Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to increase support for children with Wiedemann-Steiner syndrome.

The Government is committed to improving the lives of those living with rare diseases, such as Wiedemann-Steiner syndrome. The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community: these include getting a final diagnosis faster; increasing awareness of rare diseases among healthcare professionals; better coordination of care; and improving access to specialist care, treatments, and drugs.  In February, we published the annual England action plan, where we report on the steps we have taken to advance these priorities.