(4 months ago)
Commons ChamberUrgent Questions are proposed each morning by backbench MPs, and up to two may be selected each day by the Speaker. Chosen Urgent Questions are announced 30 minutes before Parliament sits each day.
Each Urgent Question requires a Government Minister to give a response on the debate topic.
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We are actively working with integrated care boards, NHS England, the General Pharmaceutical Council and, indeed, trade unions to ensure that all of these issues are being taken forward and given the urgency that they require. Sadly, as I have pointed out, the regulatory framework is not adequate. It is very focused on pharmacists and pharmacy premises, and inadequately and insufficiently focused on business owners. That is something that must be addressed as a matter of urgency, and we are working on it at pace.
The failure of Jhoots is putting unsustainable pressure on other pharmacies across my constituency, but talks have not even begun on pharmacy funding beyond March of next year. Given the urgent situation with Jhoots, will the Minister review the timescale for those talks so that our pharmacies that are having to pick up this extra work can have some certainty about future funding?
This is absolutely urgent, as the hon. Member rightly says. I have commissioned officials to work on this matter at pace. We can clearly see that this is a matter of national significance simply by the number of colleagues in the Chamber. I can give the hon. Member that assurance, and I would be happy to update him once I have a better sense of the exact timeframe and deadlines. We will be insisting that things happen as a matter of urgency.
(11 months ago)
Commons ChamberI congratulate the hon. Member for Edinburgh South West (Dr Arthur), both on his good fortune in being drawn in the private Member’s Bill ballot and on his wisdom in picking this very important issue to take forward. Having been similarly lucky in being drawn in that ballot a few weeks after I was first elected, nearly a decade ago, I know the barrage of calls and emails that suddenly come your way—the very sudden and slightly fleeting popularity that comes from coming towards the top of the private Member’s Bill ballot—and the very many, very worthy causes and campaigns that come your way for you to choose between. The hon. Gentleman could not have picked a better cause than the one represented by this Bill, and if he is never again quite as popular as he was in the few hours after the publication of the ballot results, I know that he would willingly exchange all of that popularity in an instant for the difference that this legislation can make to so many lives across the country, if and when it is passed and implemented—as we hope it will be.
I stand today not just as a Member of this House but as a friend who is deeply moved by the pain of seeing someone I care about—someone who has become like family—struggle against an insidious disease. This Bill is not just another piece of legislation; it is a cry for help. It is a plea for those who are fighting for their lives—a lifeline for families who are watching their loved ones slip away, bit by bit and day after day. Too often, those diagnosed with rare cancers are left stranded in a system that does not have the answers they need.
We know the wonders that pharmaceutical companies can do in drug development, but the horrible truth is that few people are able or willing to invest the enormous amount of money needed to take forward drug development—knowing that about one in 25,000 drug candidates make it to market—for conditions that will require that drug 1,000 or 2,000 times a year, at most.
Does the hon. Gentleman agree that there is a whole range of new modern immunotherapy drugs that could be used on these cancers? They already exist, they are used to treat other people, but they are simply not tried. The cost of those trials is not overwhelming and we can do them, and the NHS repurposing project should be doing them.
The hon. Lady is obviously right, and I know that she approaches this subject with, tragically, a huge amount of personal experience. We have already seen drugs—in some cases, long-marketed drugs—being applied for new purposes and new conditions. Without those costly clinical trials, they will not be licensed or approved for prescription, and that is why the Bill is so important. Clinical trials are sadly a distant hope for far too many currently, and many patients are left with the crushing, gut-wrenching words, “There is nothing more we can do.” Those words can be a death sentence, but they do not have to be—not if we act.
