Young Cancer Patients: Experiences and Outcomes

Steve Yemm Excerpts

Monday 13th April 2026 Commons Chamber

[Steve Yemm (Mansfield) (Lab)]

I am grateful to have had the opportunity to secure this important debate on a subject that matters deeply to me in my role as parliamentary champion for the Teenage Cancer Trust, and as an officer of the all-party parliamentary group on cancer in children and young people. It is an issue that matters profoundly to my constituents. In Mansfield, I am contacted regularly by young people, by parents and by families whose lives have been turned upside down by a cancer diagnosis. They write to me not just about treatment but about their wider experience—the fear, the uncertainty, and the disruption to education, work and relationships. They write because they want to be heard, and I hope that tonight the House, and indeed the Government, will listen.

Every few hours in the United Kingdom, a young person hears the words, “You have cancer”. It is mostly blood cancer, including leukaemia, lymphoma and myeloma—the most common cancers among children, teenagers and young adults in the UK. The reality is stark: more young people are getting cancer. Rates have risen by a quarter since the early 1990s, and the increase is projected to continue. Cancer remains the leading cause of disease-related death among teenagers and young adults in the UK, but even for those who survive, the impact can be lifelong—physically, emotionally and socially—especially when the right support is not there. This is happening at a time when life is already tough for young people, many of whom are facing economic uncertainty, struggling with mental health issues, and worrying about their futures. A cancer diagnosis compounds all that, often at the most formative stage of life.

[Jim Shannon (Strangford) (DUP)]

I commend the hon. Gentleman for bringing forward this issue, which is clearly very important to him—he has illustrated that through his commitment to these debates, which he always gets involved in. I congratulate him on that.

In Northern Ireland, approximately 60 children under the age of 16, and 80 teenagers and young adults between the ages of 16 and 24, are diagnosed with cancer each year. Although these cases are rare and account for only 1% of all diagnoses, they require a highly specialised, family-centred approach. Around 87% of young people survive for at least one year, and 78% survive for five years or more. Does the hon. Gentleman agree that improvements can be made to ensure that our children have the best possible treatment, regardless of where they live? There should be no box for them; they should get treatment wherever they are in the United Kingdom.

[Steve Yemm]

I thank the hon. Member for his intervention.

This is Teenage and Young Adult Cancer Awareness Month, and it is right that we use this moment to shine a light on a group that is too often overlooked: young people who fall between children’s and adult services, and whose needs are too often not fully recognised. Before 1990, young people with cancer were treated either on children’s wards or alongside much older adults, with very little recognition of their distinct needs. The Teenage Cancer Trust changed that. It pioneered specialist care for 13 to 24-year-olds, creating dedicated units within the NHS that are staffed by expert nurses and youth workers, and which are designed to support not just treatment but the whole person. Today, 28 units across the UK help young people to receive care, alongside others their own age, in environments that protect their independence, dignity and mental health. At that age, cancer is not just a medical condition; it disrupts young people’s education, relationships, identity and plans for the future.

We know that when young people receive age-appropriate care, their experiences and outcomes improve significantly, but only around half of young people with cancer currently benefit from this type of specialist support. One of the most critical issues facing young people with cancer is the speed of diagnosis. Unlike many adult cancers, those affecting young people are often rare and cannot be prevented. Blood cancer, which is the most common cancer for young people, does not have the same focus or understanding as other types of cancers. That means early diagnosis is absolutely crucial, yet too many young people face delays.

Awareness of cancer symptoms among young people remains worryingly low. Fewer than half of 18 to 24-year-olds can identify key warning signs—things like unexplained lumps, pain, tiredness or significant weight changes. In Mansfield, I have heard directly from families about the consequences of that lack of awareness: multiple GP visits, uncertainty and delays before being referred for diagnosis. Indeed, nearly half of young people with cancer report attending three or more GP appointments before being referred. That experience was echoed by the family of 11-year-old Joel from Mansfield, who in 2024 sadly passed away after a nine-month battle with acute myeloid leukaemia. He made four initial GP visits and presented with a range of symptoms, which were dismissed as simply bruising from football or as a laundry detergent allergy. After the symptoms worsened, it took a second opinion from another GP and an emergency A&E visit before the cancer was diagnosed correctly.

It is important to recognise that such delays are not just clinical; they are often psychological. Evidence shows that waiting two months or more for a diagnosis significantly increases the likelihood of anxiety and depression. I ask the Minister, how will the Government ensure that teenagers and young adults are not simply funnelled through paediatric diagnostic pathways, but are recognised as a distinct group with distinct needs? What steps will be taken to raise awareness, both among young people and across primary care, of the signs and symptoms of cancer in this particular age group?

The second issue that I want to address is psychological support. A cancer diagnosis at any age is devastating, but for a young person it is often overwhelming. They face fears about survival, about treatment and about their future. Their education is interrupted, their friendships are disrupted and their sense of identity can be shaken. It is deeply concerning. Studies including research from Young Lives vs Cancer, which provides specialist social care support, show that 90% of young people undergoing cancer treatment experience anxiety, 83% report loneliness, 70% experience depression and nearly half experience panic attacks.

[Chris Bloore (Redditch) (Lab)]

Will my hon. Friend give way?

[Steve Yemm]

In view of the time, I will continue, if my hon. Friend does not mind.

These are not marginal figures. They represent the overwhelming majority, yet despite a clear NHS commitment that every young person should have access to mental health support, provision remains inconsistent. In effect, it is a postcode lottery. Five years ago, the Teenage Cancer Trust warned of that in its “#NotOK” report, but today progress remains limited.

In Mansfield, families have raised with me the difficulty of accessing timely mental health support during and after treatment. The family of Eilidh, a 23-year-old from Mansfield who was diagnosed with a rare lung cancer at the age of 20 after initially being reassured that nothing was wrong, made that point to me. She underwent the removal of an entire lung, but what followed was a lack of clear aftercare and support, with no structured rehabilitation, limited guidance on recovery and ongoing difficulty in navigating care. Her experience highlights not just the physical impact of cancer treatment, but the confusion, anxiety and gaps in support that too many young people face once treatment ends. I ask the Minister what funding and timelines are in place to ensure that every young person with cancer can access specialist psychological support, and not just during treatment but for at least two years afterwards.

The third issue is access to clinical trials. Clinical trials are essential to improving outcomes and developing new treatments, but teenagers and young adults are significantly less likely than other age groups to take part, not because they do not wish to but because the system does not work for them. They are often excluded because of age restrictions: they are too old for paediatric trials and too young for adult trials. They are more likely to have rare cancers, meaning that fewer trials are available. I refer again to Joel from Mansfield: his family asked his doctors about opportunities to participate in a clinical trial, but were told that there were none. Even where trials exist, information can be difficult to find, both for clinicians and for parents.

The ambition has been clear—50% participation by 2025—but progress has been slow. No young person should miss out on a potentially lifesaving opportunity simply because of their age, so I ask the Minister how the Government will measure and report progress on improving access to clinical trials for young people, and what accountability mechanisms are in place to ensure delivery.

Finally, I want to address the issue of data. Too often, young people with cancer are effectively invisible in the system. Data is not consistently collected, not consistently reported and not always broken down in a way that allows us to understand their experiences. Without good data, it is hard to identify inequalities, we cannot target improvements and we cannot ensure accountability. What steps will the Minister take to improve the collection and publication of age-specific data on cancer outcomes for teenagers and young adults?

To conclude, the issues I have spoken about today matter deeply to my constituents in Mansfield and to the young people facing cancer today across the country. They also matter to the families supporting them, and they matter to all of us who believe that no young person should face this disease without the care and support they deserve. The evidence is clear: when young people receive timely diagnosis, age-appropriate care, access to psychological support and opportunities to participate in clinical trials, their outcomes improve. The Teenage Cancer Trust has shown what is possible, but it cannot do it alone. If we are serious about improving outcomes, the commitments in the national cancer plan must be delivered with urgency, funding and accountability. We need to improve awareness, we need to remove barriers and we must ensure that young people are no longer overlooked or underserved.

I will close with a simple request to the Minister: will she commit, alongside the Secretary of State who promised me personally that he would do so, to visit a Teenage Cancer Trust unit to hear directly from young people to understand their experiences and to see at first hand the difference that specialist age-appropriate care can make? If we truly listen to those young people, we will know exactly what needs to change.