Unpaid Carers: Inequalities

Wendy Chamberlain Excerpts

Thursday 20th November 2025 Westminster Hall

[Wendy Chamberlain (North East Fife) (LD)]

It is a pleasure, as always, to serve under your chairship, Ms Vaz. I thank the hon. Member for Shipley (Anna Dixon) for securing this important debate in honour of carers’ day-to-day rights, and for her work in the all-party parliamentary group on carers. I declare an interest as an honorary vice-president of Carers UK and a trustee of the board of Fife Carers Centre; both are incredible organisations. I also want to recognise other organisations that provide support in this area, include Sheffield University’s Centre for Care, the Carers Trust and Fife Young Carers, which provides support to young carers in my North East Fife constituency and beyond.

Unpaid care is part of almost all our lives, whether we recognise it or not. I am no exception. When I started campaigning for the Liberal Democrats, and then became an MP under the leadership of my right hon. Friend the Member for Kingston and Surbiton (Ed Davey), who is a carer himself and a prominent activist—in fact, I almost once described him as my carer—I became truly involved with the fight for the rights of unpaid carers. As a newish Back-Bench MP, it was an incredible opportunity, and it was also quite fun and exciting to be able to get a law passed: the private Member’s Bill that became the Carer’s Leave Act 2023.

Looking back now, what I remember most is the amazing people I met during that time in North East Fife, and throughout the country—just a handful of the 5.8 million unpaid carers, impressive in their resilience, love and thoughtfulness. I was moved by what was behind that resilience and humour: the tiredness, strain and financial difficulties, as well as the constant worry of thinking about someone else.

I intend to use my time to reflect on the 2023 Act and what more needs to be done. It is disheartening that, in the two and a half years since the Act was passed, evidence suggests that things are still getting worse. Research by Carers UK, “State of Caring 2025”, which the hon. Member for Shipley referred to, shows that 49% of carers have had to cut back on essentials; in 2023, that figure was 34%, already elevated from 25% in 2022, and it was just 13% in 2021. This is not the result of bad luck or the same impact from the cost of living crisis as we all see; the rate of poverty among unpaid carers is 50% higher than in the rest of the population. This is clearly the outcome of structural inequalities that the Government need to address.

There are some other things that the Government can do immediately to ease the financial burden on unpaid carers, particularly those in receipt of carer’s allowance. I pay tribute to the long work of Baroness Pitkeathley on behalf of unpaid carers, both in the other place and beyond. On Tuesday, she asked the Minister of State at the Department for Work and Pensions in the House of Lords when we can expect the publication of the independent review into carer’s allowance overpayments. I would be most grateful for some further detail on that from the Minister and colleagues in the DWP, other than “by the end of the year”, given that it is only four weeks until the House rises for Christmas recess. When in that period can we expect the report to be published, and will there be time for parliamentary scrutiny of it? The overpayments scandal has affected thousands of people across the UK. The last thing that unpaid carers, and indeed the MPs representing them, want is a written statement hurriedly published in late afternoon on 18 December.

As we are still awaiting publication of the review and the Government’s response to it, I will set out some of the reforms needed to end the financial inequalities experienced by unpaid carers. The carer’s allowance earnings threshold must be pegged to the minimum wage, so that no unpaid carers in work ever find themselves earning “too much”, simply because the Government made it so. The rules on what unpaid carers can earn must be made clearer, and DWP staff must be trained better to prevent future inadvertent overpayments. Of course, the Timms review of personal independence payments must make sure not to disadvantage unpaid carers. I should acknowledge that my constituents in Scotland are now in receipt of the equivalent carer’s support payments.

Referring again to the Carer’s Leave Act, last night I attended the carers’ rights event in Parliament, where I was pleased to speak to a number of businesses that are already going above and beyond the provisions in the Act. They are doing that because they believe it makes good business sense. For them, it is about the psychological contract, improving employees’ loyalty and retaining them—staff retention is as important as recruitment.

I am pleased that the Government have published their terms of reference for the review of the Act. That has, in some respect, answered what was going to be my first question to the Minister. The bad news is that I have some other reflections on the back of yesterday’s announcement. The terms of reference published yesterday give a timeline for evidence gathering that started over a year ago, in autumn 2024. That is quite a lot of time for the Government to have been doing engagement and commissioned research before coming to Parliament or even announcing the review and what it aims to achieve. Will the Minister update us on what evidence and engagement has been secured to date?

