Parkinson’s Disease Debate
Full Debate: Read Full DebateRachel Gilmour
Main Page: Rachel Gilmour (Liberal Democrat - Tiverton and Minehead)Department Debates - View all Rachel Gilmour's debates with the Foreign, Commonwealth & Development Office
(1 day, 11 hours ago)
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The hon. Gentleman has eloquently described the very real problem of what happens after diagnosis.
Sitting alongside the Government’s workforce plan, a new, modern service framework for neurological conditions would set clear, evidence-based objectives and standards for care delivery.
Alison Bennett (Mid Sussex) (LD)
It is a pleasure to serve under your chairship, Ms Lewell. I would like to begin by thanking the hon. Member for Colne Valley (Paul Davies) for securing this debate and for making such a well-articulated case for why more needs to be done to support people with Parkinson’s. I also thank him for mentioning the Big Sing, which brought to mind a brilliant event I went to in July: Picnic in the Park, hosted by the Parkinson’s UK Mid Sussex group. Their choir and their band were there, and we all had a brilliant singalong. I very much enjoyed it, and I pay tribute to the group for what it is doing—bringing people together and reducing isolation, both for those with Parkinson’s and their loved ones.
There are people like my constituent Sophie, whose mum Janet was diagnosed with Parkinson’s six years ago. Janet was active, spoke multiple languages and had an impressive career in business, but Sophie says that Parkinson’s has robbed Janet of much of who she is. Despite raising the loss of her sense of smell with her GP several times, as well as other symptoms such as increasingly small handwriting, it still took more than five years for Janet to get a diagnosis.
We know that Parkinson’s predominantly affects men, but much less is known or understood about Parkinson’s in women, including how symptoms might interact with menstrual cycles and the menopause. Sophie worries that the dismissive response Janet received when trying to get a diagnosis may be a very common experience for women across the board, and I think Sophie may be on to something here.
The e-petition bringing forward the Parky charter matters profoundly, and it makes a lot of sense. I will not spend time repeating many of the points that hon. Members have made in the past hour.
Rachel Gilmour
Does my hon. Friend agree that the challenges faced by those living with Parkinson’s are far from isolated, and that across neurological conditions such as Parkinson’s, multiple sclerosis, ME or chronic fatigue syndrome, there are calls for a joined-up neuro-optimal care pathway? A coherent national strategy is what is required.
Alison Bennett
My hon. Friend makes her point very well, and I agree with it.
Rather than repeat what other hon. Members have said, I will move to identifying the three or four main areas that the Liberal Democrats want to highlight, hopefully giving the Minister more time to address the many points that hon. Members have raised so far in the debate. Those issues are mental health, social care, work and medicines availability.
On mental health—and I think this is a critical point—nearly half of people with Parkinson’s experience anxiety or depression, and up to 60% will experience psychotic symptoms as the condition progresses. Yet mental health support remains inconsistent and inadequate generally, and specifically for people with Parkinson’s.