Asked by: Cameron Thomas (Liberal Democrat - Tewkesbury)
Question to the Cabinet Office:
To ask the Minister for the Cabinet Office, what recent assessment he has made of the adequacy of neurodiversity training and accountability across civil service departments.
Answered by Anna Turley - Minister without Portfolio (Cabinet Office)
We do not have any specific neurodiversity training available to all Civil Service departments. Civil Service Expectations is an e-learning course for all civil servants which explains why inclusion, diversity and equality is important to the Civil Service and the citizens it serves. We do not actively monitor the training of other departments and departments have delegated authority to develop learning that aligns to their organisational requirements.
Asked by: Cameron Thomas (Liberal Democrat - Tewkesbury)
Question to the Cabinet Office:
To ask the Minister for the Cabinet Office, what steps his Department is taking to strengthen neurodiversity awareness to ensure that every public servant can thrive equally in the workplace.
Answered by Anna Turley - Minister without Portfolio (Cabinet Office)
The Cabinet Office is taking a range of steps to strengthen neurodiversity awareness and support available. We have established a dedicated Neurodiversity Network, which provides a platform for colleagues to share lived experiences and access resources that promote understanding of neurodiversity across the department and has a senior active Neurodiversity Champion.
A Disability Line Manager Toolkit has been launched this year providing clear guidance on recognising neurodiversity, outlines common neurodivergent conditions, and highlights key statistics to build awareness among managers. It also explains the support available within the department, including the Workplace Adjustments Passport.
Sessions on the importance of neurodiversity, hosted by our Cabinet Office Diversity Network Champion and Diversity and Inclusion team are run, to help deepen insight and encourage inclusive working practices and we use Line Managers calls to raise awareness.
In addition, the Business Disability Forum, delivers regular Lunch and Learn events on neurodiversity. These sessions provide practical guidance, share best practice, and support managers and teams in fostering an inclusive culture.
Asked by: Cameron Thomas (Liberal Democrat - Tewkesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to help improve recruitment and training of specialists in Ehlers-Danlos syndromes.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
We recognise that doctors can find it challenging to diagnose Ehlers-Danlos syndrome (EDS) because of the wide range and variability of symptoms, and that the most common type, hypermobile EDS, currently has no specific genetic test.
Resources such as the Royal College of General Practitioners’ EDS Toolkit, now maintained by Ehlers-Danlos Support UK, are helping general practitioners (GPs) to better recognise, respond to, and manage EDS and hypermobility spectrum disorders (HSD) in primary care. For rarer genetically confirmed types of EDS, NHS England commissions a national diagnostic service for EDS.
A primary goal of the national diagnostic service is to educate referring doctors about the diagnosis, investigation, and management of patients with complex and atypical forms of EDS. While the service focuses on rare types and accepts referrals from secondary and tertiary care, its development of guidelines and educational initiatives also benefit GPs who are on the front line of patient care.
Through the 10-Year Health Plan, we are introducing neighbourhood health centres, and deploying multidisciplinary teams to provide holistic support to people with EDS. Patients will benefit from enhanced NHS App functionality, including My Medicines and My Health, and will be able to self-refer to specialist services where appropriate.
Additionally, the 10-Year Health Plan’s commitments on artificial intelligence will give clinicians advanced tools for faster diagnosis, predictive analytics, and personalised care planning. For people with long-term conditions like EDS, this means earlier interventions, better monitoring of complex needs, and more time for clinicians to focus on patient-centred care rather than administrative tasks. The plan also commits to 95% of people with complex needs to have a personalised care plan by 2027.
The Government will publish the 10 Year Workforce Plan in spring 2026. It will set out action to create a workforce ready to deliver the transformed service set out in the 10-Year Health Plan. By setting out how we will train and provide the staff, technology, and infrastructure the NHS needs, the 10 Year Workforce Plan will ensure that services are more accessible, proactive, and tailored for all patients, including those with EDS.
