Dementia Care

Debate between Caroline Voaden and Sureena Brackenridge

Tuesday 3rd June 2025 Commons Chamber

[Caroline Voaden]

I could not agree more. If we had little chunks of regular respite care, people would not end up having to pay for several weeks, just to recover from the care that they are providing.

There are some brilliant projects working to support families afflicted by dementia, and several of them have been mentioned already. One of the most inspiring examples that I have seen is the Filo Project, a community interest company that offers dementia support in Devon, Cornwall, Somerset and east Lancashire, and which has recently expanded to Bournemouth. The Filo Project takes its name from the pastry, referring to the many layers that make up a personality—the layers that are cruelly and silently stripped away by dementia. The project provides high-quality, community-based day care for people with early to moderate dementia, and what makes it so powerful is its simple approach: small, weekly group support in the home of a host, where people with dementia spend the day receiving the attention, care and companionship they need. That not only helps them, but provides their families with regular and crucial respite and support. I commend founders Libby Price and Dr Liz Dennis, who I believe is in the Gallery today. It is a model that works, and it has made a tangible difference to many families.

There is a critical need for more community-based initiatives such as the Filo Project, and one of my direct asks of the Minister today is that VAT be removed from such services. Although dementia patients can access goods and services exempt from VAT, they have to pay it on the care provided by the Filo Project and others like it. Families supported by the project have paid more than £700,000 in VAT for care since the group was set up 10 years ago, and the extra cost restricts who can afford to take part, so I urge the Minister to remove this burden. While the Government are facing mounting pressures from all sides to find additional funding, it is worth noting that investing in community-based projects is a fraction of the cost of the NHS, yet the impact is transformational, benefiting families across the country and ultimately saving money.

[Mrs Sureena Brackenridge (Wolverhampton North East) (Lab)]

Like every Member here, I have many constituents who have explained that navigating such a complex web of health and social care services is absolutely exhausting. For many families, it leads to crisis before help arrives. Will the hon. Member join me in calling on the Government to tackle the delays and disparities in dementia diagnosis, and to ensure that there is investment in diagnostic capacity, including the fantastic memory clinics that hon. Members have spoken about today?

[Caroline Voaden]

I absolutely agree.

In 2023, Devon saw the closure of its dementia advice service after 10 years because of a cut in funding under the previous Government—a decision that left a significant gap in community support across the county. The service offered vital information, practical advice, and tips and strategies on coping with dementia, as well as signposting to legal and financial support, and the closure was a blow to many families already struggling to cope. It is a scandal that Devon’s integrated care board has neglected older adults by cutting a service that was designed to prevent early care home and hospital admission, and to ease pressure on primary care.

However, there is hope on the horizon. Devon has recently developed a new countywide Devon dementia strategy, which aims to bring about real and meaningful change for those living with dementia and their loved ones. Written in collaboration with over 40 organisations, it sets out what is needed in dementia care today and for the foreseeable future, and I commend them for their work. This strategy is vital, and so is the funding to support the measures it highlights. Dementia prevalence in the area covered by Devon’s ICB is expected to rise by 54% between 2023 and 2040, and by then, over 33,700 people in Devon will be living with dementia. Now is the moment to act, to ensure that this strategy is not just a document that sits on a shelf but becomes a driving force for better services, earlier diagnosis and more consistent support.

I would like to briefly share the story of one of my constituents, Michael, to illustrate why this is so urgent. Michael’s wife began showing signs of dementia six years ago and was diagnosed with moderate to severe Alzheimer’s nearly five years ago. As her symptoms worsened, her condition became more difficult to manage, and she was eventually sectioned as being a danger to herself. At that point, the NHS took over her care, and she is now in a home where she is receiving very good care. Michael has nothing but praise for his GP, the older people’s mental health team and his local hospital for their support. However, his experience has highlighted critical gaps in the system. He recalls the complete lack of day care facilities to provide respite before his wife went to hospital and the overstretched system that was unable to assess people quickly or provide necessary help, either at home or in day care.