Wheelchair Provision: Independent Review Body Debate
Full Debate: Read Full DebateGregory Campbell
Main Page: Gregory Campbell (Democratic Unionist Party - East Londonderry)Department Debates - View all Gregory Campbell's debates with the Department of Health and Social Care
(1 day, 7 hours ago)
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I congratulate the hon. Member on securing the debate. On the issue of children getting access to wheelchairs, does he agree that sometimes the provision itself is fine, but parents subsequently establish that the wheelchair is not suitable and there can be difficulties in getting the best and most appropriate wheelchair for the child as they develop and age?
Daniel Francis
I absolutely agree. The hon. Member will hear my own personal horror story on that very matter in a moment. It is a big issue. Children grow, and the delays often mean that when the wheelchair finally arrives, the child is a very different size from when they were measured for it.
Instead of a wheelchair, younger children are offered a standard buggy, which often does not meet their clinical or social needs. It also impacts their social integration at a crucial age and limits their independence and participation at home, in school and at playtime. I would therefore be grateful if the Minister considered extending NHS wheelchair provision to children aged three to five so that they can get the right equipment.
The situation does not necessarily get any better for older children. In 2024, the national wheelchair data collection outlined that 80.9% of children under 18 received their wheelchair within the 18-week timescale, meaning that nearly one in five children are waiting over 18 weeks to receive their wheelchair. That figure unfortunately increases for children with more complex needs. In 2023-24, 29% of children assessed as having a specialist need waited over 18 weeks, and the figures for October to December 2025 showed that 1,563 children waited more than 18 weeks after a referral to NHS wheelchair services. A further 1,685 children were assessed with no equipment provided. That is despite the NHS England model service specification requiring services to have developed improvement plans by 2019 to ensure that all children who require a wheelchair receive one within 18 weeks.
My family and I have direct experience of that with our contractor in the London borough of Bexley. Back in October 2021, when my daughter—who, as I said, has quadriplegic cerebral palsy—was eight years old, it was agreed that she required a new wheelchair. The appointment to measure her for it was held three months later in January 2022, and the wheelchair arrived six months later in July 2022—nine months after the referral. Despite recommendations on the postural support that she required given that she has quadriplegic cerebral palsy, a standard wheelchair had been ordered, which then had to be repaired or have adjustments made to it on five occasions in the next four months. Despite those adaptations, it was still not fit for purpose.
After my wife and I got the ICB involved—how many parents out there know what the ICB is and how to get it involved?—a new fit-for-purpose wheelchair was ordered in January 2023. It arrived in April 2023, but no one advised us that it had arrived. I really believe our contractor rations appointments to manage its workload. When we chased the position in June 2023, we were advised that the wheelchair had been in stock for two months. An appointment was made in July 2023. Twenty-one months after the initial referral, my daughter received a wheelchair that was fit for her needs. That meant that the contractor had missed its 18-week deadline twice in an 18-month period in one patient’s case.
Importantly, as I have said, children grow and delays like that cause more work, given that the child will clearly be taller than they were when the referral was made. At such a crucial time in a child’s life, their mobility and independence matter. It is critical that children are given the necessary equipment to engage with their peers and participate in school. Having an independent national review body would help to give children and their families a voice and more ownership over their care and, in doing so, drive down waiting lists and improve patient outcomes. I look forward to hearing contributions from colleagues, and the Minister’s comments on the points I have made.
As always, it is a pleasure to serve under your chairship, Dr Murrison. A special thanks to the hon. Member for Bexleyheath and Crayford (Daniel Francis) for the opportunity to support him in this debate on a subject of which he has personal knowledge, and for his opening speech. If I recall right, we had a 30-minute debate on the issue some time ago, and now we have a more substantive debate on this important subject, which gives us the opportunity to highlight the need for improvements for many of our constituents. I know that the Minister does not have responsibility for Northern Ireland, but I will give our perspective to support the hon. Member for Bexleyheath and Crayford and those who will speak after me. It is nice to see the Minister in his place; he is becoming a bit of a regular in Westminster Hall.
He is trying to catch up. I look forward to his response and that of the shadow Minister, the hon. Member for Hinckley and Bosworth (Dr Evans). I tapped him on the shoulder and said, “Luke, you’re back again!” It is a real pleasure.
When Members use phrases such as “postcode lottery”, it brings a smile to my face, but not in a humorous way; due to our legislation, my constituents do not have the ability to participate in the postcode lottery and benefit for their street, and yet when it comes to provision for disabled people, we seem to be right in the heart of that painful reality. Whether someone is in Newtownards or Newcastle, their ability to live an independent life should not depend on which trust’s boundaries they live within. I concur with the hon. Member for Bexleyheath and Crayford that the current situation is not acceptable, and the changes we seek from the Minister must be transformative.