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Written Question
Huntington's Disease: Mental Health Services
Monday 6th February 2023

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what estimate he has made of the prevalence of mental health trusts excluding patients in need of community mental health care because they have Huntington’s disease.

Answered by Maria Caulfield

No such assessment has been made. Access to NHS mental health services is based on clinical need, including for patients with Huntington’s disease and organic brain disorders.

The NHS Long Term Plan commits an additional £2.3 billion a year for the expansion and transformation of mental health services in England by 2023/24 so that an additional two million people, including those with Huntington’s disease and organic brain disorders, can get the NHS-funded mental health support that they need.


Written Question
Brain: Diseases
Monday 6th February 2023

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what estimate he has made of the prevalence of mental health trusts excluding patients in need of community mental health care because they have organic brain disorders.

Answered by Maria Caulfield

No such assessment has been made. Access to NHS mental health services is based on clinical need, including for patients with Huntington’s disease and organic brain disorders.

The NHS Long Term Plan commits an additional £2.3 billion a year for the expansion and transformation of mental health services in England by 2023/24 so that an additional two million people, including those with Huntington’s disease and organic brain disorders, can get the NHS-funded mental health support that they need.


Written Question
Huntington's Disease
Wednesday 1st February 2023

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, how many Integrated Care Boards in England have a dedicated care co-ordinator for Huntington's Disease.

Answered by Helen Whately - Shadow Secretary of State for Work and Pensions

The information requested is not held. NHS England specialised commissioning does not centrally commission dedicated care co-ordinators for Huntington’s Disease within integrated care boards.


Written Question
Hospices: Energy
Wednesday 1st February 2023

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the impact of rising energy bills on the hospices, including their financial stability.

Answered by Helen Whately - Shadow Secretary of State for Work and Pensions

No assessment has been made. Following a HM Treasury led review into the Energy Bill Relief Scheme, the new Energy Bill Discount Scheme will run from April until March 2024 and continue to provide a discount to eligible non-domestic customers, including hospices.


Written Question
Epilepsy: Cannabis
Tuesday 31st January 2023

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of Bedrocan cannabis medicines for children suffering from epilepsy.

Answered by Will Quince

Clinical guidelines from the National Institute for Health and Care Excellence (NICE) state, there is insufficient evidence of safety and effectiveness to support a population-wide practice recommendation for the use of unlicensed cannabis-based products, including Bedrocan products, for the treatment of adults and children with severe treatment-resistant epilepsy. NICE also made recommendations for further research to inform future decisions on the routine prescribing and funding of unlicensed cannabis-based medicines on the National Health Service.

The National Institute for Health and Care Research (NIHR) has issued two calls for research proposals and a highlight notice on medicinal cannabis. Manufacturers, including those for Bedrocan products, are responsible for generating evidence to support the use of these products and to seek regulatory approval. The Government encourages manufacturers to do so and offers scientific and research advice from the Medicines and Healthcare products Regulatory Agency and the NIHR.


Written Question
Antibiotics: Production
Friday 13th January 2023

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will make an estimate of the proportion of antibiotics dispensed in the UK that are manufactured in (a) the UK, (b) the European Union and (c) elsewhere.

Answered by Will Quince

The data is not held centrally.


Written Question
Lung Cancer: Screening
Tuesday 20th December 2022

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will introduce a national lung screening programme as recommended by the UK National Screening Committee.

Answered by Helen Whately - Shadow Secretary of State for Work and Pensions

The Department and NHS England are determining how a lung screening programme could be established and the recommendation will be considered in due course.


Written Question
Home Care Services: Fuels
Thursday 15th December 2022

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether he is taking steps with Cabinet colleagues to support home care workers using their own vehicles to visit clients with fuel costs.

Answered by Will Quince

Home care workers may be eligible to benefit from Approved Mileage Allowance Payments (AMAPs), which are used by employers to reimburse an employee’s expenses for business mileage in their private vehicle. These rates aim to reflect running costs including fuel, servicing and depreciation.

Employers do not have to use AMAP rates and can instead choose to reimburse more or less, subject to certain tax conditions. Employees who receive less than the advisory rate can claim tax relief on the difference.


Written Question
General Practitioners: Locums
Monday 14th November 2022

Asked by: Hilary Benn (Labour - Leeds South)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether he plans to bring forward legislative proposals to regulate the charges levied by agencies for the supply of locum GPs.

Answered by Neil O'Brien - Shadow Minister (Policy Renewal and Development)

We have no plans to do so.


Speech in Westminster Hall - Wed 09 Nov 2022
Huntington’s Disease

"I beg to move,

That this House has considered Huntington’s disease.

It is a great pleasure to serve under your chairmanship, Mr Robertson, and to see the Minister in her place. I thank all the Huntington’s disease organisations in England, Scotland, Wales and Northern Ireland for the vital work they …..."

Hilary Benn - View Speech

View all Hilary Benn (Lab - Leeds South) contributions to the debate on: Huntington’s Disease