Written Question
Tuesday 1st March 2022
Asked by:
Baroness Cumberlege (Conservative - Life peer)
Question
to the Department of Health and Social Care:
To ask Her Majesty's Government, further to the answer by Lord Bethell on 8 June 2021 (HL Deb, col 1319–20), what improvements they have made to the process for patients opting out of their health data being used for research and planning; and how each patient can see where data about them is used.
Answered by Lord Kamall
- Shadow Minister (Health and Social Care)
In July 2021, we committed that the General Practice Data for Planning and Research programme will not access patient data until the following criteria has been met:
- the ability to delete data if patients choose to opt-out of sharing their data with NHS Digital, even if this is after their data has been uploaded;
- the backlog of opt-outs has been fully cleared;
- a trusted research environment has been developed and implemented by NHS Digital; and
- patients have been made more aware of the scheme through a campaign of engagement and communication.
NHS Digital is redesigning the programme with input from stakeholders to take account of these commitments and professional, public and stakeholder feedback. Data collection will begin when the National Data Guardian, the Royal College of General Practitioners and the British Medical Association are satisfied with the proposed arrangements. As part of our data strategy, we will engage on how the opt-out system works in practice, with the aim of making the process simpler and more transparent.
Patients can view how data is used through NHS Digital’s data release register. This shows monthly information on who data has been shared with, which data has been shared and for what specific purpose.
Speech in Lords Chamber - Wed 09 Feb 2022
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"..."Baroness Cumberlege - View Speech
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Speech in Lords Chamber - Wed 09 Feb 2022
Health and Care Bill
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There …..."Baroness Cumberlege - View Speech
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Speech in Lords Chamber - Wed 09 Feb 2022
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"My Lords, I thank everybody who has taken part in this debate, particularly my noble friend the Minister for the work he and his officials have done to bring this into the Government’s remit. That is so important, because I learned through the passage of the Medicines and Medical Devices …..."Baroness Cumberlege - View Speech
View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill
Speech in Lords Chamber - Wed 09 Feb 2022
Health and Care Bill
"My Lords, I should like to speak to the amendment proposed by my noble friend Lady Hodgson.
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View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill
Speech in Lords Chamber - Wed 09 Feb 2022
Health and Care Bill
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View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill
Speech in Lords Chamber - Wed 26 Jan 2022
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I am sure that, if noble Lords are not convinced, these amendments …..."Baroness Cumberlege - View Speech
View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill
Speech in Lords Chamber - Wed 26 Jan 2022
Health and Care Bill
"My Lords, I will speak to Amendment 179 and the other amendments in my name. I thank the noble Lords who put their names to these amendments: the noble Lords, Lord Shipley, Lord Hunt of Kings Heath and Lord Patel. We are told that the driving force of the Bill …..."Baroness Cumberlege - View Speech
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Speech in Lords Chamber - Wed 26 Jan 2022
Health and Care Bill
"My Lords, before the Minister goes on—just so I do not lose the thread here— could he tell us why the Independent Reconfiguration Panel has to go? What are the problems with it? Why do we have to move it off in order to bring in a politicised system with …..."Baroness Cumberlege - View Speech
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Speech in Lords Chamber - Wed 26 Jan 2022
Health and Care Bill
"So that presents a problem. What does the Secretary of State do, and what does the independent panel do? Is it a question of the scale of the change that is being proposed? Where are the boundaries?..."Baroness Cumberlege - View Speech
View all Baroness Cumberlege (Con - Life peer) contributions to the debate on: Health and Care Bill