Neuropsychiatric Conditions: PANS and PANDAS

Chris Vince Excerpts

Thursday 25th June 2026 Commons Chamber

[Wendy Chamberlain (North East Fife) (LD)]

I beg to move,

That this House has considered the diagnosis and treatment of Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS).

It is a pleasure to open this debate, and I am grateful to colleagues who have attended, despite the immense heat. I welcome the members of the PANS PANDAS UK youth board, and the families impacted by these conditions who are here to watch the debate from the Gallery, and I am grateful to the Doorkeepers for their accommodation in that regard. The heat has meant that many families who were planning to attend, as well as the PANS PANDA UK team, have not been able to travel down, and I know how understandably disappointed they are, but I am pleased to still have the opportunity to speak about this condition on behalf of the thousands of children, young people and families who want to know that their voices are being heard.

PANS, which stands for paediatric acute-onset neuropsychiatric syndrome, and PANDAS, which stands for paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections—you can understand why we say PANS and PANDAS—are post-infectious conditions that affect the brain. They are recognised by NHS England as clinical syndromes.

PANS is a condition in children and young people that can result from an initial mild infection, such as chickenpox or even covid. PANDAS is a specific sort of PANS that stems from a strep infection. While the initial infections might be mild, in some cases they trigger a misdirected immune response and/or a brain inflammation that causes the rapid onset of severe symptoms. I want to emphasise that rapidness; children can go from being healthy and thriving to experiencing obsessive compulsive behaviours, tics, extreme anxiety, eating restrictions and profound neurological symptoms almost overnight.

PANS PANDAS UK currently supports around 8,000 families, but we know that that number is likely to be just the tip of the iceberg. In reality, there are likely to be children and families affected in every one of our constituencies. Looking at Members in the Chamber today, I am sure that many have been contacted by a constituent who is struggling to get support for their children. Constituents get in touch with their Member of Parliament, and that is often why we become engaged in these issues. That was the case for me. I first became aware of PANS and PANDAS when constituents reached out to me for support for their daughter, who was struggling to get a diagnosis and the medication that she needed.

I want to emphasise the key point that early diagnosis and treatment are crucial. When the conditions are identified early, outcomes are significantly better, and in some cases a simple course of antibiotics can alleviate symptoms. However, people are very much experiencing the opposite to that. They are experiencing delay, confusion and inconsistency. Research from PANS PANDAS UK suggests that over 53% of affected families wait more than a year for diagnosis, and 37% wait for more than two years.

[Chris Vince (Harlow) (Lab/Co-op)]

I thank the hon. Lady for bringing this important issue to the House. The Government are introducing guidelines on this in the autumn. Does she welcome the publication of those guidelines, and does she hope that they will get rid of the inconsistencies and postcode lottery that she is describing?

[Wendy Chamberlain]

As always, the hon. Gentleman is ahead of the game; I was going to mention this. I am very much looking forward to the guidance, but we need to ensure that it is understood and shared.

Spinal Muscular Atrophy: Newborn Screening Test

Chris Vince Excerpts

Monday 22nd June 2026 Westminster Hall

[Chris Vince (Harlow) (Lab/Co-op)]

It is a pleasure to serve under your chairship, Mr Mundell. I thank my hon. Friend the Member for Sunderland Central (Lewis Atkinson) for opening and framing the debate. I also thank the right hon. Member for Melton and Syston (Edward Argar) for sharing Harvey’s story with us. It was really powerful, and I hope that Harvey’s memory will live on for us through this debate.

One of the reasons I want to speak in this debate is that I am a new father, who celebrated his first Father’s Day yesterday, and I know how important it is for all new parents to know that their baby is healthy. I am very proud that so many of my constituents in Harlow, which borders Broxbourne, feel so passionately about this issue and signed the petition. Spinal Muscular Atrophy UK and Muscular Dystrophy UK have asked for SMA to be included in the newborn screening programme, and I thank those charities for their work. As Members will know, this issue came to the fore at the beginning of this year when Jesy Nelson’s twin daughters were diagnosed with SMA, and I thank the then Health Secretary for meeting her. The petition was launched subsequently and led to this debate.

