Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether his Department is taking steps to support people whose children have been diagnosed with Batten disease.

NHS England commissions a service to treat adults and children with lysosomal storage disorders, including Batten disease. This is a holistic, inclusive multidisciplinary service which provides diagnosis, assessment, treatment and advice on symptom control and provides support for affected families with patient advocacy groups.