Many Members and House staff will know my senior parliamentary assistant and dear friend Dan Horrocks. He is best known as the owner of Bella, his therapy shih tzu who he had while he was being treated for his third brain tumour and who is often seen roaming around the Palace and 1 Parliament Street. Dan has worked for me since I was first elected in 2015, but he is not just my senior parliamentary assistant; he has become like family. He is a father, a husband and a four-time cancer survivor. For 14 years, he has fought this monster, each time feeling the ground slip more from under him as his options narrow, leaving him and his family with ever-reducing hope. We have seen him face unimaginable pain. I have watched him endure brain surgeries and radiotherapy, and seen the fear in his eyes each time the disease comes back and he hears his doctors tell him that they do not know how much more his body can take, and whether he can be put through that next course of radiotherapy.
Dan’s journey started with something as simple as headaches, as the hon. Member for Edinburgh South West referred to in another case, that no one thought were serious at the time. As a teenager, three GPs all misdiagnosed that tumour and for unknown reasons, the GPs did not want to send Dan for a scan. A simple scan to check that there were no malign causes would have identified those tumours months earlier. It was a free voucher for an eye test that saved Dan’s life, because it was not until, by sheer luck, an optician noticed something wrong in his eyes that anyone realised the nightmare he was living. That optician saved his life.
What followed has been nothing short of a nightmare: brain tumours, surgeries, radiotherapy and the heart-wrenching hope that every treatment might be the last, only for the disease to rear its ugly head again. Now the cancer has spread to his spine. His doctors and consultants have no answers. His options are dwindling, yet Dan’s fight is far from over, because Dan is not just fighting for himself, but for his two-year-old son, Elijah, who deserves to grow up with his father by his side, cheering him on at his first football match and guiding him through life’s milestones.
Dan dreams of walking his son to school every day and of being there for every moment that really matters, whether it is his graduation or his wedding—the moments that every parent should have the chance to see. He is fighting with his wife, Sonia, who has been his rock through all of this. Sonia has stayed by his side through every hospital visit, through every sleepless night, and through every moment of doubt and fear. Together they have dreamed of a life growing old together, of watching their child grow up, and of building memories that will last forever, but that future is slipping away. That is why we are here today—to ensure that no parent, no family, no child has to face the horror of rare cancer without hope. This Bill is not just about changing laws or regulations; it is about giving families like Dan’s a fighting chance. It mandates a review of the orphan drug regulations to ensure that rare cancers get the investment they so desperately need, creates the national specialty lead to drive research and innovation, and establishes a registry service to help to connect patients to the clinical trials that really could save their lives.
This Bill gives hope—a real chance for families who are facing the unimaginable. I stand here today with a heart full of hope, but also with a heavy heart, because I know that time is not on their side. Dan does not have the luxury of waiting. His family do not have the luxury of waiting. No one diagnosed with rare cancer has that luxury. That is why this Bill is so very urgent. We spend a lot of time in this Chamber talking about politics, but this is not about politics: it is about real people like Dan who desperately need our help.
Cancer does not care about politics. It does not care what background we come from, our age or gender or what party we belong to. It strikes indiscriminately. It takes what it wants, and it leaves devastation in its wake. That is why we must respond with urgency, with compassion and, most importantly, with action. I strongly support this Bill and I urge all hon. Members here today to stand with us, to stand with the families clinging to the hope that there is something more we can do and to stand with those, like Dan, who are fighting for more time, for more moments, for more chances to hold their loved ones close. The cost of inaction is measured not just in money, but in precious lives lost. Let us pass this Bill. Let us give people like Dan and his family the hope they so desperately need. Let us give them a future—a future that is still within reach.
(1 year, 2 months ago)
Commons ChamberThe infected blood scandal is one of the most painful and shameful chapters in the history of the British state. For decades, hundreds of individuals with bleeding disorders and other conditions were infected with HIV, hepatitis B and hepatitis C due to the use of contaminated blood products such as factor VIII and factor IX, which were often imported from overseas. Not only were those infections preventable, but warnings from the medical community were ignored by successive Governments and the national health service.
