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Written Question
Rare Diseases
Thursday 28th April 2022

Asked by: Baroness Cumberlege (Conservative - Life peer)

Question to the Department of Health and Social Care:

To ask Her Majesty's Government what steps they are taking to ensure the standards set out in NHS service specifications for rare and complex diseases, such as cystic fibrosis, are adhered to; and to what extent these represent a statutory expectation of care that patients should expect to receive at a minimum.

Answered by Lord Kamall - Shadow Minister (Health and Social Care)

It has not proved possible to respond to this question in the time available before Prorogation. Ministers will correspond directly with the Member.


Speech in Lords Chamber - Tue 05 Apr 2022
Health and Care Bill

"At end insert “, and do propose Amendment 29B in lieu—..."
Baroness Cumberlege - View Speech

View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill

Speech in Lords Chamber - Tue 05 Apr 2022
Health and Care Bill

"My Lords, I thank my noble friend for that wide-ranging introduction on workforce. There are a lot of issues that we will want to consider later, but at the moment we have before us the issue of what the Commons have done. They have returned our amendment back to the …..."
Baroness Cumberlege - View Speech

View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill

Speech in Lords Chamber - Tue 05 Apr 2022
Health and Care Bill

"My Lords, I thank my noble friend Lord Kamall for that masterful summing up. It has been such a wide-ranging debate, so full of interest, and I thank all those who have supported the amendment, which is rather narrow compared to the enormous expanse of interest that we have had—and …..."
Baroness Cumberlege - View Speech

View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill

Written Question
Medical Records: Data Protection
Thursday 10th March 2022

Asked by: Baroness Cumberlege (Conservative - Life peer)

Question to the Department of Health and Social Care:

To ask Her Majesty's Government, further to the answer by Lord Bethell on 8 June 2021 (HL Deb cols 1219–20), what improvements they have made to the process for patients opting out of their medical data being used for research and planning; and how each patient can see where data about them are used.

Answered by Lord Kamall - Shadow Minister (Health and Social Care)

Whilst no recent changes have been made to the patient opt-out process, we are considering further engagement with the public, patients, service users, staff and stakeholders. This will include raising awareness of the opt-out system, with the aim of making the process simpler and more transparent and how tools such as a transparency statement could help patients understand how their data is used. We will provide further details in the data strategy for health and social care, due for publication in spring 2022.


Speech in Lords Chamber - Mon 07 Mar 2022
Health and Care Bill

"My Lords, I thank the noble Baronesses, Lady Brinton and Lady Finlay, for supporting Amendment 184ZA, which I have tabled. I think the noble Baroness, Lady Neuberger, is going to speak—yes, she is—and I look forward to that. I very much hope that other noble Lords will want to support …..."
Baroness Cumberlege - View Speech

View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill

Speech in Lords Chamber - Thu 03 Mar 2022
Health and Care Bill

"..."
Baroness Cumberlege - View Speech

View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill

Speech in Lords Chamber - Thu 03 Mar 2022
Health and Care Bill

"My Lords, as this is Report, I declare my interests, which are that I am employed by NHS England to implement my report on maternity, Better Births...."
Baroness Cumberlege - View Speech

View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill

Speech in Lords Chamber - Thu 03 Mar 2022
Health and Care Bill

"My Lords, thank my noble friend very much. He has certainly gone as far as he can today; I am afraid it is not far enough. We have had informal conversations on this and I think it is no surprise to either of us that I was hoping for a …..."
Baroness Cumberlege - View Speech

View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill

Speech in Lords Chamber - Thu 03 Mar 2022
Health and Care Bill

"I thank my noble friend. On this clinical advice, he is aware of the enormous changes that were made to stroke services in London. In the reconfiguration that took place, many lives were saved. But when it came to east Kent, the reconfiguration request, which was to do with stroke …..."
Baroness Cumberlege - View Speech

View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill