Glaucoma Awareness

Shockat Adam Excerpts

Wednesday 9th July 2025 Westminster Hall

[Shockat Adam (Leicester South) (Ind)]

I beg to move,

That this House has considered glaucoma awareness.

It is a real pleasure to serve under your chairship for the first time, Mr Pritchard. I thank all right hon. and hon. Members for attending this important debate. First, I declare my registered interest as a practising optometrist for the NHS. As an optometrist for many years, I have had the privilege—sometimes the heartbreak —of looking into the eyes of people whose lives are changing without their even knowing about it. Fundamentally, that is what glaucoma does: it changes lives quietly, and often without warning. Last week was Glaucoma Awareness Week because many people are not aware of the condition.

At this point, I applaud the work done by Glaucoma UK to raise awareness of the condition. It is known as “the thief of sight” for very good reasons. Broadly speaking, glaucoma damages the optic nerve. The optic nerve is made of millions of little nerves and bundles, and each part of the nerve represents a single point in our visual fields. Because vision loss begins at the edges, people do not often realise that anything is wrong until it is too late.

I would like to give two brief but real examples from my experience. First, a woman came into my practice who had been hit by a car, while in her own car, from the side, not once but twice. She came in and read out the bottom line—the tiniest letters that can be seen—and could not understand why she kept missing things on the side: in this case, cars. It became apparent that she was a quite advanced sufferer of glaucoma, and she had lost the majority of what we call peripheral or side vision. Another memorable patient was a gentleman who was brought in kicking and screaming by his wife because he kept knocking off the salt, pepper and ketchup from the dinner table. It became apparent, again: he could see everything clearly straight ahead, but he really could not see anything on the side. He also had a very advanced form of glaucoma.

Glaucoma is the leading cause of preventable blindness in this country, with over 700,000 people affected, but the shocking thing is that more than half of them—350,000 people—are undiagnosed: they are walking and driving around not knowing that they have the condition. They could be one of us—somebody we love, or somebody we work with, as was the case of a former Member of Parliament of this parish, Paul Tyler, a Lib Dem Member, who was diagnosed at a completely routine eye test. In his own words, he might not have been able to carry on his duty as a parliamentarian if he had not gone for a simple eye test where they detected glaucoma. Twenty-five years later, his sight is still preserved.

[Mr Gregory Campbell (East Londonderry) (DUP)]

I congratulate the hon. Gentleman on securing the debate. He rightly alludes to the issue of regular eye testing. Although we obviously want a response from the Minister, does he agree that if nothing else is achieved from this debate but raising people’s awareness about doing exactly as he recommends—and all of us recommend regular eye testing—to detect conditions such as glaucoma, he will have done us all a service?

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[Shockat Adam]

I could not agree more. If we achieve that one thing today, we will have achieved a great milestone. In its early stages, glaucoma has no symptoms, pain or warning signs—just a slow, silent theft of vision. By the time it is noticed, the damage is permanent; it is as if the fire has gutted the house before anybody has even smelled the smoke. That loss has far-reaching consequences. People lose not only their sight but, more importantly, their independence—their ability to drive, read, cook or even leave the house. Falls increase, isolation grows, and then come the emotional and mental health impacts: fear, depression and loss of identity. At this point, I quickly pay homage to charities such as Vista in my constituency, which has offered valuable support for people living with visual loss.

On the subject of depression and identity, I want to share a moment that has stayed with me; it concerns a rare condition that many people do not know can be a consequence of vision loss. A woman, diagnosed with glaucoma, phoned my clinic, deeply distressed. She said a child was following her—but no one else could see them. She was terrified that she was losing her mind. In fact, she had a condition called Charles Bonnet syndrome, a common but under-recognised condition in which the brain fills in visual gaps with vivid hallucinations. Many people never mention it, understandably fearful that they will be labelled as senile or unstable, and so they suffer in silence. Esme lived with Charles Bonnet syndrome for over a decade, haunted by hallucinations that she knew were not real. Her daughter, Judith, now champions awareness through the incredible organisation, Esme’s Umbrella. These are not clinical oddities; they are real human stories, and far more common than we acknowledge.

We are now facing a growing crisis. Work done by the Association of Optometrists, Primary Eyecare Services and Fight for Sight has shown that glaucoma cases are expected to rise by 22% in the next 10 years and 44% in the next 20 years. That is hundreds of thousands more people needing care, follow-up and support, yet we already have the tools to stop this.

I would like to frame this, Minister, around the three bases of the Government’s own proposals for tackling healthcare. First, we must move from hospital to community. Patients are losing their sight not because care does not exist, but because the pathway is broken and follow-up is delayed. Just recently, a patient of mine was referred to hospital and diagnosed with glaucoma—fine, no problem there. The initial appointment happened without any problems, but the follow-up was postponed. Then the patient missed her appointment, and the one after that was postponed again. By the time I saw that patient again, just over a year later, they had lost two full lines on their visual acuity chart—the chart used by the optician. That is two lines that this patient will never, ever get back. That is the difference between being able to read letters or not; between seeing a grandchild smile or only hearing them.