There is a formal public consultation of 10 to 12 weeks to seek views. I know that unpaid carers, the networks that represent them and the organisations offering support will want to respond, but most of these structures are manned and run by volunteers or paid staff who are already stretched, and we know that unpaid carers have more than enough to deal with on a day-to-day basis already, and often feel guilty about the admin involved in their lives. Have the Government considered whether the 10-week consultation period will be long enough? What steps will they take to reach people and engage on the ground?

On the findings of the review, I have my suspicions, which I have raised with the Government before, that not enough businesses were made aware of the new right under the Act. I fear not enough businesses trained their managers, HR teams and employees about it, and I fear that the Government gave insufficient information to employers and businesses about their obligations. Without adequate communications, not enough unpaid carers knew to see themselves as carers or that they were entitled to the support. If it is going to be a paid leave right, if that is the direction of travel, we need to get better at those things. I want to say in words the Government will understand that I firmly believe paid carer’s leave supports the growth agenda and will help the economy.

One thing I have loved about joining the board of Fife Carers is seeing the impact on the local organisation and volunteers. The centre was shortlisted as a finalist for providing outstanding carer service at this year’s inaugural Carers UK awards. That is quite something for an organisation that started with just one part-time worker 30 years ago. The nomination recognised the value of the support the organisation provides, whether its hospital carer self-care kits or its carer support groups. I had the pleasure of attending one in Leven recently and people were not backward in coming forward to talk about the changes they want to see.

Whether someone is working and caring or caring full time, they will inevitably be exhausted. The “State of Caring 2025” report says that 74% of carers feel stressed or anxious, and 42% say their physical health has declined. We all need a break sometimes; carers need and deserve it more than most, but how are they to manage that when they have someone relying on them day in, day out? The answer is funded respite care. I am sure my hon. Friend the Member for Mid Sussex (Alison Bennett), my party’s spokesperson for care and carers, will mention that, given that she has a Bill before Parliament to ensure that unpaid carers are offered respite. I support that wholeheartedly. I hope the Minister can give us an update on that, too.

I am conscious of time, so I will end my remarks there. Inequalities exist and we have a responsibility here in this place to address them.

--- Later in debate ---

[Alison Bennett (Mid Sussex) (LD)]

It is a pleasure to serve under your chairship, Ms Vaz. I thank the hon. Member for Shipley (Anna Dixon) not only for securing this important debate on Carers Rights Day, but for all her work championing carers since her election to Parliament.

I welcome yesterday’s publication of the terms of reference of the employment rights for unpaid carers review, which suggests that the Government are looking in the right direction. However, as my hon. Friend the Member for North East Fife (Wendy Chamberlain) noted, the pace is not as fast as it could be—it has already been going a year—and the period of consultation may actually be too short, given the demands that carers and the people who support them face, as everybody in this Chamber understands. I hope this review will usher in paid carer’s leave, as it would make the biggest difference for those on the lowest wages, who cannot currently afford to take unpaid carer’s leave.

This year, the theme of Carers Rights Day is, “Know your rights, use your rights”. It is all about making sure, as hon. Members have noted, that the millions of unpaid carers who support loved ones through illness and disability, know that they have access to support and rights, such as carer’s assessments, carer’s leave and hospital discharge support.

In my Mid Sussex constituency and across the UK, hundreds of thousands of people are waiting for social care. Many are stranded in hospital beds simply because the support they need in the community is not there, which in turn puts immense strain on our already creaking NHS. That is why my Liberal Democrat colleagues and I are campaigning so passionately for a social care system that values care users, supports care workers and, crucially, recognises the millions of unpaid carers who quietly keep this country going.

The hon. Member for North Herefordshire (Dr Chowns) set out her frustrations, which we share, with the pace of the Casey review. It is worth noting that only one cross-party meeting has happened since the Secretary of State announced that review in January, and a second meeting has not yet been convened. Can the Minister advise us when we can expect to secure a second meeting?

[Wendy Chamberlain]

I want to express my thanks to Baroness Casey, who, although she has been appointed to this commission, is doing other work for the Government. I would not want that to go unrecognised when we are talking about the delays.

[Alison Bennett]

I wholeheartedly agree with my hon. Friend’s excellent point. It is regrettable that there seems to be only one person that the Government like to call on to do very important work across a number of different areas.

--- Later in debate ---

[Stuart Andrew (Daventry) (Con)]

It is a pleasure to serve under your chairmanship this afternoon, Ms Vaz. I am pleased to respond to this important debate on behalf of the Opposition, and I thank the hon. Member for Shipley (Anna Dixon) for securing it and for her long-standing leadership on carers’ rights.