I recognise that the Government have started to roll out an in-service evaluation in NHS screening services in response to this petition, but I add my voice to those of the campaigners, the Members who have spoken in this debate and the many Harlow residents who signed the petition to urge the Government to go further and faster. The quoted 18 months for evaluation is just too long, and so many babies will not be diagnosed because of it.

As my hon. Friend the Member for Sunderland Central said, the sooner this treatment is administered, the less these young people will be impacted. I also welcome his comments about screening not becoming a postcode lottery. Both those points are really important. I hope the Minister heard the passionate words of Members from across the House, in particular those of my hon. Friend the Member for Portsmouth North (Amanda Martin), who is obviously hugely passionate that her constituents are not left out—I would feel the same if it was my constituency.

Having worked with children, particularly young people with lifelong disabilities and their parents, for pretty much all my life before I came to this place, I know that the trauma they face never really goes away. The more we can do to support them and their children, the better.

Oral Answers to Questions

Chris Vince Excerpts

Tuesday 9th June 2026 Commons Chamber

[Stephen Kinnock]

I am in violent agreement with the hon. Gentleman, which is quite unusual. We are clear that patients should not be digitally excluded. The contract is clear that patients should always have the option of telephoning or visiting their practice in person. All online tools must always be provided in addition to, rather than as a replacement for, other channels for accessing a GP. In the past year, since April 2025, some 11.5 million more GP appointments have been delivered.

[Chris Vince (Harlow) (Lab/Co-op)]

I thank the staff at Princess Alexandra hospital in Harlow, particularly in the older persons assessment and liaison ward, where elderly patients are transferred from A&E and supported to either return home or transfer to different wards, another example of where Harlow is leading the way. How can we work together to support patients, like those on the OPAL ward, to access primary care if they are not confident in using some of the online tools that have been mentioned?

[Stephen Kinnock]

Once again, my hon. Friend has done a great job promoting Harlow, as we are all familiar with him doing in the House. We are improving GP access across the board. We have over 2,000 more GPs since July 2024 and we are launching a £102 million fund to build more clinical space in over 1,000 GP practices across England. A lot has been achieved, but a lot more needs to be done.

Maternity Nurses, Nannies and the Infant Sleep Industry

Chris Vince Excerpts

Monday 8th June 2026 Commons Chamber

[Chris Vince (Harlow) (Lab/Co-op)]

As a new parent, this is hugely concerning to me and not something I was particularly aware of. Does my hon. Friend have any advice for new parents looking for support about what questions they should ask to ensure they are talking to experts and not so-called experts who, as the hon. Member for Strangford (Jim Shannon) said, are people without any qualifications at all?

[Mr Rand]

Yes, I will come to some of that. Whether parents are following advice or performing these duties themselves, it is important that they think about safe sleeping extremely seriously—that is what any parent should be doing. It is very important indeed to understand the qualifications and medical expertise of those providing advice.

In May, the BBC used undercover filming to expose two prominent figures in the infant sleep industry who were openly giving parents advice on safe sleep that could result in the death of their children. That is not just my opinion; the NHS clinicians who observed the BBC’s footage said that it was “horrifying”.

Women’s Health Strategy

Chris Vince Excerpts

Thursday 16th April 2026 Commons Chamber

[Karin Smyth]

As I said, part of this strategy is about educating girls and boys on health and bringing together all parts of education. We are keen to work in new ways with new media, and with influencers who are positive about women and women’s health, and we will continue to do so.

[Chris Vince (Harlow) (Lab/Co-op)]

I thank the Minister for her statement, and for her ongoing commitment to ensuring that women’s health is at the heart of this Government’s agenda, which is hugely important. A bit like my hon. Friend the Member for Burnley (Oliver Ryan), I was shocked by the number of women from my constituency of Harlow who came forward to tell me about their terrible experiences of being gaslit, ignored and disrespected, particularly when it came to endometriosis and the pelvic mesh scandal. My constituent Belinda, when she was 36 years old, went to the GP complaining of head pains. She was told that it was nothing and was sent home. She had actually had a stroke. She was told by the GP that she could not possibly have had a stroke at the age of 36, which was obviously incorrect. What would the Minister say to women in my constituency who have long felt ignored, disrespected and gaslit because they are women?

