(1 day, 13 hours ago)
Commons ChamberI thank the hon. Lady for that question. I am not familiar with the details, of course, so might she write to me with the clear details? I am sure that officials will then take the matter up as a matter of urgency.
Matt Bishop (Forest of Dean) (Lab)
Parents supported by Harry’s Pals, a small charity, consistently describe the fragmented and emotionally exhausting system of accessing support for children with life-limiting conditions. Will the Secretary of State commit to exploring a dedicated national support pathway for parent carers, including better access to counselling and respite, and will he meet me and Hayley Charlesworth, the founder of Harry’s Pals, who is watching at home today with Harry, to discuss how we can better support families in the Forest of Dean and nationally?
Local authorities must assess disabled children’s social care needs and provide respite care, including funding short breaks where appropriate. We are currently developing an all-age palliative care and end-of-life care modern service framework, and will consider the issue of emotional and practical support, including for parents who are carers, as part of that work. My hon. Friend the Minister for Care chairs a cross-Government meeting with Ministers from the Departments for Work and Pensions, for Business and Trade and for Education, to consider how we can provide care as we improve recognition and support. I would be happy to meet my hon. Friend and the founder of Harry’s Pals.