Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to provide (a) transport, (b) digital appointments and (c) other support to families managing the transition of cystic fibrosis patients from paediatric to adult care services in Wiltshire.

NHS England commissions 47 specialised cystic fibrosis (CF) centres for adults and children across England, in addition to supporting the optimal monitoring of patients with CF at home, and supporting best practice in remote consultations.

Service specifications published by NHS England clearly define the standards of services, care, and outcomes that people, including those in Wiltshire, can expect from specialist CF centres. Those service specifications aim to deliver improvements to life expectancy and quality of life for adults and children with CF. The service specification for children with CF outlines that the transition from paediatric to adult services should be planned with the patient and their parents/carers with due regard to patient choice, and discussions should take place as early as possible about the process of transition and the options for adult care.

The age of transition should be flexible, with the opportunity to visit the adult centre and meet key multi-disciplinary team members. There should be a detailed clinical handover and a documented paediatric and adult multi-disciplinary team member liaison. Specialist adult CF centres should demonstrate that they are actively engaging in the transition process for each child and are required to submit an annual audit report to commissioners of the experience of patients who transitioned during the year.

In August 2024, NHS England published the RightCare cystic fibrosis toolkit to help improve CF services and reduce unwarranted variation. The toolkit recommends that outpatient services should consider a hybrid model of face-to-face and virtual consultations, as appropriate. It recommends that trusts should provide the infrastructure and resources to provide virtual consultations, including IT tools and virtual monitoring capability, but should not replace face-to-face care where it is more appropriate, dependent on clinical need, or preferred by individuals.

To support patients, including those in Wiltshire, with the cost of travel, the National Health Service runs the Healthcare Travel Costs Scheme. The scheme allows patients to claim a refund of reasonable travel costs, provided that they meet the eligibility criteria and have been referred to hospital or other NHS premises for specialist NHS treatment or diagnostic tests. Further details are available at the following link:

https://www.nhs.uk/nhs-services/help-with-health-costs/healthcare-travel-costs-scheme-htcs/