One of the problems is that current waiting list data measures only first-time appointments, not the ongoing care vital to chronic conditions such as glaucoma. We need published data on follow-up waiting times, because that is where sight is being lost. That data would allow patients to make an informed choice about where they would like to receive treatment.

Here is the reality: hospital ophthalmology is the largest outpatient specialty in the NHS, with 8.9 million appointments in England in 2023-24, according to the College of Optometrists. It cannot carry that load alone. The answer lies in the community. There are over 14,000 qualified optometrists in England, providing more than 13 million eye tests. They are trained, regulated and ready to help.

Community glaucoma services led by optometrists have already demonstrated the ability to reduce hospital referrals by up to 79%. If we implemented a nationally regulated programme, it could free up 300,000 hospital appointments a year. That is not a one-time saving, because glaucoma is a chronic condition. People are not cured of it—they live with it, and must continue with recurring appointments for the rest of their lives. Shared care would allow faster appointments, earlier diagnosis, less vision loss, and critically, more time for hospital ophthalmologists to treat complex cases. It could also save the NHS an estimated £12 million annually.

Wales has already adopted this model; England should do the same. Yet fewer than one in five areas in England offers this service. It is a postcode lottery—one that punishes the most vulnerable, especially given that people from black and Asian communities are up to four times more likely to develop glaucoma and often have the least access to care. We need to raise awareness and create the statutory framework so that everyone—GPs, pharmacists, the public—knows to go the optometrist for an eye test. We need a national roll-out of a statutory integrated glaucoma pathway.

Secondly, we must move from analogue to digital; lack of digital connectivity is another major obstacle. Many optometrists are unable to send digital referrals to local hospitals. Some do not even have access to NHS email and we still cannot access shared patient records. That means crucial information such as medication, medical history and images get lost, delayed or duplicated. This is 2025. It should not be easier to get a takeaway delivered than to refer a patient with a sight-threatening disease. To move forward, we need access to NHS email for all primary eye care providers; shared patient records between optometrists, GPs and hospital services; and an efficient two-way electronic referral system. That kind of interoperability is basic infrastructure and would transform the speed, safety and continuity of glaucoma care.

Finally, we must move from sickness to prevention. The final and most important pillar is prevention.

[Ayoub Khan (Birmingham Perry Barr) (Ind)]

I congratulate the hon. Member on securing this debate. I know that he is very passionate about this area. More than half a million people suffer from the illness. Would he agree that the issue is about not just a national roll-out and getting an understanding, but a proactive approach where general practitioners make referrals for individuals whom they know are at a higher risk?

[Shockat Adam]

The hon. Gentleman may have read my speech when I was not looking, as I am coming to that point in a little while.

Regular eye exams are the frontline of glaucoma detection, yet one in four people in the UK is not accessing any form of eye care at all. Minister, we should begin with a mandatory sight test for drivers. The UK is the only country in Europe that gives lifelong licences until the age of 70 without requiring an eye exam. Earlier this year, a coroner in Lancashire issued a prevention of future deaths report linking a fatal crash to undiagnosed sight loss. This is no longer just a health issue; it is a public safety one. We can also incentivise eye tests, perhaps through reduced insurance premiums, employer wellbeing programmes or GP-led initiatives. For those over 40, when glaucoma risks are higher, every routine health check should include a simple question: “When did you last have your eyes tested?”

Finally, we must consider innovation. Most glaucoma patients are prescribed lifelong eye drops, but there is poor compliance. Mr Pritchard, imagine that you were elderly and trying to open up a bottle of eye drops and bring it to your eyes. It is very difficult, especially with arthritis and tremors; difficulty inserting the drops remains a major challenge. But new options are now available. One is called minimally invasive glaucoma surgery, which can delay or even eliminate the need for drops. I urge the Minister to explore commissioning MIGS, especially for suitable patients undergoing cataract surgery. Everybody who lives long enough will need to have a cataract operation. If they are also suffering with glaucoma, we can stop the disease in its tracks before it causes irreversible harms. It is critical that patients with glaucoma who need cataract surgery are able to discuss options with their glaucoma consultant, because if MIGS is not performed during cataract surgery, it may be eliminated as a future option.

The total cost of visual impairment in the UK is now £26.5 billion. That is projected to rise to £33.5 billion by 2032. Glaucoma alone accounts for £750 million, according to the College of Optometrists, and most of that burden falls outside the national health service in lost productivity, in formal care, in people having to give up work to look after family who have lost their sight and in a completely diminished quality of life. In fact, 41% of people surveyed reported severe financial impact due to sight loss, often followed by depression, anxiety and social withdrawal.