[Karin Smyth]

Belinda’s story is shocking, and I hope that she is doing better. This strategy is, as I said, a total game changer. In particular, the renewal of this strategy, based on the previous strategy, sends a signal to the system that we will look at the experience of women and take it into account. We will look at the budgets and the return of money to the service to improve things. As my right hon. Friend the Secretary of State said yesterday, there is nothing quite like seeing chief executives and chief finance officers suddenly notice—perhaps they had not noticed it before; they are busy sometimes—women’s clear dissatisfaction with gynaecology. The strategy sends a positive signal to improve the service, and that puts power in the hands of women.

The other real game changer is the online service. As I said, women, wherever they live, be it in Harlow, Bristol, rural Lincolnshire or coastal areas like Thanet—I have heard from Members from so many places this afternoon—will have access to online specialist treatment. There will be a further roll-out of diagnostic services, to get that diagnostic record back into neighbourhood healthcare, so that people can be treated closer to home. Building an NHS around women, women’s needs, women’s experiences—that is the game changer promised by this Labour Government.

Tobacco and Vapes Bill

Chris Vince Excerpts

Consideration of Lords amendments
Monday 23rd March 2026 Commons Chamber

[Jack Rankin (Windsor) (Con)]

I served on the Bill Committee, and the subsequent process of scrutiny of this Bill has been entirely as expected. I was disappointed, though not surprised, by a failure to engage critically with its contents and to listen to the real concerns, in particular those of the high street businesses and the hospitality industry, which it will impact on most. I disagree with this socialist Bill on principle. Although I have a lot of time for my hon. Friend the Member for Hinckley and Bosworth (Dr Evans), I am sorry to see my Front Benchers continuing to support the broad thrust of the Bill. It creates two tiers of adults and, at its core, is fundamentally illiberal.

However, I was willing to look beyond that and engage constructively with the Government to improve the legislation, which is why I tabled a series of common-sense amendments both in Committee and on Report. They would have allowed for the advertisement of smokefree products in venues that are already adult-only; required a consultation on the impact of advertising bans on retailers; and permitted the targeted advertisement of vapes and smokefree alternatives to existing adult smokers. Those proposals had some cross-party support in this House, and two of them were taken up by peers in the other place, notably Lord Udny-Lister and Lord Sharpe for the Opposition.

Throughout this process, I have engaged with the Minister and her predecessors through letters and written questions, and I genuinely thank her for her timely responses. However, it quickly became clear that there was little interest from the Government in improving this Bill, which is driven more by puritan ideology than by evidence or practicality. As a result, we have seen it forced through by the Labour Government and their little helpers, the illiberal Democrats in the other place, with no regard to implementation or unintended consequences. Today, we are likely again to wave through 100 Government amendments from the Lords with minimal scrutiny.

All parties will welcome the fact that smoking rates in this country have declined from 30% in the early 2000s to 10.4% today. The free market has played a key role in that, with companies creating less harmful, smokefree alternatives such as vapes and nicotine pouches. There has been a consistent failure to recognise what an important role such products have played in the decline of smoking, and I hold concerns that the tight restrictions in this Bill on flavours and advertising will stop adult smokers from making the switch.

[Chris Vince (Harlow) (Lab/Co-op)]

Although I disagree with much of what the hon. Gentleman is saying, I recognise the passion with which he speaks. Does he recognise that one issue with vape products is that a number of people who smoke vapes have not previously smoked cigarettes? That is a concern. Vapes are not just an alternative to smoking and a means to stop people smoking; young people are being drawn to vapes rather than cigarettes because of their colours. Does the hon. Gentleman recognise that that is an issue that needs to be addressed?

GP Contract

Chris Vince Excerpts

Monday 16th March 2026 Commons Chamber

[Stephen Kinnock]

Please do pass on my thanks to the Laurie Pike and al-Shafa practices for the outstanding work they do. We are not really doing ringfencing; we are embedding prevention in the contract through the quality outcomes framework. Those incentives are the best way to give practices the flexibility they need while ensuring that they are clear about what we expect in terms of outcomes.

