Huntington’s Disease: Health Services
(asked on 27th January 2026) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to (a) improve multi-disciplinary team care for people with Huntington’s disease and (b) encourage the use of specialist inpatient units, community multi-disciplinary teams and advisory services.
The 10-Year Health Plan for England sets out the Government’s ambition to establish Neighbourhood Health Centres in every community. Neighbourhood health will bring more care into local communities, tailoring services to meet those needs through local co-ordinated teams, addressing not just clinical needs but wider support needs, and ensuring that services can be accessed as easily as possible for each individual.
The NHS England revised Specialised Neurology Services (Adults) – service specification is due to be implemented from 2026 onwards and also outlines a comprehensive model of care, detailing the requirements for specialised neurology services and outlining the expectations of a system-wide approach. This includes access to specialist inpatient units for those patients with the most complex presentations, as well as multi-disciplinary team working and advice and guidance. The document is available at the following link:
NHS England Neurology Transformation Programme is developing a neurology transformation toolkit, including a document outlining a model of care for integrated neurology care. This document outlines the impact of care coordination and case management functions in supporting more equitable and efficient care for people with long-term neurological diseases, including Huntington’s disease.