Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will make an assessment of the adequacy of the level of public funding for (a) research and (b) treatment of Huntington's disease.

Expenditure on research into dementia and neurodegeneration, including Huntington’s disease was approximately £420 million from 2015/16 to 2019/20 and £77 million in 2020/21. The National Institute for Health and Care Research (NIHR) has funded two studies into Huntington’s disease with a value of £316,267. In the last five years, the NIHR has also supported the delivery of 39 studies relating to Huntington’s disease via the Clinical Research Network infrastructure. The NIHR is also supporting research on diagnosis and treatment of this condition through its Biomedical Research Centres.

No specific assessment of funding for the treatment of Huntington’s disease has been made. However, integrated care boards are responsible for working with local communities, commissioners and organisations to understand the needs of the local population and how to commission services to meet those needs, including the treatment of Huntington’s Disease.