The victims and their families have endured unimaginable suffering, including the loss of loved ones and social stigma, and, tragically, many have even been blamed for their own illnesses. The health service that was supposed to treat them, heal them and look after them, and the parts of the state that were supposed to protect them, betrayed them. The institutions of this country failed the victims and their families at such a scale that it is almost beyond comprehension.
I am pleased that this subject has been brought forward to be debated today, because a subject as important as this deserves to be thoroughly discussed in the House. As this is my first debate as shadow Minister for the Cabinet Office, I want to put on the record that although there will be much that the right hon. Gentleman and I disagree on, this issue is not one of them. He can be sure of our support as he works to put right a historical wrong, which continues to have a devastating impact on families across the country. This issue is simply beyond party politics. I thank the Paymaster General for updating the House today, and for the tone and tenor that he has already struck in this place since the general election.
The infected blood inquiry, established in 2017 by the former Prime Minister Theresa May, was only started because of the tireless efforts of victims and their families, but it has shed a horrifying light on the true scale of the tragedy. I echo the Paymaster General’s thanks to Sir Brian and his team for the great service that they have given in conducting the inquiry. It stands as a testament to the power of the victims’ voices and to the need for transparency, justice and accountability at all levels.
Although I am here today on behalf of His Majesty’s Opposition, I want to reiterate the words of the previous Prime Minister, my right hon. Friend the Member for Richmond and Northallerton (Rishi Sunak), who apologised on behalf of not only the previous Government, but Governments stretching back to the 1970s. I know that this sentiment is shared by the current Leader of the Opposition and the whole of our party. We are truly sorry that successive Governments and the NHS failed to listen to medical experts, victims and their families, and the inquiry reveals a decades-long moral failure at the heart of our national life. A great many of its victims and loved ones sadly died before they ever saw the truth being acknowledged. I am pleased that this Government and the previous Government have publicly recognised the scale of the damage and acknowledged the mistakes, and, most importantly, are now taking steps to try to make amends and provide support and compensation for the many victims.
We on this side of the House will continue to support the Government’s ambition to make the first payments before the end of this year. It is important that the Government are pushing ahead with the compensation scheme, which is of the size and scale that is rightfully deserved by the victims, including those who are sadly now deceased, and their families, and that it will take into account all the medical, financial and emotional suffering. As I have said, the Minister will have our full support on this side of the House. An apology is, as he has said, meaningless without not just redress but redress at speed.
In addition, I hope that the right hon. Gentleman will be working further with the Health Secretary to help implement stronger medical screening protocols, as well as safety measures to ensure that the UK’s blood supply continues to be safe and free from contamination. A scandal like this cannot be allowed to happen again, so the Government must continue to ensure that the global standards for blood safety are met and regularly updated. This includes improving regulations, where appropriate, around the sourcing of blood products, and constantly updating, where possible, the methods for virus detection.
It is also important that we further enhance training and education for our healthcare professionals regarding ethical practices, patient consent and the safe use of medical products. I know that a lot has changed in the national health service in the nearly 50 years since the start of the scandal, but a key aspect of this total failure was the lack of informed consent and the failure of healthcare professionals to adequately communicate the risks associated with treatment.
As the inquiry has shown, there were numerous cases of disrespectful attitudes towards infected patients, which is completely unacceptable. Patients were often blamed for their condition or treated as though they were a burden. As the inquiry has recommended, training must include the ethics procedures as well as patient-centred care. This scandal, sadly, is a painful case study on what happens when this is not the case. Medical staff in the NHS should always approach patients with dignity and empathy, as we know they almost all do on a daily basis. They should ensure that all risks and benefits are clearly communicated and that the rights of patients are upheld.