This is a silent epidemic and it all leads to a low score in every perceivable index. But it is not inevitable. We already know what works and we already have the workforce and technology. What we need now is collaboration from the optical and ophthalmic industry and a political will. That will help us shift care from hospitals into the community, bring eye care into the digital age and help us prevent sickness such as glaucoma, saving the sight of millions in the future. Let us act now while we can still see what is around us.

[Brian Leishman (Alloa and Grangemouth) (Lab)]

It is a pleasure to serve under your chairship, Mr Pritchard. I extend my thanks to the hon. Member for Leicester South (Shockat Adam) for securing this important debate. When the time comes, I will welcome an intervention from him to help me pronounce the name of the eye operation that I had, because I can never say it.

I often say that all politics is personal, and that is incredibly apt for me in this debate, because 17 years ago, when I was 25, I was diagnosed with glaucoma. Pre-diagnosis, my knowledge of the condition extended to Edgar Davids, the Dutch footballer who wore what looked like safety goggles when playing because he had glaucoma and could not wear contact lenses.

Unlike many people’s glaucoma stories, mine is a very fortunate one. Before coming to this place, I was a golf professional. At the time, I was giving lessons to an optician, who offered to gift me a pair of glasses as thanks—I know that sounds a familiar story for a Labour politician, but I move on. He did some tests, including for glaucoma, and commented that my eye pressure was extremely high, in the mid-30s. Within the hour, I was in the ophthalmology clinic at Perth royal infirmary and was diagnosed with glaucoma.

Dr Cobb, who became my consultant, saw me at Perth royal that afternoon and has been absolutely incredible ever since. She explained to me that I was very lucky: if I had continued undiagnosed, I would probably have had another decade or so of eyesight and then would have woken up one day, in my mid-30s, unable to see. There would have been nothing she could have done for me; I would have been blind. The glaucoma was totally symptomless, and it is irreversible—those are the real dangers.

[Shockat Adam]

I always recall a patient of mine who was diagnosed with glaucoma at a very late stage. She came into the practice with a wad of cash and said, “Give me the best glasses and lenses you have, so I can see again.” Unfortunately she had glaucoma, and the vision was lost. There was nothing that money could buy.

[Brian Leishman]

That is not the first time I have heard that. I have another optician friend, who said that that has been a regular occurrence in his career. Someone may not know that they have glaucoma until it is too late.

I was prescribed eye drops. I went through a few options, with not much success, until I ended up on three different drops: bimatoprost, brinzolamide and brimonidine. All three go in my left eye at bedtime and then again the next morning, and then just brimonidine in my right eye at bedtime and again the next morning.

My right eye needs only one set of drops because it has been operated on. It has had a trabeculectomy—I hope that pronunciation was close enough. The operation was needed to save the eyesight in my right eye. It was an operation under general anaesthetic to make an incision in my eyeball to allow pressure to disperse and not attack my optic nerve. After an overnight stay in hospital, I wore an eye patch for a week, with no bending over for a fortnight and four weeks off work. I had a good report from Dr Cobb, and have had eye drops twice a day and twice-yearly check-ups at hospitals since. I really am lucky.

As well as my thanks to my consultant, I want to record my appreciation for my optician, Eddie Russell of Norman Salmoni, who provides regular check-ups between hospital visits, and for the outstanding care that his practice provides.

All that goes to show that the NHS really is our greatest invention. Personally, I reject the language of the NHS being broken. It is not broken; it is underfunded. The staff deserve more. They deserve the very best.

I cannot emphasise enough how important it is to get tested. Testing could be the difference between retaining one’s eyesight and not. I thank hon. Members for permitting me to share a bit about my ongoing glaucoma journey. Glaucoma cannot ever be cured, but we can try to manage the decline somewhat.

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[Shockat Adam]

It has been a real pleasure to serve under your chairship, Mr Pritchard. I thank each and every hon. Member for their contribution. I think we have achieved the first objective, which was to raise awareness of glaucoma, and we should keep the conversation going. As my neighbour, the hon. Member for Hinckley and Bosworth (Dr Evans) said, we have an ageing population. If nothing is done, very soon there will be more than half a million people walking around with this condition. That is why it was pleasing to hear that the Minister remembered our meeting, which was early on in our tenure; I can assure him we will continue to have that meeting every time he sees me about eye health.

I would like to take this opportunity to thank the people in the Public Gallery: we have people from the Worshipful Company of Spectacle Makers, the General Optical Council, the College of Optometrists and Glaukos —my apologies if I have forgotten anybody there. We must utilise optometry as the primary eyecare provider that it is, and treat it as such, equivalent to how we treat our GPs and pharmacy colleagues. We need a statutory framework to regulate the whole process of detection, monitoring and treating glaucoma. Working collectively with the optical and ophthalmic bodies and the Government, we can surely do our best to keep people from suffering preventable sight loss and the devasting impact that that has on their lives.

Question put and agreed to.

Resolved,

That this House has considered glaucoma awareness.