Written Question on Cystic Fibrosis

Written Questions are submitted by MPs or Lords to receive information from a Department.


See more on: "Cystic Fibrosis"
Date Title Questioner
23 Jan 2019, 1:58 p.m. Cystic Fibrosis Bill Wiggin

Question

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support people with cystic fibrosis.

Answer (Steve Brine)

Specialised services for the support and treatment of patients with cystic fibrosis (CF) are commissioned by NHS England. CF services are delivered in about 20 Paediatric Cystic Fibrosis Centres and about 20 Adult Cystic Fibrosis Centres. There are separate service specifications for adults and children. These specifications are important in clearly defining what NHS England expects to be in place for providers to offer evidence-based, safe and effective care and they support equity of access to a nationally consistent, high quality service.

The specifications can be found via the following links:

www.england.nhs.uk/wp-content/uploads/2018/08/Cystic-fibrosis-adult.pdf

www.england.nhs.uk/wp-content/uploads/2018/07/a01Sb-spec-cystic-fibrosis-child.pdf

In October 2017, the National Institute for Health and Care Excellence published new guidance for the diagnosis and management of CF. This includes specific details on how to monitor the condition and manage the symptoms to improve quality of life. This guidance can be found via the following link:

www.nice.org.uk/guidance/ng78#


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