Endometriosis Services Debate
Full Debate: Read Full DebateAdam Dance
Main Page: Adam Dance (Liberal Democrat - Yeovil)Department Debates - View all Adam Dance's debates with the Department of Health and Social Care
(1 day, 11 hours ago)
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Adam Dance (Yeovil) (LD)
I thank the hon. Member for Ipswich (Jack Abbott) for securing this vital debate, and the public who are attending in the Gallery.
“I believe you have endometriosis.” When Ami heard those words, she broke down in tears, not because she was scared but because, after 22 long years of unbelievable pain—of being dismissed or told, “It’s your weight,” or, “You are too stressed”—someone finally believed her. In January this year, she had surgery, which confirmed that she had endometriosis. It had progressed so far that both her fallopian tubes were blocked. She is now permanently infertile. Just like that, her dream of starting her own family was over, not because she did not try or because nothing was wrong, but because she was ignored and dismissed. Understandably, that is something that she can never forgive or forget.
Identifying endometriosis is complex, but Ami and too many other women have been utterly failed by our health service. I have one constituent who was so routinely misdiagnosed that it was implied she just had a sexually transmitted infection. Olivia has been waiting in limbo for six months at a time to find out if she can get a diagnosis appointment anywhere in Somerset.
It is a disgrace that women feel that their voice is not enough when it comes to their own health. It is obvious that awareness of endometriosis is far too low among the public and healthcare professionals. Women are waiting far too long to get access to diagnosis and treatment services.
I have two asks for the Minister on behalf of Ami, Olivia and many other women in Yeovil who have gone through the unthinkable. First, will she work with experts and patients to develop better public health messaging, awareness campaigns and greater training for primary healthcare professionals on endometriosis? Secondly, will she meet Ami and others to discuss their cases and explore how the NHS can not only learn from them but formally apologise and offer redress?
That was an excellent intervention, I have to say; I am glad that we will all be out of here in time to go and enjoy that. For the ladies and gentlemen in the Gallery, do not worry: it is free entry and no invite is needed. I thank my hon. Friend the Member for Erith and Thamesmead (Ms Oppong-Asare) for all she does on women’s health. She has led the way, more than most in Parliament, on the issue in her time here. That is recognised, and I thank her for it.
We are hopefully shifting the centre of gravity of care from hospitals to communities, with neighbourhood services designed around local need. Earlier this month, we published a neighbourhood health framework, setting out three reform agendas for ICBs, local authorities and civil society to deliver the aims of neighbourhood health. We have done this to improve services for people who need routine healthcare; to improve proactive care, including maintaining and developing access to women’s health services; and to deliver better alternatives to hospital care.
Adam Dance
Ami is at home watching, and thanks everyone for speaking, but one of the things she said would help her is continuity in seeing the same GP. As we heard earlier, it took 22 years for her to be diagnosed. The other issue she faces is that she cannot have children, and raising the limit for fertility treatment would be helpful. Will the Minister arrange to meet Ami with me?
I am grateful to the hon. Gentleman for bringing the details of Ami’s case to us. Waiting 22 years for a diagnosis is shocking, and I suppose it would have been very difficult to have continuity of care over such a long time, but I take on board the point that he makes. When we—myself included—go to the GP, we often see a different person every time. As I said, this is not my brief, so I will feed his request for a meeting back to the Minister for Secondary Care. I cannot promise on her behalf, but we have heard his request.
The framework I was just outlining provides clarity and consistency, supporting joined-up partnership between ICBs and local authorities, working together to develop locally led neighbourhood health plans. This will hopefully address some of the concerns raised by the hon. Member for Yeovil (Adam Dance) about continuity of care.
Since coming into office, this Government have delivered over 5 million extra appointments in our first year; reduced the numbers on gynaecological waiting lists by over 24,000 women; and given women easier access to the morning-after pill, free of charge. A lot done; a lot more to do. We have made strong progress in turning the commitments in the last Government’s women’s health strategy, which the hon. Member for Hinckley and Bosworth highlighted, into tangible action. Our renewed strategy will set out how this Government are taking further steps to improve women’s health as we deliver the 10-year health plan. It will address gaps from the 2022 strategy, and go further to create a system that listens to women, tackles health inequalities and makes progress on conditions such as endometriosis.
Renewing the strategy will help identify and remove enduring barriers to high-quality care, such as long waits for diagnosis, and will ensure professionals listen and respond to women’s needs. I thank my hon. Friend the Member for Ipswich for bringing forward this important debate, and all hon. Members for sharing so many of their constituents’ stories. I give special thanks to Monica and all the women who are in the Public Gallery to bear witness and push us to do more. We have heard them, and I commit to doing what I can to ensure that their efforts have not been in vain.