Asked by: Cameron Thomas (Liberal Democrat - Tewkesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to help improve treatment and specialist care of those with Ehlers-Danlos syndromes.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
We recognise that doctors can find it challenging to diagnose Ehlers-Danlos syndrome (EDS) because of the wide range and variability of symptoms, and that the most common type, hypermobile EDS, currently has no specific genetic test.
Resources such as the Royal College of General Practitioners’ EDS Toolkit, now maintained by Ehlers-Danlos Support UK, are helping general practitioners (GPs) to better recognise, respond to, and manage EDS and hypermobility spectrum disorders (HSD) in primary care. For rarer genetically confirmed types of EDS, NHS England commissions a national diagnostic service for EDS.
A primary goal of the national diagnostic service is to educate referring doctors about the diagnosis, investigation, and management of patients with complex and atypical forms of EDS. While the service focuses on rare types and accepts referrals from secondary and tertiary care, its development of guidelines and educational initiatives also benefit GPs who are on the front line of patient care.
Through the 10-Year Health Plan, we are introducing neighbourhood health centres, and deploying multidisciplinary teams to provide holistic support to people with EDS. Patients will benefit from enhanced NHS App functionality, including My Medicines and My Health, and will be able to self-refer to specialist services where appropriate.
Additionally, the 10-Year Health Plan’s commitments on artificial intelligence will give clinicians advanced tools for faster diagnosis, predictive analytics, and personalised care planning. For people with long-term conditions like EDS, this means earlier interventions, better monitoring of complex needs, and more time for clinicians to focus on patient-centred care rather than administrative tasks. The plan also commits to 95% of people with complex needs to have a personalised care plan by 2027.
The Government will publish the 10 Year Workforce Plan in spring 2026. It will set out action to create a workforce ready to deliver the transformed service set out in the 10-Year Health Plan. By setting out how we will train and provide the staff, technology, and infrastructure the NHS needs, the 10 Year Workforce Plan will ensure that services are more accessible, proactive, and tailored for all patients, including those with EDS.
Asked by: Cameron Thomas (Liberal Democrat - Tewkesbury)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to help ensure that people with Ehlers-Danlos syndromes are quickly and accurately diagnosed.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
We recognise that doctors can find it challenging to diagnose Ehlers-Danlos syndrome (EDS) because of the wide range and variability of symptoms, and that the most common type, hypermobile EDS, currently has no specific genetic test.
Resources such as the Royal College of General Practitioners’ EDS Toolkit, now maintained by Ehlers-Danlos Support UK, are helping general practitioners (GPs) to better recognise, respond to, and manage EDS and hypermobility spectrum disorders (HSD) in primary care. For rarer genetically confirmed types of EDS, NHS England commissions a national diagnostic service for EDS.
A primary goal of the national diagnostic service is to educate referring doctors about the diagnosis, investigation, and management of patients with complex and atypical forms of EDS. While the service focuses on rare types and accepts referrals from secondary and tertiary care, its development of guidelines and educational initiatives also benefit GPs who are on the front line of patient care.
Through the 10-Year Health Plan, we are introducing neighbourhood health centres, and deploying multidisciplinary teams to provide holistic support to people with EDS. Patients will benefit from enhanced NHS App functionality, including My Medicines and My Health, and will be able to self-refer to specialist services where appropriate.
Additionally, the 10-Year Health Plan’s commitments on artificial intelligence will give clinicians advanced tools for faster diagnosis, predictive analytics, and personalised care planning. For people with long-term conditions like EDS, this means earlier interventions, better monitoring of complex needs, and more time for clinicians to focus on patient-centred care rather than administrative tasks. The plan also commits to 95% of people with complex needs to have a personalised care plan by 2027.
The Government will publish the 10 Year Workforce Plan in spring 2026. It will set out action to create a workforce ready to deliver the transformed service set out in the 10-Year Health Plan. By setting out how we will train and provide the staff, technology, and infrastructure the NHS needs, the 10 Year Workforce Plan will ensure that services are more accessible, proactive, and tailored for all patients, including those with EDS.