Adding to this point, and perhaps more broadly as a society, we must continue the great work of recent years on destigmatising those with conditions such as HIV and hepatitis—I note the exceptional work of the Terrence Higgins Trust on the former in particular. As has been said, the victims of the infected blood scandal were victims not only of the NHS and the many Governments’ failings, but of social stigma and discrimination. As the inquiry found, they faced vilification despite the fact that many had received contaminated blood products through the same NHS that was blaming them through no fault of their own. I encourage the Government to continue with public education campaigns to combat the stigma surrounding blood-borne viruses and HIV, as well as implementing better protections in the workplace and public life, so that we can be sure that those infected are not subject to the pain of further discrimination.
I would like to put on record my own thanks to the brave victims and their families. As I said at the start of my speech, we would not be here today if it was not for them and for their campaigning; their hard work; their faith to keep going when nothing seemed to be changing; and, when the message simply did not seem to be getting through, their relentless will to fight, knowing that a great injustice had been done; and their love for their friends and family members, many of whom are sadly no longer with us today, who are all impacted by this terrible situation. Their courage is truly awe-inspiring, and no amount of compensation will ever undo the great tragedy, so great is the pain and suffering they have been through.
I sincerely hope that they will have some peace one day; peace in the knowledge that their Government and their health service have listened, and that all their hard years of campaigning, and the abuse and vile vitriol that many have faced, were not for nothing. In the end, after far too long, they have indeed been heard, and because of all their combined efforts and sacrifices, we can now come together to ensure that nothing like this ever happens again.
They have moved the nation and this Parliament with their deeply personal stories, and we are all deeply sorry for everything they have been through and for everything and everyone they have lost. I thank them all for their extraordinary bravery.
(1 year, 4 months ago)
Commons ChamberI pay tribute to John Snow and, indeed, my hon. Friend’s constituents, who have rallied around him at his time of need. This matter highlights the need to have better joined-up care to ensure that people who have sepsis receive the best care possible, that those who tragically lose limbs as a consequence of sepsis are able to have good-quality aftercare, and that we continue to raise awareness of sepsis and the risks it poses.
We think that about 48,000 people a year lose their lives to sepsis, but the truth is that we do not know, because the data is inconsistent. Will the Minister look at establishing a national registry to track sepsis cases, so that performance can be measured, published and improved?
Given the national standards and framework that have been put in place in this regard, I hope very much that the NHS will be able to do precisely what the hon. Gentleman wants it to do.
(1 year, 4 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
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I congratulate the hon. Member for Ashfield (Lee Anderson) on securing this debate on such an important issue, which is very close to my heart personally. I hope that hon. Members will forgive me if I start by just speaking about myself a little.
In January 2017 after the Christmas break, I came back to Parliament, like many colleagues did, with a bit of a cold. Of course, we carry on working—after all, it is just a cold. Weeks went by and it was getting a bit worse, so I took a course of antibiotics. I suspect, like the hon. Gentleman, a seven-day course of antibiotics very rarely clears up an infection for a gentleman of my physique. Within a short period, the infection was starting to come back and I had a sore throat. Nevertheless, it was only a sore throat, so I went out to Strasbourg for the Parliamentary Assembly of the Council of Europe meeting that week, and while there, my condition deteriorated.
I was feeling really grotty on the Tuesday morning so I just stayed in my hotel room. On Wednesday, things were so bad that I asked someone to do me a favour and go to a chemist. By Thursday, they had got so terrible that I booked an appointment with a GP in Strasbourg, which, as a typical man, was very much a last resort. The GP did the normal checks—blood pressure and the like—and gave me a throat spray. I was feeling pretty awful, so I flew back that evening and struggled through constituency events on Friday. By Saturday morning, I was getting up and putting on my suit on top of my pyjamas and telling my wife that I had to come down to Westminster to vote. She recognised that that was not entirely typical behaviour and phoned for an ambulance.
