Motor Neurone Disease: South of England
(asked on 5th January 2026) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the effectiveness of the Rob Burrow Centre for Motor Neurone Disease; and what support the NHS provides to people with Motor Neurone Disease in southern England.
NHS England does not commission services from the Rob Burrow Centre for Motor Neurone Disease (MND). Funding for the centre is provided by the Leeds Hospital charity service. Therefore, neither NHS England, nor the Department, have made an assessment of the effectiveness of the centre.
NHS England commissions specialised services for neurology, which includes MND. There are 27 specialised neurology centres in England, eight of which are in London, three of which are in the south-east, and two of which are in the south-west.
In August 2025, NHS England published a revised service specification for specialised adult neurology services. It outlines a number of minimum service requirements for key specialties, including neuromuscular disorders like MND, and is avaiable at the following link:
There are a number of initiatives supporting service improvement and better care for patients with MND, including the Getting It Right First Time Programme for Neurology and the RightCare Progressive Neurological Conditions Toolkit. NHS England has also established a Neurology Transformation Programme, a multi-year, clinically led programme, which has developed a new model of integrated care to support integrated care boards to deliver the right service, at the right time for all neurology patients, including those with MND.