Parkinson’s Disease

Alison Bennett Excerpts

Monday 17th November 2025 Westminster Hall

[Alison Bennett (Mid Sussex) (LD)]

It is a pleasure to serve under your chairship, Ms Lewell. I would like to begin by thanking the hon. Member for Colne Valley (Paul Davies) for securing this debate and for making such a well-articulated case for why more needs to be done to support people with Parkinson’s. I also thank him for mentioning the Big Sing, which brought to mind a brilliant event I went to in July: Picnic in the Park, hosted by the Parkinson’s UK Mid Sussex group. Their choir and their band were there, and we all had a brilliant singalong. I very much enjoyed it, and I pay tribute to the group for what it is doing—bringing people together and reducing isolation, both for those with Parkinson’s and their loved ones.

There are people like my constituent Sophie, whose mum Janet was diagnosed with Parkinson’s six years ago. Janet was active, spoke multiple languages and had an impressive career in business, but Sophie says that Parkinson’s has robbed Janet of much of who she is. Despite raising the loss of her sense of smell with her GP several times, as well as other symptoms such as increasingly small handwriting, it still took more than five years for Janet to get a diagnosis.

We know that Parkinson’s predominantly affects men, but much less is known or understood about Parkinson’s in women, including how symptoms might interact with menstrual cycles and the menopause. Sophie worries that the dismissive response Janet received when trying to get a diagnosis may be a very common experience for women across the board, and I think Sophie may be on to something here.

The e-petition bringing forward the Parky charter matters profoundly, and it makes a lot of sense. I will not spend time repeating many of the points that hon. Members have made in the past hour.

[Rachel Gilmour]

Does my hon. Friend agree that the challenges faced by those living with Parkinson’s are far from isolated, and that across neurological conditions such as Parkinson’s, multiple sclerosis, ME or chronic fatigue syndrome, there are calls for a joined-up neuro-optimal care pathway? A coherent national strategy is what is required.

[Alison Bennett]

My hon. Friend makes her point very well, and I agree with it.

Rather than repeat what other hon. Members have said, I will move to identifying the three or four main areas that the Liberal Democrats want to highlight, hopefully giving the Minister more time to address the many points that hon. Members have raised so far in the debate. Those issues are mental health, social care, work and medicines availability.

On mental health—and I think this is a critical point—nearly half of people with Parkinson’s experience anxiety or depression, and up to 60% will experience psychotic symptoms as the condition progresses. Yet mental health support remains inconsistent and inadequate generally, and specifically for people with Parkinson’s.

[Olly Glover (Didcot and Wantage) (LD)]

My hon. Friend is quite right to highlight the importance of mental health support for people suffering from Parkinson’s disease. Will she join me in paying tribute to my constituent Peter Cook, who is doing great work as a trustee of the Parkinsons.Me charity, and also to Paul Mayhew-Archer MBE, who, as well as having written “The Vicar of Dibley,” is now doing fantastic work campaigning for people suffering from Parkinson’s disease?

[Alison Bennett]

Of course I am happy to join my hon. Friend in paying tribute to Peter Cook and to Paul Mayhew-Archer for their campaigning.

The Liberal Democrats believe that people deserve regular mental health check-ups, access to walk-in mental health hubs and timely specialist dementia care. No one should have to fight the system while they are already fighting their condition. Social care is a crisis that cannot be ignored any longer. Parkinson’s is a progressive and fluctuating condition that affects every aspect of daily life, yet people are too often left without the support that they need to live with dignity.

[Manuela Perteghella (Stratford-on-Avon) (LD)]

Does my hon. Friend agree that diagnosis is just the beginning, because too many people tell us that after receiving that life-changing news, they just feel abandoned? Nearly one quarter receive no information about Parkinson’s services and no adequate information about their condition, so does my hon. Friend agree that we need to ensure that they receive that?

[Alison Bennett]

I am happy to agree. My hon. Friend makes an excellent point, and it also applies to the loved ones of people receiving a Parkinson’s diagnosis.

We need better social care for all people when they are faced with a disability. We need there to be more respite breaks, paid carer’s leave and a system that recognises the specific needs of people with neurological conditions.

On work—here I am thinking in particular of my friend Rob, whom many of my hon. Friends will also know—we must ensure that people who have Parkinson’s and are of working age can live and work and participate in work with independence and dignity wherever possible. That is why my Liberal Democrat colleagues and I are fighting for a new right to flexible working, and the right to work from home for every disabled person unless there is a significant business reason otherwise.

The Liberal Democrats also want to adopt a new accessibility standard for public spaces and embed in UK law the UN convention on the rights of persons with disabilities. We want to ensure that support moves with the person and does not just stay with the original employer. That is why we are calling for adjustment passports—records of the modifications, equipment and adjustments that a disabled person uses—so that when they change jobs, their support goes with them. That seems to be plain common sense.

On medicines and their availability, we must speed up access to new treatments. It is simply unacceptable that the Medicines and Healthcare products Regulatory Agency has seen its workforce cut.

[Tom Hayes (Bournemouth East) (Lab)]

I want to commend the Poole and District Branch of Parkinson’s UK but also, on that particular point, tell the story of Carla, whose husband was affected by a lack of access to time-critical medication. Does the hon. Member agree that it is critical that the Government do everything they can to speed up access?

[Alison Bennett]

I agree wholeheartedly.

The MHRA workforce has been cut by 40%, and that has slowed down the arrival of new therapies for people who desperately need them. We should be halving the time it takes for new treatments to reach patients, not lengthening it.

None of this is impossible. It requires us to listen to people living with Parkinson’s—really listen to their fears, needs, hopes and experiences. The Parky charter sets out a clear and achievable path. It demands dignity and fairness, and that the Government finally deliver the timely, specialist, compassionate care that every person with Parkinson’s—like Sophie’s mum, Janet—should be able to count on. Today, let us send a message to everyone living with Parkinson’s: we see you; we hear you; and we stand with you. I want to send an equally clear message to the Government and the Minister, whom I thank for being here today: the time for half measures and for excuses is over. The time to act—seriously, decisively and with compassion—is now.