Palliative Care: Children

(asked on 31st March 2025) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to help ensure that children with life-limiting conditions have access to children's palliative care in the community (a) out of hours and (b) at weekends.


Answered by
Stephen Kinnock Portrait
Stephen Kinnock
Minister of State (Department of Health and Social Care)
This question was answered on 7th April 2025

Palliative care services, including for children and young people, are included in the list of services integrated care boards (ICBs) must commission. ICBs are responsible for the commissioning of palliative and end of life care services to meet the needs of their local populations. This promotes a more consistent national approach and supports commissioners in prioritising palliative and end of life care. To support ICBs in this duty, NHS England has published statutory guidance and a service specification for children and young people.

The statutory guidance produced by NHS England on palliative and end of life care makes specific reference to commissioners defining how their services will meet population needs 24/7 and includes a priority action for ensuring that staff, patients and carers can access the care and advice they need, whatever the time of day. Regional NHS England teams continue to liaise with ICBs to ensure these commissioning arrangements are in place. Expert strategic networks in the regions provide an opportunity to share good practice around improving access and quality of palliative care and end of life care.

As part of our 10-Year Health Plan, we will shift more healthcare out of hospitals and into the community, and the palliative and end of life care sector will have a big role to play in that shift.

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