Spinal Muscular Atrophy: Medical Treatments
(asked on )
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what progress NHS England and Biogenon have made in discussions on a managed access agreement for the use of Spinraza for the treatment of spinal muscular atrophy.
This question was answered on 5th March 2018
NHS England has advised that it is continuing discussions with Biogen and the National Institute for Health and Care Excellence about the use of nusinersen (Spinraza) for the treatment of patients with spinal muscular atrophy.