Dementia Care

Claire Young Excerpts

Tuesday 3rd June 2025 Commons Chamber

[Claire Young (Thornbury and Yate) (LD)]

Everyone deserves high-quality care when they need it—that is particularly the case for those with dementia, who often have some of the most complex needs—but the sad reality is that social care services in this country are in crisis. The disease has a huge impact not only on the patients, but on their family and friends as they struggle to care for them.

Richard wrote to me about his experience of being a full-time carer for his wife of 55 years. She has ataxia, compounded by dementia. She is losing her ability to walk or talk, write or use the phone, or follow simple instructions, and Richard has to be with her 24/7 to ensure her safety. The daily routine starts with getting his wife out of bed; transporting her to the bathroom; helping her with the toilet; getting her into the shower and then getting in the shower to shower her; helping her clean her teeth; getting her back to the bedroom to dry her hair and dress her; taking her downstairs via their self-funded stairlift; getting her into a wheelchair to transport her to the dining table for breakfast; and then taking her back to the lounge. She may sleep for a little bit, but sooner or later there will be a call for help to go to the toilet, so it is back into the wheelchair, back on the stairlift and back on the toilet. Richard will clean and dress her, and then she will go back on the stairlift, back into the wheelchair and back into the lounge, where the whole palaver will repeat after five minutes, as she has forgotten that she has already been to the toilet and cannot be convinced otherwise.

That is just one small part of a day, and it sounds relentless. Owing to a recent back injury, Richard has had to employ a carer for two mornings a week to help. He wants to care for his wife as long as he can, but one day he may have to move her to a nursing home, and that worries him. He reckons it will cost approximately £1,800 per week and rising due to the increase in national insurance, and he is now worried that in pandering to populism on immigration, the Government may make it even harder to recruit carers. He says:

“Once again, it is the least fortunate and needy of us who will bear the cost.”

Another constituent wrote:

“When my wife was first diagnosed with Alzheimer’s in 2019, we were given a couple of booklets and told to prepare for the inevitable.”

He went on to explain that for a couple of years, including during the covid lockdown, they saw no one apart from the occasional surgery visit, until a crisis in 2023 led to the community mental health team being involved. For a while, his wife got a fair amount of support, but when the mental health team deemed her stabilised, that support was withdrawn, leading to another crisis in January 2024. He is very worried that the whole cycle will play out again and again.

[Sarah Dyke (Glastonbury and Somerton) (LD)]

My hon. Friend reminds me of a conversation that I had with William, a constituent from High Ham who has been caring for his wife, who has had Alzheimer’s for many years. He has relied on the intensive dementia support team in Yeovil, but the service has recently been reorganised. As a result, it has become quite fragmented across Somerset and there is no central contact or clear structure. There are incomplete records, leaving some carers adrift. Does my hon. Friend agree that streamlining dementia care services is vital to ensure clarity and co-ordination for carers?

--- Later in debate ---

[Claire Young]

Absolutely. It is a very frightening situation for people to find themselves in. For carers who have to do all that I have described Richard having to do, having to battle their way to find the services available just adds to the problems.

My constituent says that mental health services are the Cinderella of the NHS. There is a lack of staff and resources, and such services need more financial support so that they do not abandon people the minute they think they can get away with it.

A number of Members have highlighted the importance of voluntary initiatives, and I would like to take this opportunity to thank all those in my constituency, including Time 4 Carers, the memory cafés in Yate and Thornbury, and the Charfield memory group. However, voluntary initiatives are not enough to provide the support that dementia patients and their carers need.

The cross-party commission on social care is welcome, but unpaid carers such as my constituents cannot wait three years—they need a fair deal now. That means respite breaks, so that they do not get to breaking point and can carry on caring for their loved ones, as they want to. It means ongoing support from health services, regular check-ins and not being abandoned when the immediate crisis is over, and it means having the confidence that when they do need to turn to paid carers, those carers will be available, they will have dementia training, and cost will not be a barrier to using them.

[Several hon. Members rose—]