Genetic, Rare and Undiagnosed Conditions APPG

First Registered: 12/02/2025 • Last updated on: 07/05/2025

To increase awareness in parliament of genetic, rare and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.

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4 Current Officers - Contact Details - Benefits in Kind - Financial Benefits

Reticulating Splines

4 Current APPG Officers

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Peter Dowd

Chair & Registered Contact

Labour - Bootle

Joined: 12th February 2025

4 APPG Officer Positions
Children who need Palliative Care , Falkland Islands , Italy , Liverpool City Region
5 APPG Memberships
Dentistry and Oral Health , Football Supporters , Health , Parks and Green Spaces , Tidy Britain

Baroness Neville-Jones

Vice Chair

Conservative - Life peer

Joined: 12th February 2025

No other APPG Officer Positions
4 APPG Memberships
Bosnia and Herzegovina , Carers , Cyber Security and Business Resilience , Digital Identity

Alison Hume

Officer

Labour - Scarborough and Whitby

Joined: 12th February 2025

4 APPG Officer Positions
Autism , Coastal Communities , Northern Culture , Writers
8 APPG Memberships
Australia and New Zealand (ANZAC) and the Pacific Islands , Carers , Gaps in Covid-19 Financial Support , Intellectual Property , Miscarriages of Justice , Special Educational Needs and Disabilities , Theatre , Water Pollution