the recommendations, given the significant amount of work ongoing across NHS England and the Department. Our priorities include improving early diagnosis, delivering more research, and driving progress in genomic medicine.
Asked by: Emma Lewell-Buck (Labour - South Shields)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to help improve cancer diagnosis services in primary healthcare settings for children and young people.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Cancer is a priority for the Government and the Department continues to take steps to demonstrate this. The Department is taking steps to better understand the landscape of childhood cancer with experts, aided by Dame Caroline Dinenage MP.
Increasing the diagnosis rates of cancers in children and young people is a priority for the Government. Several organisations, including the Department, are taking steps across England to improve cancer diagnosis services in primary health care settings, supporting general practices (GPs) in referring patients, expanding diagnostic capacity, and enabling more precise diagnosis through technology.
NHS England is working to deliver the ambition it set in its Long-Term Plan to diagnose 75% of cancers at stages one and two by 2028. The Department is working to support GPs in improving referrals for suspected cancer. The National Institute for Health and Care Excellence’s guidance underpinning cancer referrals sets out detailed guidance for GPs on the symptoms of cancer in children and young people, recommending very urgent referral, an appointment within 48 hours, for those presenting with a range of potential cancer symptoms including any unexplained lump, bruising or bleeding, neurological symptoms or bone pain. For many of these symptoms, GPs now have direct access to request diagnostic tests including X-ray and ultrasound.
Childhood, young people’s and young adults’ cancers are included within the Department’s work on developing a Major Conditions Strategy. Addressing cancer together with other groups of conditions in a joined-up strategy will allow us to focus on where there are similarities in approach and ensure care is better centered around the patient.
While the Department cannot pre-empt its outcomes or undertake a specific assessment at this stage, the Major Conditions Strategy’s final report will draw on previous work, including submissions from childhood, young people and young adults’ cancer charities and stakeholders in response to our calls for evidence on cancer and on major conditions. The emphasis is on earlier diagnosis, better support to manage conditions, and improved coordination of treatment and care. We are engaging with stakeholders representing babies, children and young people to ensure their views are considered in the development of the strategy.
The Department does not plan to insert any further additions into the strategy development for age appropriate and personalised care. The NHS Long Term Plan states that, where appropriate, every person diagnosed with cancer will have access to personalised care, including needs assessment, a care plan and health and wellbeing information and support. This is being delivered in line with the NHS Comprehensive Model for Personalised Care, empowering people to manage their care and the impact of their cancer and maximise the potential of digital and community-based support.
In addition, the Under 16 Cancer Patient Experience Survey, commissioned by NHS England, is now in its third year and aims to gather feedback from children and young people and their parents/carers on the cancer care and treatment received.
These surveys provide valuable findings, helping the National Health Service to understand what is good about children, young people’s and adults’ cancer care, and identifying areas for improvements. 75% of children aged between eight and 15 years old reported that they were looked after very well for their cancer or tumour by healthcare staff and 89% of parents/carers rated the overall experience of their child's care as eight or more out of 10. The answers are being used to improve children’s cancer care across England. NHS England is working to review and improve play facilities, including working with the Starlight Foundation Charity on improvements to guidance, and surveying all provision to identify areas for improvement. Work is also underway in improving food quality, including nine larger Children’s Hospital’s NHS Trusts currently piloting better food provision for resident parents.
The Government welcomed Children's Cancer and Leukaemia Group’s Children and Young People’s Cancer Plan. The Department has not made a formal assessment of the recommendations, given the significant amount of work ongoing across NHS England and the Department. Our priorities include improving early diagnosis, delivering more research, and driving progress in genomic medicine.
Asked by: Emma Lewell-Buck (Labour - South Shields)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the implications for her policies of the Children's Cancer and Leukaemia Group report entitled The Children and Young People's Cancer Plan, published on 7 February 2023.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Cancer is a priority for the Government and the Department continues to take steps to demonstrate this. The Department is taking steps to better understand the landscape of childhood cancer with experts, aided by Dame Caroline Dinenage MP.
Increasing the diagnosis rates of cancers in children and young people is a priority for the Government. Several organisations, including the Department, are taking steps across England to improve cancer diagnosis services in primary health care settings, supporting general practices (GPs) in referring patients, expanding diagnostic capacity, and enabling more precise diagnosis through technology.
