Sudden Cardiac Death in Young People

Debate between Ashley Dalton and Fleur Anderson

Monday 15th December 2025 Commons Chamber

[Ashley Dalton]

The hon. Member will know that all vaccines are assessed and are not issued unless they are considered safe. We collect data on conditions and potential impacts right across the medical estate. I have not seen any data that would suggest there is a link to any particular vaccine, but if there is, the data would show us that and it would be considered.

My hon. Friend the Member for Harlow and I stood on a manifesto to tackle the biggest killers, including cardiovascular disease, to halve the gap in healthy life expectancy between the richest and poorest regions in England, and to reverse the legacy left to us by the previous Government. Through his work with the CRY campaign and everything he said in the Chamber this evening, it is evident that he is staying true to those promises. I also thank my hon. Friend the Member for North West Leicestershire (Amanda Hack) for further highlighting the work of CRY. Any MP who campaigns on prevention is pushing at an open door with this Government. We are shifting the focus of our NHS from sickness to prevention. As my hon. Friend the Member for Harlow rightly points out, it is a tragedy when young lives are lost to preventable illness. He and others make a powerful case for a national screening programme, so let me address that point head-on.

I fully support a national screening programme, as long as the experts agree that it would do more good than harm. Our National Screening Committee gives advice based on a range of factors and while balancing the pros and cons of screening population level groups, the committee has previously given evidence that introducing mass screening for sudden cardiac death could cause harm by misdiagnosing some people. For example, receiving a false diagnosis could lead to people being prescribed medication they do not need; people undergoing medical procedures they do not need, such as having an implantable defibrillator fitted; and people living in fear of sudden cardiac death when they are not genuinely at risk. However, the committee is currently reviewing the evidence for sudden cardiac death screening and will open a public consultation in early 2026. We will look carefully at the findings of the consultation and I know that the CRY campaign will make its voice heard.

Several Members discussed defibrillators, and their training and use. NHS England runs training sessions on first aid, CPR and the use of defibrillators both in the community and in schools under the Restart a Heart programme. NHS England has trained over 35,800 adults and children in CPR and defibrillator use in the past 13 years, and 2,134 so far this year. NHS England delivers the sessions via its resuscitation team and via its community first responders, and also runs lifesaving skills workshops for harder to reach communities and ethnically diverse groups. It has trained 407 people in lifesaving skills in that group so far this year.

It is important to remember the care and support that loved ones receive when they lose a loved one to sudden cardiac arrest, or when they find out that a family member has an inherited heart condition. NHS England’s service specification sets out how that care should be provided by specialist teams in a way that is tailored to meet the needs of families.

[Fleur Anderson]

I thank the Minister for giving way and for the good news about looking into the possibility of rolling out screening across the whole country, especially bearing in mind the evidence from Italy, where the good has been shown to outweigh the potential downsides. I look forward to getting involved in that consultation. The amount of training on CPR and the use of defibrillators has been extensive. The choice of song to sing along to, to get the rhythm right, is really important. Will the Minister share with us whether she would use “Stayin’ Alive” or “Pink Pony Club” as her defibrillator singalong song?

[Ashley Dalton]

I think “Stayin’ Alive” is a bit of a sharp one, really, isn’t it? Given that once “Pink Pony Club” is in my head I cannot get rid of it for weeks, I think I will probably opt for that one! My hon. Friend makes a really important point, which is that learning CPR and how to use a defibrillator properly is a crucial life skill. I am really pleased and proud that NHS England is continuing to roll that out in our schools and communities.

NHS England is also keeping under review the specialist service specification for providing care to families, working closely with the Association for Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice and the British Heart Foundation. We are also working with the NHS genomics programme to align the service specification with genomics resources. I will talk briefly about our vision of genomics.

We are going through a revolution in medical science that means we can transform the NHS over the coming decade from a service that diagnoses and treats ill health to one that can predict and prevent it. If we can harness the power of life sciences to the health service, we can achieve many of the aims my hon. Friends and others have set out today. Within a decade, every newborn will undergo whole genome sequencing, which assesses future risk of hundreds of diseases, including cardiovascular conditions. Every baby will have their DNA mapped, allowing people to receive tailored healthcare, long before symptoms begin.

