Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what recent steps he has taken to reduce diagnosis times for patients with motor neurone disease.

NHS England commissions the specialised elements of motor neurone disease (MND) care that patients may receive from 27 specialised neurology centres across England. Within these specialised centres, neurological multidisciplinary teams ensure that patients can access a range of health professionals and specialised treatment and support, according to their needs.  In August 2025, NHS England updated its service specification for specialised adult neurology services. It outlines a number of minimum service requirements for key specialties, including neuromuscular disorders like MND.

At the national level, there are a number of initiatives supporting service improvement and better care for patients with MND, including the Getting It Right First Time (GIRFT) Programme for Neurology and the RightCare Progressive Neurological Conditions Toolkit.  The GIRFT Programme has produced a Further Faster handbook for neurology, which provides resources and best practice guidance to help support clinical teams go faster and further in reducing neurology waiting times, including for patients with MND.

Neurology waiting times are coming down. Between December 2024 and December 2025, the average waiting time for neurology services was reduced from 16.2 to 15.2 weeks. Additionally, 57% of patients referred were seen within 18 weeks, up from 54.2% at the same point last year. We are continuing efforts to improve this, recognising this is a challenged specialty.

Baroness Casey has set out that the Government must take immediate action on MND. Where someone has a severe, reasonably predictable, and life-limiting condition, it is essential that we provide rapid access to the support they need, and we will take forward immediate work to develop a fast-track process, or “passport”, that speeds up assessments and access to care for people diagnosed with MND. We will consider how best to safely implement a process that expedites assessments and gets people with MND the care and support they need more quickly.