NHS England is working to deliver the ambition it set in its Long-Term Plan to diagnose 75% of cancers at stages one and two by 2028. The Department is working to support GPs in improving referrals for suspected cancer. The National Institute for Health and Care Excellence’s guidance underpinning cancer referrals sets out detailed guidance for GPs on the symptoms of cancer in children and young people, recommending very urgent referral, an appointment within 48 hours, for those presenting with a range of potential cancer symptoms including any unexplained lump, bruising or bleeding, neurological symptoms or bone pain. For many of these symptoms, GPs now have direct access to request diagnostic tests including X-ray and ultrasound.
Childhood, young people’s and young adults’ cancers are included within the Department’s work on developing a Major Conditions Strategy. Addressing cancer together with other groups of conditions in a joined-up strategy will allow us to focus on where there are similarities in approach and ensure care is better centered around the patient.
While the Department cannot pre-empt its outcomes or undertake a specific assessment at this stage, the Major Conditions Strategy’s final report will draw on previous work, including submissions from childhood, young people and young adults’ cancer charities and stakeholders in response to our calls for evidence on cancer and on major conditions. The emphasis is on earlier diagnosis, better support to manage conditions, and improved coordination of treatment and care. We are engaging with stakeholders representing babies, children and young people to ensure their views are considered in the development of the strategy.
The Department does not plan to insert any further additions into the strategy development for age appropriate and personalised care. The NHS Long Term Plan states that, where appropriate, every person diagnosed with cancer will have access to personalised care, including needs assessment, a care plan and health and wellbeing information and support. This is being delivered in line with the NHS Comprehensive Model for Personalised Care, empowering people to manage their care and the impact of their cancer and maximise the potential of digital and community-based support.
In addition, the Under 16 Cancer Patient Experience Survey, commissioned by NHS England, is now in its third year and aims to gather feedback from children and young people and their parents/carers on the cancer care and treatment received.
These surveys provide valuable findings, helping the National Health Service to understand what is good about children, young people’s and adults’ cancer care, and identifying areas for improvements. 75% of children aged between eight and 15 years old reported that they were looked after very well for their cancer or tumour by healthcare staff and 89% of parents/carers rated the overall experience of their child's care as eight or more out of 10. The answers are being used to improve children’s cancer care across England. NHS England is working to review and improve play facilities, including working with the Starlight Foundation Charity on improvements to guidance, and surveying all provision to identify areas for improvement. Work is also underway in improving food quality, including nine larger Children’s Hospital’s NHS Trusts currently piloting better food provision for resident parents.
The Government welcomed Children's Cancer and Leukaemia Group’s Children and Young People’s Cancer Plan. The Department has not made a formal assessment of the recommendations, given the significant amount of work ongoing across NHS England and the Department. Our priorities include improving early diagnosis, delivering more research, and driving progress in genomic medicine.
Asked by: Emma Lewell-Buck (Labour - South Shields)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment she has made of the potential impact of the Major Conditions Strategy on the needs of children and young people that are diagnosed with cancer; and whether she plans to produce a bespoke strategy for them.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Cancer is a priority for the Government and the Department continues to take steps to demonstrate this. The Department is taking steps to better understand the landscape of childhood cancer with experts, aided by Dame Caroline Dinenage MP.
Increasing the diagnosis rates of cancers in children and young people is a priority for the Government. Several organisations, including the Department, are taking steps across England to improve cancer diagnosis services in primary health care settings, supporting general practices (GPs) in referring patients, expanding diagnostic capacity, and enabling more precise diagnosis through technology.
NHS England is working to deliver the ambition it set in its Long-Term Plan to diagnose 75% of cancers at stages one and two by 2028. The Department is working to support GPs in improving referrals for suspected cancer. The National Institute for Health and Care Excellence’s guidance underpinning cancer referrals sets out detailed guidance for GPs on the symptoms of cancer in children and young people, recommending very urgent referral, an appointment within 48 hours, for those presenting with a range of potential cancer symptoms including any unexplained lump, bruising or bleeding, neurological symptoms or bone pain. For many of these symptoms, GPs now have direct access to request diagnostic tests including X-ray and ultrasound.
Childhood, young people’s and young adults’ cancers are included within the Department’s work on developing a Major Conditions Strategy. Addressing cancer together with other groups of conditions in a joined-up strategy will allow us to focus on where there are similarities in approach and ensure care is better centered around the patient.
While the Department cannot pre-empt its outcomes or undertake a specific assessment at this stage, the Major Conditions Strategy’s final report will draw on previous work, including submissions from childhood, young people and young adults’ cancer charities and stakeholders in response to our calls for evidence on cancer and on major conditions. The emphasis is on earlier diagnosis, better support to manage conditions, and improved coordination of treatment and care. We are engaging with stakeholders representing babies, children and young people to ensure their views are considered in the development of the strategy.