Issues such as cardiovascular disease and diabetes are part of the quality outcomes framework. It is also worth mentioning the Pharmacy First scheme, which is looking to move some of this work out of GPs and enabling pharmacists to operate at the top of their practice. That is another example of the shift from hospital to community, which is so important in enabling people to get the best possible care in the right place at the right time, as close as possible to their homes.

[Chris Vince (Harlow) (Lab/Co-op)]

I thank the Minister for his answers so far. One of the No. 1 issues that came up on the doorstep when I was canvassing across my constituency before the general election was same-day access to GPs. Although I recognise that there is still work to be done, I welcome the work the Labour Government and the Minister have done to improve GP access for constituents across Harlow. Does the Minister recognise that there is still more to be done? Will he touch a little on the importance that the shift from hospital to community will have for hospitals like mine, the Princess Alexandra hospital, and specifically the accident and emergency department?

[Stephen Kinnock]

My hon. Friend is right: avoiding preventable admissions is right at the heart of what we are trying to achieve. Of course, we have challenges with delayed discharge—something like 14% of patients in hospital beds are medically fit for discharge—and if we look at the flow of patients through hospital, we see that we can address a lot of the problems at that end of the process by preventing avoidable admissions in the first place. The advice and guidance element of the contract is therefore very important, because it is by improving co-ordination and teamwork between primary care and secondary care that we will ensure that the 1.3 million people who would have ended up on the electives waiting list or going into outpatient clinics no longer need to be there—they will be dealt with by the teamwork between consultant specialists and GPs. They will be helped, supported and cared for close to home, without having to go into hospital, which will have a positive knock-on effect right through the system.

Hughes Report: Second Anniversary

Chris Vince Excerpts

Wednesday 11th February 2026 Westminster Hall

[Sarah Green (Chesham and Amersham) (LD)]

I beg to move,

That this House has considered the second anniversary of the Hughes Report.

Although it is a pleasure to open this debate under your chairship, Dr Allin-Khan, I do so with a sense of déjà vu, because we have been here before, on the anniversary last year and in debates on the Cumberlege review before that. The issue of redress for the victims is a well-trodden road.

I start by paying tribute to the many individuals who have campaigned tirelessly for justice and change, and to prevent their experience from happening to others. I thank the Patient Safety Commissioner, Professor Henrietta Hughes, for the work she put into her report. She is with us in the Gallery today, along with many campaigners. I put on the record my thanks to Baroness Cumberlege for her exceptional work, before the Hughes report, to give voice to victims during the two years she led the Cumberlege review. I pay tribute to her for her continuing commitment to the victims.

We are here today because, two years on from its publication, the Government have still not published an official response to the Hughes report. No redress scheme has been implemented and no timeline has been announced. We have repeatedly been told that the recommendations are being carefully considered, yet there is no date, no framework and no mechanism for justice in place. To be clear, the Patient Safety Commissioner did not decide one day to write the report; she was asked to pull it together and to look at the options for redress for those harmed by valproate and pelvic mesh. The report was commissioned by the Department of Health and Social Care in late 2022.

In her foreword to the report, Professor Hughes was clear that, in accepting the commission,

“the case for redress had already been made by the First Do No Harm review so my report would primarily focus on ‘how’ to provide redress rather than ‘why’…Secondly, patients must not be subjected to an emotional rollercoaster, meaning that commissioning this work would inevitably raise expectations and that it would be profoundly unfair to do so if the government had no intention of providing redress.”

[Chris Vince (Harlow) (Lab/Co-op)]

I thank the hon. Member for bringing this important debate to Westminster Hall. I secured a debate on the Cumberlege report 18 months ago; I said at the time that I hoped it would be the last time we debated this issue, yet here we are again. Does the hon. Member agree that the emotional impact on the women involved is hugely important? I was approached by a number of constituents in my constituency, including Debbie, who joined me for my debate. It is so important that the review’s recommendations are acted on.

Oral Answers to Questions

Chris Vince Excerpts

Tuesday 13th January 2026 Commons Chamber

[Mr Speaker]

I think just stick to the responsibility of being in government, Minister; don’t worry about the Opposition.

