Question to the Department of Health and Social Care:

To ask His Majesty's Government what steps they are taking to ensure that hospital and community services effectively prevent and manage malnutrition among people with severe and very severe myalgic encephalomyelitis in England.

Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)

We published the final delivery plan for myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), on 22 July, which focuses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease.

The commissioning of ME/CFS services is the responsibility of local integrated care boards based on the needs of their local population. The ME/CFS Final Delivery Plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.

To support healthcare professionals in the diagnosis and management of conditions like ME/CFS, the National Institute for Health and Care Excellence (NICE) published guidance for ME/CFS in October 2021, a copy of which is attached.

It recommends that people with ME/CFS should be referred for a dietetic assessment by a dietitian with a special interest in ME/CFS if they are losing weight and at risk of malnutrition. The guidance also states that clinicians should recognise that symptoms of severe and very severe ME/CFS may mean that people are unable to eat and digest food easily and may need support with hydration and nutrition, and that the support provided could include oral nutrition and enteral feeding.

NICE guidelines are evidence-based, informed by clinical expertise, and represent best practice. Although NICE guidelines are not mandatory, healthcare professionals are expected to take them fully into account.

Question to the Department of Health and Social Care:

To ask His Majesty's Government what assessment they have made of the adequacy of NHS care for patients in England with severe and very severe myalgic encephalomyelitis; and what steps they are taking to improve it.

Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)

We published the final delivery plan for myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), on 22 July, which focuses on boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease.

The commissioning of ME/CFS services is the responsibility of local integrated care boards based on the needs of their local population. The ME/CFS Final Delivery Plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.

To support healthcare professionals in the diagnosis and management of conditions like ME/CFS, the National Institute for Health and Care Excellence (NICE) published guidance for ME/CFS in October 2021, a copy of which is attached.

It recommends that people with ME/CFS should be referred for a dietetic assessment by a dietitian with a special interest in ME/CFS if they are losing weight and at risk of malnutrition. The guidance also states that clinicians should recognise that symptoms of severe and very severe ME/CFS may mean that people are unable to eat and digest food easily and may need support with hydration and nutrition, and that the support provided could include oral nutrition and enteral feeding.

NICE guidelines are evidence-based, informed by clinical expertise, and represent best practice. Although NICE guidelines are not mandatory, healthcare professionals are expected to take them fully into account.

Question to the Ministry of Housing, Communities and Local Government:

To ask His Majesty's Government whether parish and town councils are permitted to spend the neighbourhood portion of Community Infrastructure Levy receipts on the cost of the neighbourhood plan process, including consultation, plan-writing, examination and referendum.

Answered by Baroness Taylor of Stevenage - Baroness in Waiting (HM Household) (Whip)

Community Infrastructure Levy (CIL) receipts must be used for the purposes which are set out in section 216 of the Planning Act 2008 and Part 7 of the CIL regulations.

Local authorities must spend the levy on infrastructure needed to support the development of their area. Where charging authorities collect the levy, they can use up to 5% of funds from the levy to recover the costs of administering the levy.

Where all or part of a chargeable development is within the area of a parish council, the charging authority must pass a proportion of the CIL receipts from the development to the parish council. The ‘neighbourhood portion’ of CIL can be spent on infrastructure or anything else that is concerned with addressing the demands that development places on an area.

Further information on spending the levy is set out in CIL guidance (attached) and which can be found on gov.uk here.