The Department does not plan to insert any further additions into the strategy development for age appropriate and personalised care. The NHS Long Term Plan states that, where appropriate, every person diagnosed with cancer will have access to personalised care, including needs assessment, a care plan and health and wellbeing information and support. This is being delivered in line with the NHS Comprehensive Model for Personalised Care, empowering people to manage their care and the impact of their cancer and maximise the potential of digital and community-based support.
In addition, the Under 16 Cancer Patient Experience Survey, commissioned by NHS England, is now in its third year and aims to gather feedback from children and young people and their parents/carers on the cancer care and treatment received.
These surveys provide valuable findings, helping the National Health Service to understand what is good about children, young people’s and adults’ cancer care, and identifying areas for improvements. 75% of children aged between eight and 15 years old reported that they were looked after very well for their cancer or tumour by healthcare staff and 89% of parents/carers rated the overall experience of their child's care as eight or more out of 10. The answers are being used to improve children’s cancer care across England. NHS England is working to review and improve play facilities, including working with the Starlight Foundation Charity on improvements to guidance, and surveying all provision to identify areas for improvement. Work is also underway in improving food quality, including nine larger Children’s Hospital’s NHS Trusts currently piloting better food provision for resident parents.
The Government welcomed Children's Cancer and Leukaemia Group’s Children and Young People’s Cancer Plan. The Department has not made a formal assessment of the recommendations, given the significant amount of work ongoing across NHS England and the Department. Our priorities include improving early diagnosis, delivering more research, and driving progress in genomic medicine.
Asked by: Emma Lewell-Buck (Labour - South Shields)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will take steps to insert an addition to the Major Conditions Strategy requiring children and young people with cancer to receive (a) age appropriate care and (b) personalised care.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
Cancer is a priority for the Government and the Department continues to take steps to demonstrate this. The Department is taking steps to better understand the landscape of childhood cancer with experts, aided by Dame Caroline Dinenage MP.
Increasing the diagnosis rates of cancers in children and young people is a priority for the Government. Several organisations, including the Department, are taking steps across England to improve cancer diagnosis services in primary health care settings, supporting general practices (GPs) in referring patients, expanding diagnostic capacity, and enabling more precise diagnosis through technology.
NHS England is working to deliver the ambition it set in its Long-Term Plan to diagnose 75% of cancers at stages one and two by 2028. The Department is working to support GPs in improving referrals for suspected cancer. The National Institute for Health and Care Excellence’s guidance underpinning cancer referrals sets out detailed guidance for GPs on the symptoms of cancer in children and young people, recommending very urgent referral, an appointment within 48 hours, for those presenting with a range of potential cancer symptoms including any unexplained lump, bruising or bleeding, neurological symptoms or bone pain. For many of these symptoms, GPs now have direct access to request diagnostic tests including X-ray and ultrasound.
Childhood, young people’s and young adults’ cancers are included within the Department’s work on developing a Major Conditions Strategy. Addressing cancer together with other groups of conditions in a joined-up strategy will allow us to focus on where there are similarities in approach and ensure care is better centered around the patient.
While the Department cannot pre-empt its outcomes or undertake a specific assessment at this stage, the Major Conditions Strategy’s final report will draw on previous work, including submissions from childhood, young people and young adults’ cancer charities and stakeholders in response to our calls for evidence on cancer and on major conditions. The emphasis is on earlier diagnosis, better support to manage conditions, and improved coordination of treatment and care. We are engaging with stakeholders representing babies, children and young people to ensure their views are considered in the development of the strategy.
The Department does not plan to insert any further additions into the strategy development for age appropriate and personalised care. The NHS Long Term Plan states that, where appropriate, every person diagnosed with cancer will have access to personalised care, including needs assessment, a care plan and health and wellbeing information and support. This is being delivered in line with the NHS Comprehensive Model for Personalised Care, empowering people to manage their care and the impact of their cancer and maximise the potential of digital and community-based support.
In addition, the Under 16 Cancer Patient Experience Survey, commissioned by NHS England, is now in its third year and aims to gather feedback from children and young people and their parents/carers on the cancer care and treatment received.
These surveys provide valuable findings, helping the National Health Service to understand what is good about children, young people’s and adults’ cancer care, and identifying areas for improvements. 75% of children aged between eight and 15 years old reported that they were looked after very well for their cancer or tumour by healthcare staff and 89% of parents/carers rated the overall experience of their child's care as eight or more out of 10. The answers are being used to improve children’s cancer care across England. NHS England is working to review and improve play facilities, including working with the Starlight Foundation Charity on improvements to guidance, and surveying all provision to identify areas for improvement. Work is also underway in improving food quality, including nine larger Children’s Hospital’s NHS Trusts currently piloting better food provision for resident parents.