[Chris Vince (Harlow) (Lab/Co-op)]

12. What steps he is taking to help reduce waiting times at A&E departments.

[The Secretary of State for Health and Social Care (Wes Streeting)]

Regardless of the challenges this winter presents, this is a Government who are facing into them. We have vaccinated over 17 million people this winter, which is 350,000 more than this time last year and 60,000 more NHS staff. We are not out of the woods yet by any stretch, but I can give an example of how our investment in modernisation is paying off: new year’s day was the busiest day in NHS history for 999 calls, but despite that, ambulances arrived to heart attack and stroke patients 15 minutes faster compared to this time last year. Backed by £450 million, our urgent emergency care plan will expand same-day and urgent care services. We are delivering new same-day emergency care and urgent treatment centres, more mental health crisis assessments and 500 new ambulances. Lots done, but so much more to do.

[Mr Speaker]

And a 24-hour centre at Chorley as well, Minister!

[Chris Vince]

Will the Secretary of State to join me in thanking the extraordinary efforts of the staff at Princess Alexandra hospital in Harlow for their work over the winter period? A few years ago, we saw the shocking statistic that people were waiting in A&E at Princess Alexandra hospital for 13 hours. Can the Secretary of State outline the changes that this Government are making to bring down waiting times, improve GP satisfaction levels and decrease ambulance waiting times, and explain how this Labour Government are ensuring that the NHS is fit for the future?

[Wes Streeting]

I absolutely join my hon. Friend in thanking NHS staff in Harlow and across the country for their incredible efforts during the toughest winter weeks. I particularly thank all those staff who have supported their colleagues and worked throughout Christmas and new year, sacrificing time with their families to care for ours. Of course, Mr Speaker, I particularly thank the staff at Chorley and South Ribble hospital who facilitated our visit. Your representations from the Chair for longer A&E access have not been lost on me, or indeed the record.

NHS: Winter Preparedness

Chris Vince Excerpts

Monday 15th December 2025 Commons Chamber

[Wes Streeting]

We do flex beds depending on needs. For example, there were just over 101,000 beds open on average per day in the past week, which was up on the previous week and broadly the same as it was this time last year. We are investing in the NHS, and we have to ensure that people get the right care, in the right place at the right time. That means not just investing in secondary care; if anything, it means investing in the front and back doors of the hospital—primary care, community services and social care—to deal with the flow of patients through hospitals.

I do not pretend that these are easy issues or that everything is going swimmingly in the NHS—quite the opposite. I have seen conditions on our screens in the past week or two that I would not want to be treated in, someone I love to be treated in, or anyone to be treated in. It is a reflection of that fact that we inherited an NHS that was in enormous crisis. It will take time to recover. The key for me is achieving year-on-year improvements to get the NHS back on its feet and to ensure it is fit for the future.

[Chris Vince (Harlow) (Lab/Co-op)]

I put on record my thanks to the staff at Princess Alexandra hospital in Harlow for their work to support residents in my constituency not just at Christmas but all year round.

Clearly, the BMA’s decision to take strike action over Christmas is hugely disappointing. As a former teacher, I remember that if we took industrial action, we always tried to avoid taking it over exam season, for similar reasons. Will the Secretary of State reiterate his point about the deal he put forward to the BMA? In particular, reducing the number of applicants per job is hugely important and should be welcomed by resident doctors, or potential resident doctors.

[Wes Streeting]

My hon. Friend is absolutely right. Responsible trade unions think about the wider workforce and the impact on service users, whether they are children or other users of public services. Crucially, for most trade unions in this country strike action is a last resort. It is astonishing that the BMA chose to go on strike after a 28.9% pay rise, well ahead of the Government making any decisions on future years’ pay and with the Government willing to discuss future years’ pay with the BMA.

It is extraordinary that the BMA has chosen to go on strike after we proposed to take action on jobs, including by bringing forward legislation at an expedited pace. By the way, that involved ensuring that the legal advice was watertight and that, operationally, we could deliver a new application round. It involved working trust by trust to secure the extra training places, and working with my counterparts in Scotland, Wales and Northern Ireland. Even after all that effort was strained to bring forward something quickly for this application round, the BMA rejected it. It is unreasonable, and to have rejected the offer of postponing strikes until the new year on the grounds of patient safety and doing the decent thing by their colleagues was unconscionable.