Within a few hours I was in an induced coma. I remained in a coma for the next 11 days after a septic shock diagnosis. The consultants told my family I had about a 10% chance of surviving and that if I were to pull through it would almost certainly be with life-changing effects—amputations, brain damage or other severe effects. Fortunately, of course, I was extremely and unbelievably lucky, largely because of the amazing care that I received from the staff at Russells Hall hospital in Dudley. Above all, I was lucky that on that Saturday morning as I presented at A&E, the nurse walking past happened to recognise that the symptoms, which looked much like any number of other conditions, particularly meningitis with a rash, could be sepsis.
Sepsis is a life-threatening condition. It is a response to infection that can lead to tissue damage, organ failure and death if not treated promptly. Despite its severity, the number of deaths and the many, many other people left with their lives fundamentally changed by sepsis, very few people are able to spot the signs, which of course delays diagnosis and treatment. Even the GP in France, who I am sure was an extremely well qualified and professional physician, did not spot that my symptoms could be sepsis.
That lack of awareness contributes to the staggering statistics that the hon. Member for Ashfield went through. There are around 48,000 deaths a year in the United Kingdom due to sepsis, which means that by the end of this 60-minute debate, the chances are that five more people will have lost their lives to sepsis. A further 25 people will have had their lives changed by sepsis. Globally, it affects around 49 million people, with probably around 11 million losing their lives each year. There is a growing body of opinion that believes that the majority of covid deaths were probably covid deaths where the infection triggered a septic response.
I keep saying “probably” because, frightening as the figures are, they are best guesses. We do not know. Although the reporting in the United Kingdom is better than in almost any other country, it is still not consistent. It is possible that a death will be recorded just as a multiple organ or respiratory failure despite it being a case of sepsis or of septic shock. It is important that we step up to the challenge of reducing those deaths, which, as has been said, represent more than the number of lives lost to breast, bowel and prostate cancers combined every single year. We need a sepsis register so that we know how many cases there are and how those cases progress.
One of the most alarming aspects of sepsis is that it often goes unrecognised until it is too late. I was lucky that it was spotted as I presented at A&E—even two or three hours later might have made the difference between a 10% chance of survival and a quite minuscule chance. Our friend and former colleague Lord Mackinlay was similarly fortunate; although his condition deteriorated at an astonishingly rapid rate, it was caught just in time for him to survive.
Early identification and diagnosis are important because, in most cases, timely broad-based intravenous antibiotics will be enough to stop the infection from triggering a septic response. Promoting Sepsis Awareness Month is therefore not just about sharing statistics or stories; it is about saving lives. By educating the public and healthcare professionals about the signs and symptoms of sepsis, we can ensure that more people receive the urgent care they need.
The UK Sepsis Trust, which does so much amazing work and is led by the incredible Dr Ron Daniels, has a three-point plan that we all need to get behind. We need to be able to measure and publish performance data on sepsis care pathways, so that we can see how they are responded to and can measure successes and where things have not been done correctly. We need fast and reliable diagnostics, to allow those on the frontline to make the correct decisions quickly, without lengthy waits for test results to be returned from central laboratories. We also need to increase awareness of sepsis, as the hon. Member for Ashfield is doing so well with his debate today, to ensure that medical professionals and the public are able to ask the question: could it be sepsis?
I am speaking with a slightly croaky throat, but I am fairly sure that this time it is not the strep B infection that triggered that septic shock in January 2017. I can be confident because, unlike nearly eight years ago, I am all too aware of the signs and symptoms of sepsis: slurred speech or confusion, extreme shivering or muscle pain, passing no urine for a day or more, severe breathlessness, skin that is mottled or discoloured, and a feeling normally described as “like you are going to die.” Having had it, I would say, “It feels like you want to die.”
If the public and healthcare professionals across the system are aware, can look out for those six signs, and ask that question—could it be sepsis?—then many more lives could be saved. Sepsis could then be spotted earlier in people like Abbi, whom the hon. Gentleman spoke so movingly about, and Lord Mackinlay, and we can ensure that life-changing conditions can be dealt with far sooner.