Dementia Care

Liz Jarvis Excerpts

Tuesday 3rd June 2025 Commons Chamber

[Liz Jarvis (Eastleigh) (LD)]

I am incredibly grateful to my hon. Friend the Member for South Devon (Caroline Voaden) for securing this important debate. Dementia care is in crisis. One in six hospital beds is currently occupied by someone with dementia, and by 2040 it is estimated that the figure will be one in four hospital beds. We need the Government to take bold, radical action to introduce a system that provides the best possible support for people with dementia and their families—support that is easily accessible every step of the way.

I have heard from many carers in my constituency who are stretched to their limit, and adding to that pressure is the constant uncertainty over support. People with dementia often fall through the gaps in the health and social care service, as many assessments are not designed for people with dementia. That is why I support Dementia UK’s call for the Government urgently to review the NHS continuing healthcare process. Will the Minister confirm whether the Government are considering a specific focus on how cognitive and behavioural needs are assessed, and say whether dementia specialists will be involved in the continuing healthcare assessment process?

Support for carers is also incredibly important. In May 2024, Hampshire county council changed a local support service, after 12 years and with very little notice. One of my constituents described how the previous provider, the charity Andover Mind, had been a lifeline for him and his wife who was diagnosed with early-onset dementia. The charity offered care advice, legal guidance and hosted social events that helped to build supportive networks at an incredibly difficult time. My constituents feel that the new service is focused on short-term emergency response rather than comprehensive support.

At present, the care system relies heavily on unpaid carers, who are usually family members, and people with dementia often rely on a combination of unpaid and formal social care. Two thirds of unpaid carers are women, and a third provide more than 100 hours of care a week. This is a full-time job with no pay, little rest, and far too little recognition. As my constituent Julia said,

“post diagnosis, there was just very little help”.

While caring for her husband, she found that she had to do her own research and reading to get him the care he needed. She is concerned, however, that her husband is better off than many others who do not have family advocating on their behalf. Clearly, there is a growing need for a minimum standard of good quality, post-diagnosis support for people with dementia and their carers.

I urge the Government to commit to providing guidance and ringfenced funding to ensure that there is a specialist dementia nurse service in every NHS acute trust. I support the demand for a bold, new diagnosis target, urgent action to reduce waiting lists, and improved dementia diagnosis data collection and publication to drive greater accountability. There is also a discussion to be had about dementia-specific training for care workers. Last year in England, only 45% of care workers received dementia-specific training, which highlights the scale of the problem. Will the Government implement the Alzheimer’s Society’s recommendation that dementia training should be mandatory across the adult social care workforce?

I have spoken in this Chamber on previous occasions about the impact of dementia and Alzheimer’s on my own family, and how after a loved one is diagnosed with this terrible disease, we lose them twice. With our rapidly ageing population, it is critical that more support is given to families coping with dementia, so they do not have to jump through hoops to get support, and so that those living with dementia and Alzheimer’s are treated with the specialist care and dignity they deserve.