Those advances could one day put an end to blanket screening and rudimentary health MOTs. Instead of mass screening, increasingly patients will be offered personalised health checks and targeted medicines far earlier, and adverse drug reactions will be avoided. That will help to transform the NHS from a reactive healthcare system into a proactive one. This ambition will be funded by a £650 million boost to genomics as part of the Government’s life sciences sector plan. We are just scratching the surface of what genomics, gene editing and life sciences can do.

Under this Government, NHS waiting lists are falling, ambulances are arriving faster, and we are lifting hundreds of thousands of kids out of poverty. Our 10-year plan is building on the founding principle of the NHS so that it provides healthcare free at the point of risk, not just at the point of need, and now we are shifting the focus of our NHS from sickness to prevention. Wherever we can go further on prevention, we will.

I have heard the case made by my hon. Friend the Member for Harlow this evening. He is a powerful advocate for those who have lost loved ones to sudden cardiac death, and we are listening to him and others who are pushing us to go further. I shall update him and, of course, the House next year, following the review of evidence and the public consultation.

Question put and agreed to.

Myalgic Encephalomyelitis

Debate between Ashley Dalton and Fleur Anderson

Wednesday 19th November 2025 Westminster Hall

[Ashley Dalton]

I will come later in my remarks to the training that is being rolled out as part of the delivery plan.

Myalgic encephalomyelitis—better known as ME—and chronic fatigue syndrome, which I will refer to from now on as ME/CFS, is a condition that affects an estimated 390,000 people in the UK. Its symptoms can be profoundly debilitating, impacting every aspect of daily life, from work and education to family and social life. For those with severe or very severe ME/CFS, even basic tasks such as sitting up, eating or speaking can become impossible. We recognise the devastating impact this condition has on individuals and families. For too long, people with ME/CFS have faced stigma, misunderstanding, disbelief and inconsistent care.

[Fleur Anderson (Putney) (Lab)]

The Minister is a passionate advocate for women’s health. Does she agree that the reason for this disease often being overlooked and for the stigma she has talked about is that women are five times more likely than men to get it? Will she support clear funding, accountability and deadlines within the welcome plan that has been delivered, and a service for very severe ME for all ICBs?

[Ashley Dalton]

I recognise my hon. Friend’s points, and I will cover some of them in my remarks. She will be aware that the women’s health strategy is currently being refreshed, so we hope to dovetail wherever possible.

I want to set out the steps that this Government are taking to change the misunderstanding, stigma and inconsistent care that patients have experienced. Through our ME/CFS final delivery plan, we will deliver better care, boost research and ensure that every person living with ME/CFS is treated with dignity and compassion.

First, let us acknowledge the reality. ME/CFS is a complex multi-system condition. Its fluctuating nature makes diagnosis and management challenging. Historically, services have been extremely varied, and in some cases patients have felt dismissed or rejected by the healthcare system. That is unacceptable. We have heard those concerns loud and clear through our extensive consultation on the interim delivery plan and through ongoing engagement with patients, carers, clinicians, researchers and charities. Last year’s prevention of future deaths report following the tragic death of Maeve Boothby O’Neill further highlighted the urgent need for reform, pointing to a lack of specialist beds and inadequate training for clinicians. We cannot and will not allow such failings to continue.

In July, we published the ME/CFS final delivery plan, marking a significant milestone in our commitment to improving lives. The plan is built around three core themes: boosting research, improving attitudes and education, and enhancing care and support. With a clear commitment to ensure that people with ME/CFS can live as independently as possible and see their overall quality of life enhanced, that plan will help us to take an important step towards achieving that, but we acknowledge that there is more to do. We will continue to build on the foundation of those actions well beyond the publication of the plan. It is the springboard—the beginning, not the end.

Although the final delivery plan does not include every suggestion received through the consultation responses or through the task and finish group, it does not mean that those proposals will not be considered in the future, subject to resource and funding. We look forward to continuing those conversations.