Mast Cell Activation Syndrome
(asked on 16th March 2026) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support research into Mast Cell Activation Syndrome; and what steps he is taking to improve training for NHS healthcare professionals in the diagnosis and management of that condition.
The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR funds clinical, public health, and social care research and works in partnership with the National Health Service, universities, local government, other research funders, patients, and the public, and the NIHR also funds global health research.
The NIHR welcomes funding applications for research into any aspect of human health and care, including mast cell activation syndrome. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality. Further information is available at the following link:
https://www.nihr.ac.uk/get-involved/suggest-a-research-topic
NHS England Specialised Commissioning has published a Service Specification for Specialist Allergy Services, which covers the responsibilities of specialised commissioned providers with regard to patients with mastocytosis and related disorders. This includes the expectation for specialist allergy services to be provided by multidisciplinary teams, led by physicians with evidence of training and/or experience in the practice of allergy or immunology. Further information is available at the following link:
The management of service users with mastocytosis is provided by specialised allergy/immunology, dermatology, and haematology services. The lead clinician will vary at different centres, but specialist allergy input should be readily available.