UK Biobank Data

Allison Gardner Excerpts

Thursday 23rd April 2026 Commons Chamber

[Ian Murray]

I pay tribute to the Belfast universities and the way in which they have advanced research. As has already been mentioned, tens of thousands of individual accredited researchers use UK Biobank regularly, as do thousands of institutions across the globe. We need to ensure that the system is safe, so that volunteers participating in the system can be assured that their data is safe and secured, and that is why it has been paused.

The hon. Gentleman challenges me on whether Belfast universities have been affected by this issue. They will be affected by it in the short term, because there is currently no access to the system, but we hope that that will be resolved. I understand from UK Biobank and from officials that they have been in talks with the pharmaceutical industry and researchers in the field to see whether that would cause a problem, and as long as this situation is temporary, it should not. They will technically be affected in the short term until access is fully recovered.

[Dr Allison Gardner (Stoke-on-Trent South) (Lab)]

From my previous work with the AI and Digital Regulations Service, and as a scientist, I know that UK Biobank is an excellent resource, which furthers scientific research for the benefit of my health and my constituents. In particular, it is working very hard to ensure that its dataset is unbiased and representative of all peoples in our communities in our country. Will the Minister again reassure us that the data is scrupulously anonymised and that deanonymisation is exceptionally difficult and unlikely? Will he confirm that although UK Biobank is a charity and independent of Government, we will continue to support its work once it has addressed the processes that caused this breach?

[Ian Murray]

Yes, I can give that assurance. This Government are giving UK Biobank all the support that it requires to resolve the immediate issue and in the short term to get the system back up and running in as secure a way as possible. Let me echo that participants in UK Biobank have done a great service to the people of this country and around the world. We owe it to them to be transparent and secure, and to ensure that their data is not only safe but advancing UK and worldwide medical research for the benefit of everyone.