I acknowledge the contributions made by hon. Members across the House this afternoon. They have spoken very openly about their personal experiences, which helps to bring alive this debate and these issues. I am conscious that the hon. Member for Bexleyheath and Crayford (Daniel Francis) talked about how much work he has to do before he even gets to work, which reflects what so many people across the country feel. As has just been said, unpaid carers are the backbone of our care system. They provide vital support to loved ones, often around the clock and with little recognition, and at great personal cost. This debate is therefore not just timely, but probably overdue.

Before entering Parliament, I spent over 15 years working mainly in palliative care, and much of that in children’s hospices—lastly at Martin House children’s hospice up in Yorkshire. I saw the extraordinary compassion, amazing resilience and sacrifice from unpaid carers every single day, whether from parents caring for their terminally ill children, many of whom had very complex needs, or relatives supporting someone at the end of their life—people managing both care and grief at the same time. I will always remember one parent saying they would consider it a good night’s sleep if they got up only eight times in the night to help their daughter, which gives an indication of how much work they do. As the hon. Member for Shipley said, so many carers end up giving up work because they have to provide that care. Sadly, so many relationships break down because of the pressures.

I now find myself having to care for my elderly father. I had to move him into my home, and I am now seeing at first hand the things people have to do. When I am here, I always worry, “Is he okay? Is there enough food and milk in the fridge?” I also watch every single move he makes. I once turned my back, for literally a minute, and he fell flat on his face. I realise that it was not my fault, but I cannot help but have those feelings of guilt.

I also pay tribute to the hon. Member for North East Fife (Wendy Chamberlain) for her amazing work on the Carer’s Leave Act. That really is important, and the cross-party support for it showed Parliament at its best. It is great that carer’s leave is now a day one right and that it can be taken flexibly, because that is what unpaid carers need. They need to be able to take that half-day, or full day, if they need it because, as we have heard, one in seven are juggling work and caring responsibilities. I thank the hon. Lady and my hon. Friend the Member for Gosport (Dame Caroline Dinenage), who I know would like to have been here today—she gave quite a bit of support during the Act’s passage—for encouraging the previous Government.

[Wendy Chamberlain]

I thank the right hon. Gentleman for his kind comments. Passing a private Member’s Bill is obviously more straightforward with Government support, which I had, so I am grateful to him and his colleagues.

[Stuart Andrew]

It just shows how, when Parliament works well, it works exceptionally well.

I want to repeat some of the comments that have been made. The Government have launched a review of the potential benefits of paid carer’s leave, with the conclusions coming at the end of the year, I believe. As others have said, that is welcome, but I am sure that carers would hope that there will be clarity and no delays.

I look forward to hearing the Minister’s response to some of the issues that have been raised in this debate, and to hearing whether the Government are genuinely open to acting on the review’s findings. A fair point has been made about the length of time that people have to contribute to that consultation, given the responsibilities that they have. We must ensure that the consultation is accessible. I was a critic of this when we were in government, but doing just online consultations means that those who are not digitally savvy can be excluded. It is important we make sure that is not happening.

As other hon. Members have said, the financial pressures on carers remain severe, with one in four unpaid carers living in poverty. The employment rate among carers is just 50%, compared with 75% across the general population, but with the right support an estimated half a million carers could return to work. That would not only strengthen their security but contribute to the economy, which is what we all want to see.

In fairness, it is not just the Government who have to act; there is a responsibility on employers, too. I saw in the hospices that some businesses took on our young adults despite their life-limiting conditions. The employers told us that what they got from those individuals was utterly amazing, and that they were really dedicated to their work.

The recent increase to the carer’s allowance earnings limit is a step in the right direction, for which I thank the Government. However, the Carers Trust has rightly called for a full review of carer’s allowance and the wider support system. I am keen to hear whether that is something the Government are considering.

I am also concerned that the level of respite support has been falling, and has dropped by 6% in local authorities in the last year alone. I am concerned about, and pay tribute to, the charities that offer so much respite support. I know, from my consultations with charities, that the rise in national insurance contributions has had an impact, and that they have had to reduce and scale back their staffing. That is a concern, and I hope we recognise the size of their contribution.

At the hospices at which I worked, it was not just about end-of-life care. Some of the most important care they provided was respite stays. Either the child came on their own so that the family might go on holiday, or the whole family came together, which gave them the opportunity to be a family again. The child who needed care was being looked after by the care team, which meant the parents could be parents again to the siblings, who often miss out in such situations.