The Government welcomed Children's Cancer and Leukaemia Group’s Children and Young People’s Cancer Plan. The Department has not made a formal assessment of the recommendations, given the significant amount of work ongoing across NHS England and the Department. Our priorities include improving early diagnosis, delivering more research, and driving progress in genomic medicine.
Asked by: Andrew Bridgen (Independent - North West Leicestershire)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, with reference to the guidance by NICE entitled Covid-19 rapid guideline: managing symptoms (including at the end of life) in the community, NG163, published on 3 April 2020, which medical experts were consulted during the commissioning process.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
The National Institute for Health and Care Excellence (NICE) guideline NG163, published in 2020, was commissioned in accordance with an established agreement between NHS England and NICE. The focus at that time was given to providing rapid guidance on the management of affected patients with COVID-19. The following organisations were consulted on the guideline:
- Association for Palliative Medicine;
- Palliative Care Formulary;
- Wolfson Palliative Care Research Centre;
- Cicely Saunders Institute;
- NHS England;
- ICU Steps;
- Macmillan Cancer Support;
- Marie Curie;
- National Audit for Care at the End of Life;
- Palliative Care for Wales;
- Royal College of General Practitioners;
- Royal College of Physicians; and
- Sue Ryder.
The following organisations provided general practice consultation on the guidance:
- NICE GP Reference Group; and
- RCGP Network.
A number of NICE’s COVID-19 rapid guidelines were subsequently incorporated into a single guideline, NG191, for the management of COVID-19 in children and adults. The list of panel members for this guideline is available at the following link:
https://www.nice.org.uk/guidance/ng191/documents/register-of-interests-2
Asked by: Chi Onwurah (Labour - Newcastle upon Tyne Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to support the research and development of medical technologies in the UK.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department-funded National Institute for Health and Care Research (NIHR) funds research to develop medical technologies through its research programmes, primarily the invention for innovation programme. This programme provides funding to industry and researchers to develop innovative healthcare technologies, including medical devices, which address existing or emerging health and social care needs. The NIHR also supports the development of medical technologies through its research infrastructure, primarily the Medtech and In Vitro Diagnostic Co-operatives, which will be replaced with the NIHR HealthTech Research Centres (HRCs) from 1 April 2024. The 14 NIHR HRCs will work with industry and researchers to support the whole pathway from development of medical devices, diagnostics and digital technologies, through to adoption in the health and care system.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will formally respond to Cancer Research UK's publication entitled Longer, better lives: A manifesto for cancer research and care, published in November 2023; and if she will make it her policy to accept the recommendations contained in that document.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Government welcomes the Cancer Research UK (CRUK) report, Longer, better lives: A manifesto for cancer research and care, which rightly highlights progress made in cancer diagnosis and care. The Department has not made a formal assessment of the recommendations, given the significant amount of work across the cancer programme led by NHS England and supported by the department.
Cancer is a Government and National Health Service priority, demonstrated by the commitment to the ambition of diagnosing 75% of cancers at Stages 1 and 2 by 2028. NHS England has implemented interventions to help achieve this ambition, such as non-specific symptom pathways, and will continue to seek new ways to diagnose cancer earlier and save more lives, for example through the NHS-Galleri blood test trial.
Furthermore, the Department has invested over £100 million into cancer research in 2021/22 through the National Institute for Health and Care Research (NIHR). In January 2023, CRUK, the NIHR and the devolved administrations jointly provided funding of £47.5 million to the Experimental Cancer Medicine Centre network over the next 5 years. The department is working closely with research partners in all sectors, and the Government's continued commitment to cancer research will help to build on that progress, leading to continued improvements for all cancer patients.
Asked by: Rachel Maclean (Conservative - Redditch)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what medical research the Government has funded into bad nerves.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
The Department commissions research through the National Institute for Health and Care Research (NIHR). The remit of the NIHR is early translational, that is experimental medicine, clinical and applied health research, and social care research. In 2022/23, the NIHR spent approximately £99 million on research into mental health. In the last 10 years, the NIHR has invested approximately £41.5 million into research specifically focused, or including a focus, on anxiety and/or anxiety disorder. The NIHR is not currently funding any research explicitly focused on ‘bad nerves’. The NIHR welcomes funding applications for research into any aspect of human health, including mental health.